HealingWell
Search Close Search
☰

Any one still have nausea and retching months or years after Nissen surgery??

Support Forums
>
GERD & Acid Reflux
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/23/2012 12:47 AM (GMT 0)

My 22 year old daughter had her 1st wrap when she was 16, then 2 repairs.  The next her 3rd repair was just in Sept of 2011 for adhesions.

She has been nauseated all last year and some retching now she has nausea most of the time and retching almost daily usually in the morning. She just had retching so bad it lasted 2 days until she dehydrated and passed out, she is now in the hospital they have done test but can't find out why.  She is on ativan, zophran and other anti-nausea meds but they are not working.  The retching is now off and on but still still has nausea 24/7 on meds.  At home we can only give her the meds at night since they make her sleepy( phenergan and marosol).  The other drugs she gets a bad neurological condition from so we can't give them to her out of the hospital, but they are not even working here anymore.  She was on reglan for years and it helped until last year when that, zohran and compazine started giving her tetani.   

Has anyone else had these problems after Nissen surgery??

Mom in need of help

Posted 2/23/2012 2:23 AM (GMT 0)
I had a few bouts of nausea, GI doc said take Nexium, and it worked. I had tried antinausea meds that didn't work for it.
Posted 2/23/2012 3:29 AM (GMT 0)
Hi Mom in Need,

I'm so sorry to hear of your daughter's retching problems.  I had my Nissen 3 years ago, and haven't had those types of problems.

I have communicated with a mom with an 18mo old child who was very premature.  This baby was tube fed for a long time was actually not interested in eating.  He had a Nissen when he was an infant, as his LES was underdeveloped.  He experienced lots of retching issues.

While I don't know if I have all these details exactly right, she has taken him to the Children's Hospital of Philadelphia and they have been treating him in some unique ways. 

I think she said that some of the problem was due to a hypersensitive vagus nerve, and some other issues--I believe they were related to absorption.   She has some very good docs working on her child's case.

Have you been able to visit a big medical center with a highly rated GI department?  Since she's been dealing with this since she was a teenager, I wonder if you could seek help from a pediactric center...probably not, but just a thought.

The baby I mentioned has improved with treatment, and he is doing better.  I wish I could provide more helpful information, but you post made me think of this case.

I wish you all the best in finding answers.  I know it must be terrible watching your daughter suffer like that.  Hopefully someone will be by soon who can offer more help.

Good luck!

Denise 

 

Posted 2/23/2012 2:56 PM (GMT 0)
I've had 3 nissens also, waiting on my 4th. My main and worst symptom is nausea. It doesn't matter if I eat, don't eat, take meds, don't take meds, it's there 24/7. Mine is usually bad at night, severe to where I'm sitting in the bathroom waiting for something to happen. I haven't found anything that helps yet. I haven't actually vomited from it, not sure if I can, but have come so close. It's an awful feeling to live with and makes life terribly difficult. Is she still on a PPI? After my last nissen it was awful, the nurses gave me the max dose of anti nausea meds and it still wasn't helping. I finally got the patch behind my ear and that lowered the intensity. I'm not sure what it's called but has she tried that yet?
Posted 3/8/2012 7:54 AM (GMT 0)
I  have had 2 reflux surgeries... none of them really worked, they have just caused more probles. Now I am told I need a 3rd, possible abcess and other problems with the wrap slipped and basically apart. I have also had 3 severe abdominal surgeries in the past 3 years and lost my gallbladder. It all started with this......wish I would have stayed with prilosec and sny pain med that a good pain management doc would prescribe and stayed out of the ER...

 

Posted 3/25/2012 10:24 PM (GMT 0)
Dear Mom in Need of Help,

I just read your post and I can completely sympathize with you.  My 11 year old daughter just had her first Nissen last week and has had constant nausea ever since.  She threw up non-stop for 3 weeks prior to the surgery and we felt it was our only option to end the vomiting.  The first few days after surgery, we hoped it was the after effects of the anesthesia and morphine for the pain.  However, it has not abated since.  Several times a day, her mouth waters like she's going to vomit and her stomach starts retching.  It doesn't seem to matter if she has food in her stomach or not.  Initially, the thought was maybe the nausea was related to motion so they gave her a scopolamine patch.  It did seem to help the nausea a little; but now when these intense waves of nausea hit her, nothing helps.  Zofran does nothing to help her and Phenergan knocks her out so she can't really take it during the day and still function.  I am hoping to get her into the GI Specialist tomorrow, but I am worried we are running out of options.  I will certainly post anything new that I find out.  I know how worrisome this is for you and your daughter and will pray that we both get some resolution soon for our children.

✚ New Topic ✚ Reply