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The Road to Success is Always Under Construction Part 2 of 2 - Summer of 2012

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GERD & Acid Reflux
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Posted 1/7/2013 6:38 PM (GMT 0)
Kitt-
So good to hear from you. You are definitely a whiner nono. Your body is going through, well you know, and you have every right to vent about how it makes you feel.

I got the CT results, the growths are mostly gone and the ones left are smaller. So that means the high fungal white cells are doing their job. The hematologist believes the other white cell is from the steroids from the nerve blocks. The neuro case manager is talking with the hematology case manager to see if they are giving me the all clear to go ahead with the SCS implant.
I go Wednesday back to the VA to see my pain doc and hopefully will hear some good news about the SCS. This winter has been really bad on my ribs and I have had to do a lot of mechanic work the last few weeks. Never fails, just as the weather turns cold the cars rebel.

Hope everyone had a great weekend.

Take care,
Bill devil


Ps. I am still here everyday reading, so if anyone needs me for anything I am still around.
Posted 1/7/2013 10:16 PM (GMT 0)
Good to hear from you, Kitt. You've got every right in the world to whine. I'd be doing it if I was in your place.

"You've got the fight, against all evil. Never fail or even lag behind. If you want to win for God and the right just keep on the firing line."

A little song I feel you might need...Keep fighting! You can't let the cancer win.

Bill, I'm glad you're getting better. Hang in there.
Posted 1/13/2013 5:57 AM (GMT 0)
Hi all-


Sorry I have been MIA again. We have been spending more time with my mother in law and she doesn't have internet..

I got cleared for the spinal cord stimulator surgery again. The CT showed my lungs are all clear again! Just waiting for a date now. The case manager said it should be this month. Sounds silly, but I can't wait to have this surgery, almost as much as when I was waiting for my last redo. I am so strange.


Talk to you all later.

Take care,

Bill
Posted 1/13/2013 6:38 AM (GMT 0)
Good to hear you're finally better with your lungs.
You're not strange, you're just happy that the wait is over and you will get some relief finally. :)

My mom had her gallbladder out this past Wednesday. She's about to go stir crazy from not doing housework. She thinks no one can clean like her. My father and I have had to step in and take over most of the duties. I'm kind of limited in what I can do, but my father has becomed a dishwashing nut! LOL! He can't stand to see an empty glass on the counter. He washes it up right away. Yesterday I was making biscuits and as soon as I put down a spoon he was washing it. :)
Posted 1/13/2013 11:23 PM (GMT 0)
Joy-

That's funny turn Hope you mom heals quickly.

It was such a let down when they said I couldn't have the surgery back in September. The trial went so well I was so looking forward to it.


Take care,
Bill devil
Posted 1/14/2013 3:43 AM (GMT 0)
My mom had to go back to the ER today. She's got a bowel blockage due to all of the pain killers. :(
They are keeping her overnight to see if the medicines they gave her today will move things along. ;)

I'm going back in the morning to visit and see how's she doing. Daddy's spending the night with her tonight.
Posted 1/14/2013 9:24 PM (GMT 0)
Ahhh, sorry to that Joy. Michelle had an issue with that, but we were able to get things moving again ay home. Hope all is better today.

Take care,
Bill devil
Posted 1/15/2013 2:30 AM (GMT 0)
Joy,

I hope your mom does well and things get moving very quickly.  Good luck!

Bill,

Glad to hear your lungs are clear and that you're going forward with the spinal cord stimulator surgery.  Yay!

Nice to be back on this thread!  Thanks for posting and getting it back up and running!

Take care,

Denise

Posted 1/15/2013 5:47 PM (GMT 0)
Denise-

I missed this thread too. It is a nice thread to just talk to each other off topic and share things.

Anyone heard from Sandi or MMM? I have seen Alcie on the CP forum, but not around here lately.

