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Trying to get off PPI again

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Posted 11/19/2013 8:38 PM (GMT 0)
Hi

Im about to try to get off my ppi for the 2nd time, I tried at the start of the year and got 2 months in but because of my upcoming schedule I threw in the towel and got back on

If I start now I have 4 months before a big trip I am taking and I hope to have atleast a lot of the symptoms under control by then that I can eat somewhat normal

Right now im on 40mg 20mg during the day and 20mg at night, I know how to do the weaning process and it helps that I have 10mg pills as well

My main problem when it comes to this process is eating enough I have bad gastritis on top of this and each time I have tried to get off the prilosec my gastritis gets a little worse because of my drastic change in eating and eating too little.

Im going to be vegetable and fruit juicing along with this,I have dgl, slippery elm, probiotic, fennel, I currently take carafate suspension as well

I would like not to take an h2 blocker in its place, and tums seems to cause me some bathroom distress when I take it

So besides other natural alternatives to ease the process im really looking for help with my diet, I would eat plain turkey on whole wheat every day for lunch but I get so nauseous by it eventually because I cant put any sort of dressing on it

My main symptoms on the medicine is chest pain with reflux going up to my throat, I have a small to medium sized hiatal hernia

My dr is on board for me doing this he was the first time as well but its up to me to accomplish it and I feel I can if I can eat enough this time around

I need lunch ideas, dinner and snacks, otherwise if I don’t have enough to eat I feel like im just setting my self up to fail again

Any other advice would be greatly appreciated
Posted 11/20/2013 1:15 PM (GMT 0)
I am currently a little more than 2 months off of PPI's and I found the one thing that helped me a lot was cutting all grains and processed foods from my diet. I eat a lot of vegetables, some fruits, and meat and drink just water. I juice twice a day, morning and afternoon, and eat a lunch and dinner. For supplements I am taking DGL, probiotics, and trying to find things to help my LES function better. I am currently trying melatonin due to studies being done found it helps with that. I am also going to be trying L-Glutamine as this is supposed to help with restoring muscle function and there have been success with the LES functioning better while on it. Keep in mind that it may take 2-8 weeks to see results with some supplements. So far I've been on the melatonin for about 2-3 weeks and I'm not sure if it is helping. I'm hoping for better results with the L-Glutamine. I was to the point that I was only getting slight heartburn in the evening between dinner and bedtime but this last weekend I slipped and had some grain based items and it felt like it took me back 5 weeks in my progress. It's taken me about 3 days to recover from that. If you are able to, I would suggest eating raw fruits and vegetables for snacks and for meals try just a meat and vegetables.
Posted 11/20/2013 2:53 PM (GMT 0)
Great advice Javery. These are all things I did/tried when i went off of my PPIs.
Posted 11/21/2013 10:13 PM (GMT 0)
Im on board with everyone else here. Try D-limonene to help with LES. I have just started on most of all the supplements as yall. So we should keep touching bases to see how its working out for each other and if we can continue offering help. Pls keep posting updates as you go everyone thanks.
Posted 11/22/2013 1:26 PM (GMT 0)
I tried the D-limonene right after getting off the PPI's but it didn't seem to work much. It's kind of hard to tell though because I was having heartburn 24/7 at the time from rebound so it possibly was doing it's job but I couldn't tell. I think I might take another round of it again next month now that my rebound has subsided quite a bit. There are a lot of testimonials that clain that by taking D-limonene, it has stopped heartburn for 6+ months. Although I have to say, the stuff I took said to take 1 every other day for 2 weeks. Now looking on Amazon, I see that there are others that say to take 1 with or after a meal and they both have the same amount per capsule. It wouldn't hurt to try that as it is just orange peel extract which shouldn't have any side effects except for possible good ones.
Posted 11/22/2013 2:02 PM (GMT 0)
I have been going through the weening off PPI process for a few months now. My advice is to stick with a very slow weening off process to avoid rebound. I went from 40 mg Nexium to 20mg of Zegrid OTC, then down to 10 mg of prilosec OTC. I also take some gaviscon at night and I am on a very strict diet that is gluten free, lactose free minus cheese which is very low in lactose, low acid, low fat and low fiber.  I also take Magnesium, B12, Calcium, Vitamin D3 and papaya enzymes. So far I have not had any rebound. I will be going on to pepcid complete from here and then I will see how I feel. If I can get off medication I will  but I have accepted that I may not be able to. I would rather be on an H2 Blocker than a PPI that I have been on for years.
Posted 11/22/2013 2:11 PM (GMT 0)
Ericapeace, I am very interested in your diet. Can you give some examples of meals and foods you eat?
Posted 11/22/2013 5:57 PM (GMT 0)
Sure. I have found gluten free bread crumbs and I will coat chicken tenderloins with olive oil, roll the chicken in breadcrumbs and bake it. I also cut up russett potatoes mix olive oil add salt and bake them for my healthy version of french fries. You can use ground lean beef or turkey and mix it with jasmine rice, corn, edamame or any other vegetable that is low in acid and that you can digest. I will add either gluten free soy sauce or vegan butter. I also take gluten free tostitios, add lean ground beef or ground turkey, add a little bit of cheddar cheese reduced fat (very low in lactose) and bake for nachos. I am able to tolerate gluten free potato ghnocci with some vegan butter and parmasean cheese, it is low in fat, acid and lactose. I also try and grill chicken, lean beef and turkey which adds flavor. I only season with salt.

