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Posted 2/21/2013 11:10 AM (GMT 0)
I was diagnosed with cardiomyopathy in 2001, Idiopathic cardiomyopathy.

Initially I was told not to exercise, drink caffeine or alcohol etc.

I was given a persantine (sp) stress test at that time, and no clogged arteries or veins.

I resumed exercise, but cannot run any more as I now --Heart rate jacks up too high.

But I can bike, I do lift weights and have a normal BMI.

I am left with a left ventricular branch bundle block, an enlarged stiff left ventricle.

When I was first diagnosed, I had an ejection fraction of only 30%.

Now it is up to 45%

At rest my heart rate is in the 50s.

My BP is control with Hyzar.

I am now 58.

Is there anyone out there is can tell me thei experience with cardiomyopathy?

I am told I will need a pace maker some time in my 60s. Of course being American, without health insurance-- I am now kind of stuck.

I take Fish oil, red yeast rice pills and niacin. I am also on Synthroid for hypothyroidism.

Posted 2/24/2013 12:03 AM (GMT 0)
I also had a bout with Idiopathic cardiomyopathy. With a nice side of CHF. I did get an ICD done in 2005 with a replacement generator in 2010. I also had the BBB. My EF at surgery was 10-12% and has gained as high as 32. Last month it was running at about 27%. I do not run, but never felt the need to run. I can get there walking. I do enjoy bicycling. I do pretty much what I want for the time I am able and am happy that I can do that much. Beats the alternative. I take Coreg, Altace, Spironolactone and potassium for my heart. I have a few other meds as well that are not heart related. I do watch my diet. I take in as little sodium as possible every day. Stay away from caffiene in all it forms as much as possible. I can enjoy a nice peddle/paddle in the kayaks. I can swim. *Never alone* I am in fairly good shape for my age. I think it is manageable and you should look to each positive and set aside the negative. If you cannot run, get used to walking. You still get where you are going.
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