Hope to get my surgery date today. Oh...My son is finally going to get the DNA test done when he gets his income tax back. They named him Calvin and the older he gets the more I see my son in him. So I am praying he is my grandson. It's really hard to see him and yet not get too attached yet until we know for sure.
I can't remember if I told you all or not that my daughter is engaged. They set a date of 8-10-13. We have a habit of marrying early on my side of the family. The hillbillies that we are. But we also stay married. The men also tend to go in the military and her fiance is in the Army.
My son is still planning on gong in the Navy, but wants to get the DNA test done first. This could be a big year for us.

Take care,
Bill
Posted 1/15/2013 10:22 PM (GMT 0)
Hi Bill, I've been wondering how that new grandson was working out - hope it all leads to good news for you all.

I'm still answering posts as and when I can - I tend to hone in on things to do with supplements or natural remedies; that and nausea I seem to have most experience with!

It was good to see Bruce surface on the forum recently - I miss all the old regulars!

I also pop over to Caring Bridge to hear how Kitt is doing.

I'm not doing too bad. I'm not where I want to be, which is off medication, but I am hanging tight to that dream!! I've had over 6 months of acupuncture now and it has been great for the nausea, which I only get very occasionally now. Milk thistle has also been kind to me, reducing hugely the sensation of drinks slowly climbing back up my throat. That just leaves the gastritis element and some heartburn symptoms to chip away at. I never thought I'd have to take my GERD apart piece by piece!!

I think I also have a possible theory for why so many of the supplements etc I tried made me worse - I think, based on some recent things I've done, that anything in tablet form causes pain and discomfort along the heartburn lines. But things in capsules seem to be OK! If I'm right it means I could try one or two things again, if they are available in capsule form! Just a theory at the moment.

My good wishes to everyone,

MMM x
Posted 1/16/2013 2:31 PM (GMT 0)
MMM-

I tend to agree with your theory on the caplets vs. capsules. I have notices this and my mother has too. She has really noticed this since her chemo.
As for tearing apart your GERD piece by piece, well it is a very complex thing and makes sense to me to ave to do that. I am very happy you have made some real progress with it. My pain doctor is a huge proponent for acupuncture.

Well I have another daughter update: She will be sittin' the bench for her senior season. She has torn the labrum in her throwing shoulder. We see a sports shoulder specialist surgeon on the 23rd. She will be out 4 to 6 months. Not the birthday present I was hoping for yesterday.

Take care,
Bill
Posted 1/18/2013 3:32 AM (GMT 0)
Hi Bill,

I didn't know it was your birthday yesterday!  

yeah   yeah yeah Happy Birthday! yeah yeah yeah

Hope you had a great one!

Denise

Posted 1/18/2013 12:10 PM (GMT 0)
Thanks Denise! Yep I turned 21 with 21 years experience.

Found out I won't have my surgery until February. They have a couple big cases already scheduled for this month.

Talked with my daughter's college coach and he wants her to take the full 6 months. He also does not want her to play summer ball and once she is released from her surgeon she has to see the team trainer to be evaluated and he will determine when she can resume playing. I can live with this since they are paying her to play softball at college.
Her H/S coach told her she will basically be an assistant coach for him, so she will still get her 4th varsity letter. She also has the job of training her replacement shortstop.
The real bummer is for the team to lose an all conference player, a team offensive and defensive player of the year the last 2 years, and she was just 8 HRs away from the school record.
It's kind of funny because the incoming freshmen are mad they don't get to play with her. They got to come watch us play during the playoffs last season and wanted to play with her this year. We only have 3 seniors this year including her.


Take care,
Bill
Posted 1/18/2013 7:38 PM (GMT 0)
Happy Belated Birthday, Bill.

Tell your daughter to rest that shoulder and don't overdo it. She'll want that college money. :)
Posted 1/19/2013 12:25 AM (GMT 0)
Thanks Joy.

