Hi! I recenlty posted about having had an ASD amplatzer closure in July2009.
I am feeling very scared about the device eroding the heart. My cardiologist said that it has been known to happen and that no one appears to know why exactly it happens--i..e there is not one common link-- device oversizing, hole size, rims etc. He said that there have been probably 50-60 such cases since amplatzer has been used to close holes in the heart.
I feel like a ticking time bomb and am scared about this happening bc it can be fatal. He said that he has had one patient in the last 11 yrs of doing closures have this happen to him. Basically the patient fainted (out of the blue), luckily he went to his family doctor right away, (luckily) the doctor called the cardiologist and he ordered an echo. This showed the heart had fluid all around it. The patient immediately underwent emergency open heart surgery. I forgot to ask how long after closure this happened. AGA medical says on their website that is has been known to happen 24 hours to 3 yrs after closure!! Just when you thought things were going well!!
I feel like a ticking time bomb, bc you don't have symptoms. It happens suddenly and it can be very serious and even fatal. Maybe I am overly anxious, but I have 3 young children and do worry about this bc no knows exactly the cause. I thought of having open heart surgery initially but when my doctor said I was a good candidate for device closure, I picked that. He said he would choose that over open heart bc you can have many infections develop during your recovery.
Please, I could really use others thoughts and opinions on this subject. Thanks.