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(LPR)What do you do when...

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GERD & Acid Reflux
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Posted 6/5/2011 11:20 PM (GMT 0)
all these things fail

-nexium (40mg x2)
-prilosec (double dose)
-carafate
-gaviscon advance
-vinegar
-baking soda
-lifting the bed
-diet
-not eating before bed
-prokinetics
-you are not a nissen candidate

i've seen 6 gi doctors and 5 ent doctors none of them gave me a cure, i really dont know what to do.
Posted 6/6/2011 1:56 AM (GMT 0)
Why aren't you a nissen candidate? Just curious as I may go down that path in the next few months and I have LPR as well.
Posted 6/6/2011 2:30 AM (GMT 0)
i have a 12.7 mmhg LES pressure, have ppi's worked for you?
Posted 6/6/2011 2:38 AM (GMT 0)
I'm not familar with the average pressure readings... is that normal?
Posted 6/6/2011 3:30 AM (GMT 0)
Yes, PPI's have worked quite well in spurts. But I am only 19, so I am not trying to take them for the rest of my life when God knows what happens when you take them for 10+ years. I am on my fourth PPI and it doesn't work that well anymore. It seems that all of the drugs I have tried stop working after 4 or 5 months. Also, I guess your LES pressure is normal? Did the GI doc do that test or the surgeon?
Posted 6/6/2011 3:09 PM (GMT 0)
doctor/surgeon did it, normal was 12mmhg to 25 mmhg on my test, the surgeon obviously didnt want to operate
Posted 6/6/2011 5:49 PM (GMT 0)
What are your symptoms? Are you confident that you have LPR?
Posted 6/6/2011 8:12 PM (GMT 0)
So your pressure is a low normal....
I'd check with a different doctor he may have different rules about the pressure.
Posted 6/7/2011 2:21 AM (GMT 0)
@miketx yeah i have an abnormal Impedance test (weakly acidic reflux)
Posted 6/7/2011 3:47 AM (GMT 0)
over a period of two hours , if you eat one half apple and one egg white.... nothing else.... do you experience reflux?

btw if inclining your bed 10 inches at the head isnt enough then...do as i do...sleep in an upholstered reclining chair set at about 45 degrees!

Post Edited (mock turtle) : 6/6/2011 9:52:29 PM (GMT-6)

Posted 6/7/2011 5:38 PM (GMT 0)
i've tried sleeping sittting up actually, i was able to sleep but still would spit bile in the morning and wake up with a sore throat
Posted 6/8/2011 12:59 AM (GMT 0)
Have your doctors ruled our nerve damage? I have heard many are getting relief from drugs used to treat nerve damage. In the meantime, try slippery elm lozenges. They seem to slow down the burn for me.
Posted 1/16/2013 8:26 AM (GMT 0)
I know this is an older post but I just wanted to give a helpful suggestion as a fellow sufferer. I found out that in addition to the GERD, I have Gluten/Wheat/Dairy Allergies which cause the same type of symptoms along with vomiting, headaches and fatigue. Just something to consider asking a Dr. about. Be Well.
Posted 1/17/2013 4:05 PM (GMT 0)
I had LPR ( which is really a vitamin D deficiency) for two years. My doctor checked my vitamin D levels and what do you know, I was very low, (19) long story short, I started on 3000 D3 last Friday, not even a week ago, and my symptoms are almost completely gone!!! One thing I never did was take any PPI'S, those pills are seriously harmful to your health. I was on a pretty strict diet, so if you have been taking PPI'S long term, it may take longer for the D3 to work. I have read that optimal levels of vitamin D should read anywhere between 50-80, anything for people who suffer LPR. Good luck!!! Life is good again.
Posted 1/21/2013 9:41 PM (GMT 0)
Neptunian,

Hopefully you still check out these boards. I experienced everything you did. I saw a surgeon and he basically told me 'its surgery or nothing' if you want to get better. I was on the most rigorous PPI plan (40 mg of Nexium 2x a day, 2 zantac a day, and about 8-10 tums a day) and NOTHING worked for me. I thought I was going insane.

My first GI told me he didn't recommend the surgery for me. I sought a second opinion from a well respected surgeon (has done over 1000 nissens), he looked at all my test results and said he thought I was an excellent candidate for the surgery. I went with his advice and have never felt better.
Posted 1/21/2013 10:08 PM (GMT 0)
CurbYourEnthusiasm, what were your primary symptoms? I may need surgery very soon:( On a double dose of PPIs, zantac and tums and still have burning in my throat all day long :( Did your throat burn? I have this warm sensation by the adams apple and have reflux after everything I eat. I'm looking into the Linx procedure first, but won't rule out Nissan if I really need it. Any acid reflux after your surgery?
Posted 1/22/2013 3:26 AM (GMT 0)
shrtcak,

That was my worst symptom; the throat burning. I would go to eat sometimes and I physically couldn't swallow. It was just awful and I couldn't figure out what was wrong with me for the longest time. Every minute of everyday I had a lump in my throat. It was unbearable.

Burning sensation, excess mucus/saliva, dry cough, chest pain, heartburn, and nausea were all my symptoms. I tried changing my diet for weeks, but nothing worked for me. Finally I had a battery of tests done and my doctor told me surgery was pretty much my only option given all the medication I was on.

I feel fantastic 8 months post surgery. Haven't touched a PPI/tums since I weened myself off of it.

I'm not familiar with the linx procedure, but the Nissen was a godsend and I have no regrets. Best of luck with everything and let me know if you have any questions/concerns moving forward.
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