Globus syndrome?

Hello forum! I really need to know some things about this. My throat lump thing is the one thing that is making me upset, and the main reason is, that it NEVER GOES AWAY!

Do any of you have this 24/7? I mean, sure it has varying intensity, and when its not terrible it just feels like there is food or something stuck, mid range it feels like a tablet in there, stuck, and at worst, it is like someone is strangling me, stopping me breathing. It is very hard to deal with. If it is at its worst at night, I feel like my throat is going up into my nose and a snort/snore happens.

So I have had to concede to the medical professionals, after all the testing, ok, ok, its NOT a lump, I am not gonna die from it...but surely that isn't enough? I want it to stop!

I am in for the gastroscopy tomorrow, and my main massive fear that makes my stomach bottom out and my legs go weak is the docs NOT finding anything and me being left to get on with this lump/globus/spasm/whatever it is for the rest of my life. I am terrified of that. I have heard of people having globus coming and going, but not having it continually like this. I would be very interested to hear from others about this. To date, I have had this constantly from about July of 09. I just have no idea what to do.

Things that help:

Eating
Chewing gum
Gastrocote/Gaviscon < Mainly because it coats the throat, not related to the acid bashing thing, I don't think.


Things that make it worse:

Alcohol
Talking lots
Not talking at all
Water, specially cold water.

Please can anyone advise me? I am so miserable!

Liz x

Post Edited By Moderator (stkitt) : 3/18/2014 12:09:40 PM (GMT-6)

Hi Joy, no, Dr says that the GI scope tomorrow is to sort of see how the land lies as a precursor to the motility test at a later date. He says they "need to know where to go".

I have never heard of nutcracker syndrome. Is there anything you can tell me about it?

That's really interesting Joy, as I have all those symptoms. I will be having the motility done soon so I hope if there is any possibility of such a thing, it will be detected.

i have the same thing..one doc said anxiety but all the tests say gerd to essentially having no les. get the tests and let us know. lots of help here.

Hi Liz,
I literally just got diagnosed as having Globus Syndrome today.
Its an unbelievably uncomfortable and quite an alienating feeling!
I believe there is no cure for this at all aat present, my throat specialist
Today advised me to take a spoonful of Gaviscon at night time 15 minutes
Before I go to bed!
I have the sensation 24/7 also, not. Just when I swallow, but in between swallows it Is also there too. A combination of feelings from a pill being stuck in my throat, to the feeling that I have a hair stuck in my throat, and often the sensation that there is a blister on the back of my tongue.

I'm looking into herbal and alternative remedies.
There is no approximation on how long this syndrome lasts,
I guess each person is different. I do find that if I can keep myself busy
I tend to forget about it briefly.
I thinks its very much a stress related illness!

Paul.

TC, I had/have the same problem.

After an acid reflux attack last year, I had throat problems ever since. The AR was taken care of with ppis, but I still had globus throat and hoarse voice etc.

ENT originally diagnose AR, but later went to GI who did endoscopy. I was expecting hiatal hernia etc, but he said everything looked ok except one thing that may be causing throat problems and that is something called "inlet patch".

Biopsy of patch sent for analysis, and no abnormalities just cells consistant with inlet patch, meaning they are the same as whats in the stomach and can give off acid etc.

HI! I had a more severe case of "nutcracker" esophagus.  It took over a year to finally get any relief.  We started with the ususal GERD drugs, which did nothing; moved on to the calcium channel blockers and the nitrates which worked for a little while and then not at all.  Tried sildenafil (viagra), diltiazem, hyscyamine and other anti-spasmodics, after a 50lb weight loss and the inablility to eat or drink anything without severe chest pain and nausea I had surgery.  The procedure is called POEM and is usually performed for achalasia (lack of esophageal peristalsis) however, it worked for me and I am so relieved.  BTW, POEM is per oral endoscopic myotomy and was performed at Johns Hopkins in Baltimore MD.

I have been recently diagnosed with nutcracker esophagus through manometry after 2 years of GERD meds (gerd is NOT a contributor or cause of my NE although it is in some cases), nitro, calcium channel blockers, and the like...all with no relief. I am beside myself with constant intense chest pain, globus, and the feeling of being strangled with deep pressure and pain in my throat and neck.
i am scheduled to have the POEM procedure within the next month. With little up to date info on the internet on treating Nutcracker with this surgery (usually only done for alchasia) I am disheartened and scared by what info I have found...being...that this surgery can actually make my pain WORSE. The though of that makes me want to go over the deep end. I am hoping the person who replied on this thread in Sept will see this and comment on their results. My surgeon has not done much to foster any confidence in what I am going to have done..it seems his only concern is to tell me that most of the time it is rather worthless for nutcracker. No one else in my area performs this POEM surgery.
Thanks to any who can comment.

I also have all the globus symptoms...which are caused by my Nutcracker esophagus.....it is the esophageal spasms that migrate into the throat area that instigates that "always something stuck' feeling. I am having my surgery in 3 weeks and am told that this will alleviate this and all my other symptoms.

MyForts:

I suggest you start your own post, you may get more responses. You can also use the search option, but unfortunately the Boards are very slow these days.

Sharon