Awaiting testing for pulmonary hypertension

Hello, all!

I'm new to this forum and joining at a time of great worry.  My brand-new pulmonologist is planning to test me for pulmonary hypertension (PAH), and I'm very fearful of the outcome.  An echocardiogram from over two years ago indicated "mild PAH" back then, but somehow those results slipped off my regular doctor's radar screen.  I now seem to be experiencing some of the early symptoms of that disease, but would love to tell myself that's just an overactive imagination.  So much of what I find to read even on the reputable health web sites sounds very grim about this disease.

Has anyone on this forum been tested or diagnosed with PAH, and how have you handled that?  More to the point, how can I handle the fear and uncertainty (and slowness..) of my own testing process?

Blessings to all,

percycat

Percycat,

I hope that you will have some news from your cardiologist that you will share  with us today.  I know you are afraid but perhaps 2 years ago they did not get the dx right ?

The signs and symptoms of pulmonary hypertension in its early stages may not be noticeable for months or even years. It often takes some time to find the best treatment for pulmonary hypertension. When pulmonary hypertension is caused by another condition, your doctor will treat the underlying cause whenever possible.

I know I keep flooding you with stay in the moment but try to as much as possible and when the anxiety is to bad shed a few tears to let off some of the pressure.

Gentle Hugs,

Kitt

Results back: no pulmonary hypertension. And the report has the actual data attached, not just a "yes" or "no," so I feel a little better about trusting the results.
(Estimated sPAP of only 28 mmHG, down from 38 two years ago, for those of you who know about this condition)

percycat