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Venting: non GERD sufferers getting on my nerves

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Posted 11/27/2012 1:53 PM (GMT 0)

incontrol23 said...
Thanks for this post. I was just feeling sorry for myself last night as my husband and I went to the grocery store and he put a bag of potato chips in the shopping cart, knowing full well I can no longer eat those, among many other things. It's depressing and I find myself wanting to cry too! Unless you're going through it, you have no idea what it's like. Plus, the conflicting advice on the web of what to eat and what not to eat. Bananas is high on the list of "good" foods yet it gives me heartburn! Heck, water gives me heartburn! I want to run away from myself!

I hear ya! It is weird what some can eat and others can't :/ It gets depressing so quickly. Know you're not alone! ((hugs))
Posted 12/4/2012 2:35 PM (GMT 0)
I mentioned on Facebook that I was going to sell some designer clothes because they don't fit anymore. Someone commented saying that I'm pregnant. I said I'm not and why would they think that. Long story short because I complain about heartburn/stomach pain and I'm selling clothing.

So I said no it's not pregnancy, if that were the case I've been pregnant since 2007! He then proceeds to tell me "You are too young for the <3 burn Shi*, stop the worrying! :)" I say "If only it were that easy". So he responds with "U know how a computer works right? My father was a Doctor of Vet medicine and he always told me - to re-program it and all will start functioning the proper way again and I know It's true. Just do it. Talking about the brain, your central prosessor."

I know everyone has their own opinion and wants to "help" but I find the above very offensive. Like it's just THAT easy and *** is my problem?! I told him " Yeah, because mental reprogramming will fix a physical deformity in my stomach" (referring to my weak LES and hernia)

It's like every few days someone has to say something and it's so frustrating! I want to say "If you have never had heart attack feeling heartburn, you don't count for input... just every day little tums-fixing heartburn IS NOT THE SAME!!" ... argh!!

Sorry needed to vent!!
Posted 12/4/2012 3:09 PM (GMT 0)
I hear you. It is very frustrating. I will add in that I have issues with the nerves in my digestive system being aggravated by the GERD and sometimes that will help convey the message. I also clarify the difference between occasional acid reflux and GERD. I also add in the LES/structural issue, sometimes a visual helps. In any case, if they still don't get it, forget them.
Posted 12/5/2012 2:10 AM (GMT 0)
I hear you. Try going on a date when you can't eat after 4pm!! LOL ;)
Posted 1/3/2013 5:37 PM (GMT 0)
bumping this to vent again. i appreciate this thread so much!

as many of you know from my past whining, i want to start a family so bad. it's been on my mind for awhile but with the gerd coming back full force babies had to take a back seat until i get "fixed". i come to find out my friend is pregnant, i'm excited for them. then i find out my brother and his wife are having another baby, i'm still excited. then my best friend is pregnant... very happy for them and finally my other best friend is pregnant... i'm shocked but happy for her if she's happy.

long story short.. i feel like everyone is pregnant but me. i was incredibly depressed about the situation, just being selfish but it's just hard when people keep accidently getting pregnant and here i am like 'omfg i wish i could'.

on the bright side... i'm scheduled for LINX and if insurance approves it then i can start trying hopefully by summer. but all in all.. it just amazes me how badly 'silly heartburn' can change your life so much!!!
Posted 1/6/2013 7:34 AM (GMT 0)
Hi everyone,
I completely agree with all of you! I have been avoiding family and friends for the past six weeks (other than the dreaded holidays) because my symptoms become so bad that unfortunately my anxiety and depression resurfaced again (I had to start an antidepressant again). Although, I couldn't avoid tonight's outing with family that came into town. I ordered fish and rice and acted as if it wasn't hurting badly each time I swallowed! I'm in such pain right now! Boy how I wish I suffered from the occasional heartburn episode :(
-Crystal
Posted 1/6/2013 7:41 AM (GMT 0)
NoDoubtLove -
I'm too envious of all of my friends who have been able to handle pregnancy without crazy health issues! I'm 31 and actually my husband and I were thinking about trying recently and I even skipped a month and thought I was pregnant. At the time I wasn't even caring about my gerd because I wanted a baby so badly and thought I could handle it. But then I started to suffer very badly with the gerd and gastritis around Thanksgiving so that set me back into anxiety and depression and now I've decided that my health is more important to focus on right now before I try to become pregnant. I'm 31, so I still have some time. However, I also have complicated issues that I'm not so sure will get worse or better with pregnancy (fibromyalgia, IBS). So I'm worried about those things too :( I completely understand the feeling!

I too an interested in the Linx and am going to a specialist at UCLA next week to gets tests and talk about the possibility of surgery. I'm scared of the Nissen and the Linx sounds like a better option. I read your thread about talking with the surgeon about the Linx. I also have United Healthcare insurance so I'm interested to know if you're approved for this surgery option. Please let me know :)
Posted 1/6/2013 3:06 PM (GMT 0)
Make sure to keep an eye on my other thread :) I will be keeping everything updated in there. I am crossing my fingers and toes for them to approve it and hope LINX is the answer I've been looking for.

When I asked about LINX/Nissen and pregnancy it sounded like LINX is better for being prego. I guess Nissen can have some complications, like our stomach going up into where the Nissen is? Something like that. But many of people have had Nissen and no pregnancy issues.

