Susupected silent reflux

Oh hi, I am new LPR patient as well, hmmm.. I can honestly say with this disease, it's long battle, you have to be patient and know that there are many options to approach such illness, as far as success stories; I wish I could contribute on this, but I can not but all I can say is have hope and it will get better. You have come to right place, since I joined healingwell, I have learned so MUCH INFORMATION then any doctor has to offer, all I can advice you on is read up as much as you can about LPR through these forums, and take some of the information such as the reasons that cause this (malfunction valve, anxiety, nerves, SIBO, etc.). Really just take all these reasons and see what's is your underlying cause and once you establish that, then you can figure out the right treatment such as (high akaline diet, koufman diet, fast track diet, low acid low fat diet, alkaline water, gaviscon advance, carafrate, (ppi might be your enemy in my case it was it made my symptoms from bad to worse, so be careful on how long you are on these pills but I can not advice you not to take it for some people it works for some people it doesn't), take all the right tests in order to root out your cause, so far I had endoscopy, barrium, and waiting for my 24prob, and then I will talk to my doctor on what we can do in order to manage or cure this and if things get worse, surgery is also there such as NISSEN, TIFO, LINX (I am really interested in this surgery in the future once I get better insurance), also avoid all the bad foods until you feel better or avoid them over all, and elevate that BED!!!! it helps with us LPR'ers. I got wedge pillow helps me support my head and chest, don't use extra pillows make things worse either raise the head posts of your bed by adding 2-3 bricks, buy elevating bed posts, add wood blocks or books until it's 6-8 inches up, or buy foam bed wedge pillow like I did giving me 6-8 inches of support. But these are some of the extensive things I have learned from this forum and online, so really do your research and I wish you good health and transition, always hear for you if you wana talk, I know it's sucky disease! but we can do it!

P.S. maybe you can also ask people for some of their opinions on what they do to help with their lifestyles such as diet, suppliments, herbs, honey, aloe vera, some of the things I have come across, until you find what works for you.

WISH you the best!

Post Edited (inpinkagony) : 4/29/2013 11:20:30 PM (GMT-6)

Yeah dude, you can not let them make you think oh its reflux do all the right things and you should be okay, there is more to story for your condition everyone is different, I read people have LPR because of nerves, some because of slow emptying of the stomach, some because damaged vocal chords, there is just so much that is causing it, i am having all these tests done so I can figure out the best treatment for me and once I graduate college with good job and insurance I am opting for surgery! I can not live in pain from some the stories I read about this condition, but I just think you have to fight for answers and you are welcome any questions about anything are welcomed! Trust me this disease had me searching the internet for days, and now I am well informed on finding what's causing mine but I can come up to my doctor with such theories until I do my 24prob!

Hahaha mine is redness in back my mouth, white coated tongue(pepsin/bile from acid coming up) in morning, diminished smells, like one nostril will be open and next won't be, globules sensation is the worse for me it's not necessarily a lump but tightness over all, I think I am night time refluxer, when you are supine refluxer which means night time it's bad because you have no control over it haha, I just did extensive research and I am bring up all the points to my doc after my tests, but I feel you on the nerve thing, I had anger problems too I wasn't like psycho or anything but I tend to be a very stressed person in general and back in the day hormones, and being teenger haha you can see how I did that damage to myself, but yeah I had an endoscopy done it showed mild irritation and yes it shows everything in the esophagus did you get your larynx checked out? I got mine done in office with the fiber optic 15 min one, he saw some redness, so I want to heal that soon but the thing that sucks about throat issues it takes like 6 months for it to heal, so I might not opt for ppi but maybe zanatac twice a day and very strict diet for 6 months and see how it goes, I just hate the acid reducing drugs because they lead to more problems and sometimes they don't even help LPR yeah you are reducing the acid but you are not stopping the pepesin and bile coming up some things you want to read up on is koufman diet or her book dropping the acid very insightful for LPR'ers it just sucks that this happened to me at my 20's makes me afraid of how long I got LOL

Hahaha, yeah it's frustrating disease in general, you should seen me when I first found out I had it, but I was like gosh, I can not let this consume my life, I just was sad because I had to give up my favorite foods and explaining to people how I can't go out with them especially us being in our 20's lol kids our age and college in kids in general want to socialize haha, but I think there is more to life then food you know? I just have to convince others that, that is the hardest part in my life now.

I really think you could have anxiety/ I will pray for you it's not LPR but we won't know until you get those tests done, and if you have to like take those anti-depressant/anxiety pills def take smallest dose and I would cut those in half, I am with you dude on the natural medicine that's why I refused to go back on PPI, I just need to find out what's the cause of my LPR and stuff in order to move on, are you following a diet right now?

OH gosh I wish I lived near her, none the doctors in VA or my area are really experts on this whole thing haha, sometimes I have more info on things then doctors they are quick to like write me a perception paper haha.

But surgery is my last resort I haven't began treatment yet so who knows what future holds? one thing is this disease taught me life is too short, I am so much more centered now then I ever claimed myself to be before. If your sensation is there while you eat it's nerves, if it goes away when you eat like mine it disappears it's LPR she said something like that in her book. who knows I am not professional but throwing some ideas haah so you can have more insight on it LOL

I feel like we are going to be fight buddies, keep me posted!

Another question man! Are you an athlete, you play ball?

Not really healthy when you get angry all the time lol,

And One question, if there is pepsin in my salavia, how is this treated?

@justpassinthrough hey man, can you please add my email and maybe, my email is [email protected]

Please dude, that pepsin thing could be the problem ! Look ing forward to chatting with ya ! cheers mate

theres gotta be a way to heal without sugery ! i hope my LES is ok , the endoscopy shows that right?

yeah the nissen is a final decision, not reccomended in my opinion !!

You'll be alright, just take that pepsin test and try akaline water it seems to work for Justpassingthrough, ill prolly try that without any test lol I havent even went through no tests yet

Lol Yes, That globus thing doesnt go away, it calms down during the day, and I woke up today with excessive urge to swallow, and everytime id swallow id feel that globus thing, I want to beat it up its a evil !