How much reflux did you have?

Seriously ... No answers?

This is a reflux forum which I contribute to a lot - and take the time to answer a lot of other people and their questions, yet not one of you can be bothered.

Thanks

Bye

Pink

Hi Pink,

I just popped back on here a couple days ago. I left b/c no one responds much. I've asked questions or concerns and they go unanswered. It used to be much busier. Sorry you have not received any responses either. It's frustrating. As for me, I had severe reflux. Suffered everyday and night. Was doubled up on meds and they were still losing their effect. My whole life was revolved around reflux. I was at the point were I regurgitated most of what I ate. I woke up vomiting on acid, even out of my nose. I was miserable. I lived with Tums in every drawer, vehicle, purse, etc.

Debra

Hi Pink
I am sorry you are having trouble getting answers. I did not have the surgery, but at one point was thinking about it, because my acid reflux was off the charts. I dont know how to tell you how bad it was, but lets just say I could not even eat a slice of a banana without acid coming up.

Before you consider having surgery, I would recommend you get tested to see if you have any food intolerances that could be contributing to the acid reflux problem such as dairy, soy, corn, gluten, etc.. Your allergist can do a test for several foods.

Another thing, I would rule out before having surgery is delayed gastric empting. Once of the symptoms of delayed gastric emptying is acid reflux. There is a delayed gastric empyting test that can be done at your local hospital.

II had delayed gastric emptying which was a side effect of some medication I was taking. My acid reflux has now been greatly reduced and I do not believe I will need surgery now. It just took me a year to find this out. Hopefully you will get your answer much sooner

Hope this helps Pink Good luck to you!

Pink

prior to my op I regurgitated all the time. I had from a very young child and stupidly thought it was normal! Same as you, sitting, standing and lying. There wasn't a day that went by where undigesed food or stomach acid would come up into my mouth. I constantly had horrible taste in my moth despite being meticulous with oral hygiene. Any form of exercise became a nightmare. Unfortunately the op for me hasn't been a success as I think I have mentioned before. I don't regurgitate the volume I used to but what I do is really damaging my oesophagus and airways. I've had another manometry and ph study where my deemester was 0.5!!! But my acid reading when the probe went in was 6. I was told by the physiologist my problems is almost certainly gaseous and weak acid reflux which is just as damaging. It's so so frustrating trying to get this complex disease sorted and I'm sure you are the same in that you just want your life back.

Where are you at in your process now? Do you have any further tests/consultations scheduled?

Pink

Just wondering if you are any closer to getting a decision from the consultants as to the next course of action for you? Have they decided if they will operate on you?

😞 so sorry to hear that Pink. I do understand the depression part, it's wearing being in so much pain and discomfort doing something that should come naturally. I think it's hard also when people just don't understand how low it can make you feel. I've had people say "well it's not life threatening and only reflux so what's your problem" I challenge anyone to deal with this disease.

I'm sure if you trust the surgeon/consultant to make the best decision for you that's half the battle. If he isn't keen to operate at all then surely he must have another option, nobody can expect you to carry on the way you are. I really hope next week comes quickly for you and get some positive answers. Please keep up posted pink. X

Finally some good news, got a letter from my surgeon today, he has agreed to operate on me, we are having a meeting now on Friday to discuss it!

I can't wait for the end of acid reflux!

Pink

That's great news!!! So, so pleased for you! A giant step forward towards you feeling loads better!

pink, great news! Keep us posted.

I had some pretty bad episodes prior to surgery. My throat burned so bad, not much could help it.

1st scope: Medium hiatal hernia, stage 4 esophigitis, GERD
2nd is blurry
3rd scope: Esophigitis cleared up, but revealed Barrett's.

Sorry for not responding sooner. Few respond to me, too.

Pink, I had some heartburn the other night from overeating as well as a sore throat, so that has me worried.

Pink,

It lasted from Monday night until sometime yesterday. Today, I just had general discomfort around my heart, my left hand tingled, and I just didn't feel right. I ate a slice of pizza, half a roast beef croissant, some Doritos, a Hawaiian Punch, and some gummy bears. There's a chance I might be stupid. lol. I took some pepto to combat it.

Usually overeating messes with my stomach and not so much the higher up.

I try to eat slower, but old habits die hard. My emptying is good, stool is good and I've had some other tests, too. The doctor does want to perform a colonoscopy. Seldom are my stools shaped the same. CT scan did reveal gallstones. I see a surgeon about that on the 30th.

My swallowing has gotten better and I've gained about ten pounds back. I went from 225 to 168. At a time after the surgery, I crept back up to 200, had some complications, and lost again.

I'm still afraid to lift much. :(

How are you?