I wanted to do the same thing, say screw my health and have babies instead. Then I was advised by 3 different doctors and 4 nurses not to have a baby first. That I could get such bad reflux and vomiting, that my esophagus would eroded over and over and that's when cancer can start. I know I read online about someone having that exact issue and she was considering abortion because she had Barrett's because of the baby.

That's another venting part. People (who are no educated in GERD) telling me "Oh your body could get better with a baby, get pregnant anyways!". Actually like I'm just nuts because I'm scare of a little heartburn. I'm thinking, why would I get pregnant and possibly get Barretts/Cancer then have a child I resent and what if I die from the cancer down the road? How is that fair?! Maybe I'm being extreme but it could happen. I rather get "fixed" and then have babies and live happily (stressed out by kids) ever after ;)

Anyways, I'm rambling! Good luck with everything. Get yourself healthy first :) Keep reading my post because I'm going to try my darnest to update everything, surgery, pregnancy, etc!! Let's just hope 1. I get LINX, 2. recover greatly 3. Get pregnant quickly 4. Have a healthy pregnancy and baby!
Posted 1/6/2013 8:40 PM (GMT 0)

ericapeace2000 said...
Hi everyone,
I am having a hard last few days with regards to a few people in my life who are non GERD sufferers. I am so sick of the blank stares when I say that I can not eat something and the constant questions. I realize that most people are not aware of the Acid Reflux diet but I have explained it to these people many times. And they still look at me blankly and say "Why?" Because I will be in pain is why. Then it is usually followed up with, " I could never do that" and then I think to myself, well, if you were in pain like me, you would. I almost feel like they get angry with me when I say I can't eat something instead of just leaving it alone. If I say I can't have it, then don't keep making it seem like I am insane. I don't want to eat this way, but I feel terrible if I don't. No matter how many times I explain it, some people just do not get it. One person asked me if my doctor told me to eat this way or did I "come up with it on my own" OMG I was fuming inside. My colleagues keep commenting on how much weight I have lost and how now I am "skinny" making me feel self-concious. I am just venting today. There are people in my life who really do understand but there are some many who dont who just get under my skin sometimes.

hey, I can totally relate to you!! Tea makes me feel worse I've noticed, and I keep getting asked if I want tea. I say, 'no thanks, I don't drink tea anymore as it makes my condition worse' and they say 'Rubbish, you don't have a condition. Tea is good for you. Why are you so awkward?' I mean *** SERIOUSLY?! what's the problem if I just don't want tea?! I know tea is good for me and I would drink it if it didn't irritate me! They've finally taken the hint now though after they kept making me tea and I just poured it straight into the sink afterwards. NOBODY I know in my life understands my condition, so you're lucky to have people that understand you. confused
Posted 1/8/2013 1:42 AM (GMT 0)
Just found this forum & thread and it expresses perfectly why I feel so frustrated. My relatives just say "Take a Tums" They don't understand how much my chest hurts and how badly it can affect me. The first time I had a severe acid reflux attack I ended up in the emergency room it was so bad -- I thought I was having a heart attack. I was diagnosed about 6 months ago and still get those horrible, debilitating attacks 1-2 times a week. It's not something I can just pop an antacid and feel 100% better.

The only one who understands me is my wife who has seen me shivering and in tears because of the pain of a strong attack.
Posted 1/8/2013 3:09 PM (GMT 0)

ADist said...
Just found this forum & thread and it expresses perfectly why I feel so frustrated. My relatives just say "Take a Tums" They don't understand how much my chest hurts and how badly it can affect me. The first time I had a severe acid reflux attack I ended up in the emergency room it was so bad -- I thought I was having a heart attack. I was diagnosed about 6 months ago and still get those horrible, debilitating attacks 1-2 times a week. It's not something I can just pop an antacid and feel 100% better.

The only one who understands me is my wife who has seen me shivering and in tears because of the pain of a strong attack.

I'm glad you wife is being understanding. For awhile there my husband wasn't that great about the situation. Over the past few months he has started to understand a lot better. Mainly because of the same sort of situation you are saying!

I don't think it helps that we have Larry The Cable Guy on TV saying "go ahead and eat that chili dog just take this medicine and everything will be perfect!". It also doesn't help that the average normal heartburn people get is NOTHING compared to what we get. I know the heart attack feeling you are talking about. The only way I can get it through someone's head is to say how it feels like a heart attack and how stabbing myself will a knife seems like a perfectly logical solution at the time. They start to realize that maybe it is a bit more severe than just taking a Tums!

But I agree... if one more person tells me to just take a Tums, I'm going to loose my mind!
Posted 1/8/2013 9:06 PM (GMT 0)
I'm sure I've said to everyone who knows me well, and to quite a few who don't, that I can't really drink alcohol any more. Sometimes I have one sip out of my husband's glass of red wine but that's my limit. White wine and anything fizzy - no way. So why........ why....... did 6 people give me a bottle for Christmas???

MMM
Posted 1/8/2013 9:09 PM (GMT 0)
for the same reason my friend offered me her spicy sushi with tons of wasabi on it and got upset when I wouldn't drink sake with her!! THEY DON'T THINK!!
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