@ kitt, hi, I have had an endoscopy which showed inflammation, I have seen about
6 different doctors, ended up in A&E(ER) because the pain was so bad and was not getting anywhere with doctors, I have had full blood count, liver, kidney blood tests, ultra sound on pancreas, liver, kidney, urine tests, diabetic tests, celiac tests, thyroid tests probably a couple more that i cant remember all coming back negative, the summer of 2011 was the summer of hell, I basically was bed ridden with the pain for about
2 months in which time i was not eating or sleeping and was a complete wreck now when i look back it was like i was a different person, the reason my symptoms flared up so bad and i lost a lot of weight was because of stressing out about
the unknown and i was self diagnosing online, if you could feel the pain i had at the time it was awful and i convinced myself i was die'ing, i also had alot of other things going on in my life just dealing with a family bereavement and coming off diazapam so as you can imagine this mad my acid reflux 10x worse.
I am on lanzoparazole 30ml per day and 150ml zantac occasionally if i feel i need it also peptac acid liquid, i have gained some weight back i am at 12st 194 lbs, i did manage to get up to 13st over xmas but then damaged my back training to hard so lost it again and right now i cant exercise so i am finding it very very difficult to put on any weight, when i am not having a flare up i eat what i want to an extent when i am in pain i dont eat, i have found that a great way to keep the weight on during a flare up is to eat rusks (baby food) and eat white bread these 2 things i can eat as much as i want within reason.
What i have noticed with this illness is that it has effected every part of my life without me even knowing for such a long time, such as tiredness, nausea, headaches, back aches, joint pain, dizziness even anxiety and panic attacks and all this time i thought it was through taking diazapam this is why i put off see'in a doctor for so long thinking they would say its just all in my head, when i look back i have probably had this illness at least 10 years and just did not recognize the signs, but since i have been diagnosed my outlook on life has changed i no longer stress about
silly little things sure i will have bad days but on a good day i am living each day as if it were my last and also my insomnia has been cured since understanding this illness, the only time i dont sleep now is when i am having a massive flare up which is rare these days since i dont drink alcohol anymore (only on holiday or special occasions got to have a little fun) so dont think your alone if you are young and suffering from this awful illness, your not and its good to talk and things could always be worse
Post Edited (paul29) : 4/19/2012 5:37:41 PM (GMT-6)