spiritspinner said...
Hi Peabs,
Thank you so much for taking the time to write out your experiences an tips for me. I appreciate it.
Luckily I don't drink coffee or alcohol. I've cut out dairy, meat and and almost got all of gluten out. My biggest challenge is and will be chocolate. It's tough because I've always been a small girl and the pounds keep coming off. I really need calorie intake.
Some what you have suggested is a little daunting like -- chewing down to nothing before swallowing, but I agree, once it's habit, it'll get easier and the results worth it.
Are you on medication at all? I was on Zantac up until a couple weeks ago and was put on Pantaloc -- that has been a miserable thing for me and almost amplifies everything and makes the acid reflux worse.
I've had chest pain since yesterday and it feels like I am burning on the inside. This is definitely a new sensation that I am trying not to panic about.
How long have your spasms last. Although mine haven't happened often, I've certainly felt the sensation for about 4 or 5 days before -- but what's going on right now is probably on the more intense side.
Anyway, thanks again for your input. Be well!
Hi Spiritspinner,
I am currently not on any medication because I am waiting to see a new GI doctor. I want to get her input before I start a new regimen of medication(s). My current strict diet appears to be alleviating my symptoms, granted it's doing it at a very slow pace, but my symptoms are slowly diminishing.
about 2 weeks ago I took 150 mg of Zantac twice a day for two days and it seemed to help, but then my muscles started tightening and I felt extremely fatigued. Zantac had never done that to me before. So I stopped taking it. OMGoodness......!! The rebound acid reflux was so bad that I ended up in the emergency room. I should have known better. I should have tapered it down to 75 mg and then to once a day over the course of a few days instead of going cold turkey.
I'm not making that mistake again.
I am only eating low acidic foods as outlined in Dr. Koufman's Low Acid Diet book that I bought a few days ago. The book recommends staying on a very strict diet for 2 to 4 weeks if one's symptoms are "severe". I fit that bill so I plan on eating this way for at least 30 days. Knowing how obsessed I am at getting well this time around I'll probably eat this way for a long time.
One thing that has really helped calm my stomach lately has been plain sushi in small amounts for dinner. I notice that when I eat two pieces of salmon sushi and two pieces of tuna sushi (no ginger and no wasabi, traditional style and plain) with a bowl of miso soup with no onions, it really calms down my stomach and my esophagus (Yes, I chew the sushi until it's almost liquid before I swallow).
If I wasn't so concerned about exposing myself to high mercury levels, I would eat this every night. But I think I've found a workaround. I'm going to my local Wholefoods supermarket and am going to buy some wild caught salmon (wild fish have lower levels of mercury compared to farm-raised) and I'm going to grill it and see if it has the same results.
My esophageal spasms last anywhere from a few seconds to several hours. The really bad ones tend to last only a few seconds but they are really strong and irritate my vagus nerve which causes my heart to go into SVT (rapid heartbeat).
I dread those the most because when my heart rate gets to 160 beats per minute or more, it's very uncomfortable and my anxiety level goes up.
I've never heard of Pantaloc. Is it a proton pump inhibitor? How long have you been taking it?
I certainly hope you feel better soon.
Lastly, make sure your bed is elevated. I see a lot of bad advice all over the internet that advises people to use pillows to prop their body or head up. The pillow thing does not work because it actually puts more pressure on your stomach and your esophagus. The bed has to be completely elevated. I elevate mine 5 to 9 inches depending on how I'm feeling.
At first I used wooden blocks to elevate my bed, but then I went to store and bought actual bed lifters that you can adjust put underneath the legs of your bed. I have found bed elevation to be very helpful because it helps keep the acid / digestive juices in my stomach where it belongs.