Posted 7/20/2017 7:14 PM (GMT 0)
In between episodes I still have what I call "micro" episodes where I feel fatigued and/or weak but drinking some V8 or coffee provides almost immediate relief without having to lay down. This is just about on a daily basis. It is not disabling and since it is easy to deal with I don't worry about those as much.
Prior to my PM and self-management of diet these micro episodes also did occur but the big episodes were happening at a frequency of more than once/week and they were very hard on me both physically (pretty much worn out until the next day) as well as mentally and I didn't even realize I was also having micro episodes. It also worried my wife who was afraid to leave me alone in case I had a bad episode. Since I was also still recovering from the surgery I felt about as fine as one would expect in between.
I too try to eat - even if not hungry - every 2 hrs or so and also make sure that I have plenty of fluids but try to minimize fluids 15-30 minutes before and after eating to allow my digestive system to work on the food a bit. Part of my vagus nerve damage has affected my motility so I need to manage consumption and timing as well. In addition, with all of these issues is that if I don't consume the right foods I will get constipated which will cause me strain possibly impacting the wrap.
Complicating things is that due to radiation treatment for my prostate is that I also developed urinary retention.
I'm going to eventually do a complete write-up but one thing that I would strongly recommend is to keep a detailed journal of date, time, what you eat/drink, bowel movements and episodes. For the episodes be sure to identify the duration and symptoms as well as what you were doing at the time. For example, severe episodes for me would include heavy sweating and blurred vision. My detailed journal helped my Cardiologist and reduced the number of tests I needed to undergo prior to the PM and it also helped me to visualize what was going on with regard to cause and effect and the timing.
It also may not hurt to regularly - perhaps every couple of hours - check your pulse and record the date/time, rate and what you were doing. If it is cardio or BP related this information will help your Dr's. You can take the pulse manually or with an inexpensive pulse oximeter (finger tip device).