Desserts: Vanilla Soy Ice Cream (lower in fat and no lactose), gluten free sugar cookies or cupcakes which can be made from scratch or bought from a bakery (you will have to search for it) I also can tolerate water ice (or if you are not from the east coast, Italian Ice) as long as it is low acid flavors, for example, lemon and organge is not a good option. I typically stick with vanilla. Gluten free Vanilla Chex are really good and if you are craving candy, I have found that starbursts and dumb dumbs lollipops are gluten free and seem to be ok, as long as you avoid the lemon and organge flavors.

Just some examples off the top of my head.
Posted 11/22/2013 7:01 PM (GMT 0)
Thank you Erica that is very helpful
Posted 3/3/2014 8:43 PM (GMT 0)
Hi Javery,

I haven't been on in a while...I was wondering how you were coming along with being off your PPI? My acid reflux is doing really good but what I'm having problems with now is muscle problems throughout my body. And what's really weird is that the pain moves all around on my body...one day it might be my back...the next my neck, etc. One day I woke up and was limping...couldn't put weight on my left hip..the next day it was like nothing had happened. Also, another weird phenomenon is while I'm trying to swallow my food it feels like the food wants to stall due to the muscles in my throat not working correctly...so I have had some swallowing anxiety to say the least...and what makes it worse is I live out in the country and am within driving distance for neighbors and I'm afraid to eat certain foods ...afraid that the food will get caught and I will choke. Anyway, let me know how your coming along...thanks...Barbara804
Posted 3/3/2014 9:14 PM (GMT 0)
Barbara,

I've been reading some posts here and there but haven't been updating as things haven't been going much of anywhere for me lately. It's gotten down to a slower process but I would say still slowly improving, but much slower than before. I went down to 1 pepcid complete chewable tablet a day and then back up to 2 a day. Tried to go back down to 1 again but went back up to 2. I am now at half of 1 twice a day, once before lunch and once before bed and that seems to be working. I am also taking 1 L-Glutamine tablet each day. I use Alkazone to create alkaline water that I drink and that's the only thing I drink besides my juices in the mornings.

Aside from the supplements, my daily routines haven't changed but I have changed my diet some as I wasn't getting enough for energy. I still make a fresh juice every morning that consists of fresh fruits and vegetables. I eat mostly fruits and vegetables, fresh meats, and have started eating more jasmine rice and potatoes. I eat chocolate and icecream on occasion and those don't seem to bother me. If I eat any sort of bread or grain based item (other than the jasmine rice) it tends to give me heartburn. I haven't taken a single tums for the past couple weeks or so.

My plan now is to just keep tapering down slowly and I'm hoping to be medication free by September or so. That would make it 1 year after I stopped taking PPI's.

I'm wondering for your muscle aches, if supplementing with the L-Glutamine might help as it is a non-essential amino acid that is supposed to help with muscle tissue restoration. Since I have taken it, I have noticed that I don't get near as sore, or sore at all, the day after doing labor intensive activities. For instance, I don't do any exercising activities on a regular basis and the other week I went snowshoeing for half the day and did have any soreness in my legs the next day. Last year doing the same thing, my legs were sore for a week when I wasn't taking any supplements.
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