Wow, Nan that is freaky.........you are right tho; its a small world, and as massive as the internet is, it too proves to be small. When I was told to take it easy the last year and a half, it was hard for me, as I was always hyper. When I was pregnant, they were invitro babies, so I was put to bed my second month, and remained there my entire pregnancy, that was a lot easier, because I would have DONE anything to insure my babies were born on time, and when they came at 7 1/2 months, I was baffled because I had done everything right, I was able to shower once a week, ugg, and I could use the bathroom and that was it. At three in the morning my water broke, and they could not give me an explanation for eleven years. Thus the CP was diagnosed, then they knew my heart must have struggled pretty hard to pump for a twin pregnancy. They said it was a miracle I held them that long. Had I not spent every moment in bed, they would have never made it. But, when I was diagnosed, that explained everything.
NAN.....I bought the book on AMAZON...The Pericardium, by Ralph Shabetai Hardcover. There must me fifty or more pages dedicated to constrictive pericarditis, and like I said, I could never find anything but the same old stuff. Here are a couple of sentences, I found interesting...hope you do too..
The Pericardium is something of an enigma, Like the appendix, we can very well do without it, yet when it becomes diseased it can, because of it's strategic position, place a stranglehold around the heart and thus threathen life itself. and there was another part, I really wanted you to read, and now I can't find it. I just got it yesterday, and I already read so much of it, that I can't remember the place,but I will find it. I can't remember what I pd for it, but, whatever I pd it was worth it. SO interesting, I have yet to ever find any book like this, that offer's so much about CP and the pericardium. Talks about why they feel we need one..how many things it can affect, it goes on and on.....so informative, and educational. I am a junkie about wanting information on anything that affects my family or friends or even myself.
btw, Nan, did you see a cardiogist at Mayo by the name of Jay K Oh? I know that is not spelled correctly, except the last name, but he is quoted quite often in this book, and he was who I saw with Dr. Danielson at Mayo, they have done quite a few studies, one in particular that I was able to get the entire study, was called, "calcific constrictive pericarditis, is it still with us". The study is LONG, but they talk about all of their patients from literally the first case they saw...how many lived, how many died, what they died of, if they were late deaths etc. That in fact was the most detailed information I had ever seen. There is now a shorter summary of it on the net now, but, if you can find the abstract version, it has such details. When I told Dr. Danielson I found it on the internet, he asked how I was able to access it, I told him it was easy, it was unlocked. Literally the next day it was locked down, and I could not access it again. Thank goodness I printed it out..but, I believe it still can be accessed if you can find it. Its about fifteen pages long, but very informative. Some of Dr. Oh's findings on that study are in this book.
Have any of you taken Rythmol? It's an anti-arrythmia medication I have been put on; and was on ten years ago, until it made me so deathly sick that I threw up so violently one night for hours, they had told me at the time, it had become toxic with me, but, knowing that, they still put me on it last week, and I was wondering if any of you had taken it and if so, what side affects you had. I am having a hard time already, and I have only taken it a week. I can't eat, and when I took it last, I ended up at 103pds. Mind you, I am five foot eight...so that is very skinny for me, I looked horrible. I was wondering if it just happens to me on this, or if any of you have experienced this.
Another thing that baffles me, is I have noticed that all of us have experienced extreme "shake and bakes", they call this disease idiotpathic if you have not had TB or radiation, previous heart surgery, (which causes scar tissue not calcification), or a blow to the chest BUT all of us have had the fever at one time or another, but they are not acknowledging that. I wonder why...it says in the book that pericarditis can be brought on by staphylococcus or pneumococcus. First time I have read that.
Well, when I find that other quote, i will let ya know...I was up all night again, as you can tell, I am still having trouble sleeping...its like I don't want to sleep a moment before surgery. Time is so precious to me right now, I think its doing a number on my brain...anyho, have a great day guys!
Cathy