Bill
Posted 1/20/2013 2:47 AM (GMT 0)
Hi Bill,

It's too bad that your daughter has to miss her senior year, but it makes a lot of sense to follow the directions of her college coach.  Is she going to play near to home so you can watch the games?  It's tough on her not to be able to play, but it's hard on you, too!  I know how much you love the games. 

I can relate because our kids played basketball and we never missed a game.  My older son coaches JV basketball and we always go to his games, even now!

I'm sure you'll enjoy following the team anyway.

Take care,

Denise

 

Posted 1/20/2013 4:18 AM (GMT 0)
Denise-

Yeah I will still be at every H/S game and keep the book. Her college is about 3hrs and 45mins. away. We will make as many games as possible. The do travel this way too.


Take care,
Bill
Posted 1/20/2013 4:00 PM (GMT 0)
Hi Bill,

Interesting what you say about the tablets. The vitamin D I tried was in tablet form and most of the vitamins I used to take were as well. I will continue working on the theory and stick with capsules for now!

Sorry to hear about your daughter. Can she coach at all whilst recovering?

MMM
Posted 1/20/2013 6:36 PM (GMT 0)
MMM-

During the 1st 6 weeks after surgery she will have to wear a sling. She will still be able to show the ones trying for the short stop position how to do the foot work and glove work(left hand). Once she gets rid of the sling she can show them the proper way to use both hands to make a smooth transfer from glove to hand ball transfer, without throwing of course.
She can also work with the 3rd, 2nd, and outfielders as well. Mostly on foot work right now. It's surprising how many girls get to H/S and have never been taught the correct foot work for each position or have been taught incorrectly.

Take care,
Bill
Posted 2/2/2013 12:29 PM (GMT 0)
Hi all-

Well my daughter's surgery went well. Took about 2 hours, but looks like she will be ready for college fall ball after PT. She starts PT Monday afternoon.

I got my surgery for the SCS scheduled for 2/5.

Hope everyone is having a good weekend!

Take care,
Bill devil
Posted 2/2/2013 4:31 PM (GMT 0)
So she did have to have rotator cup surgery?
I hope she gets full range of motion after PT. There's money in a good arm. :)

I'm surviving. I'm visiting my sister this weekend. It's fun just to be able to relax and talk.
Posted 2/3/2013 5:55 AM (GMT 0)
BILL
It is good to hear that your daughter has come through the surgery well. Hopefully she will heal and come back 100%.
Wishing you the best for your surgery.. let us know how you are.

KITT
Hope you are doing well and you are keeping your chin up and faith in your heart.

Denise
I know you are loving the new baby and the grandson.. You are so blessed to have them near.
Joy
Enjoy being with family as often as you can.. I hope you are doing well.

I have been doing ok. I still have the issue of being tired a lot but I think a lot of that is my age creeping up on me and I still try to move at the speed of 40.. years old that is...
Going to a fish fry tomorrow.. fresh Crappie(speckled perch) right out of Lake Okeechobee.. nothing better.. hush puppies, cole slaw.. home made mac & cheese, and a whole list of other salads and desserts.. Too bad I still have limited space in my stomach. Or maybe not.. I haven't gained any weight back after losing it almost 2 years ago, after my Nissen. That has been a blessing with my heart problems.
I am very optimistic that this year will be healthy and prosperous.
Can't help it,
Still waiting for those rainbows... tongue
Sandi smurf tongue turn turn tongue smurf
Posted 2/3/2013 7:56 AM (GMT 0)
Joy-

It was what they call a SLAP repair. Basically the labrum on the inside of the shoulder socket tore away from the bone where the bicep tendon attaches. They put 2 anchors there with 4 sutures that are permanent. She also had a small tear on the other side of the tendon that needed one suture to close it.
She tore it doing pull ups at school. We found out that any over the head lifting and pull ups are bad over hand throwers.

Sandi-
Crappie sounds good. Might have to do some ice fishing when the ice gets a bit thicker.

Take care,
Bill
Posted 2/3/2013 3:20 PM (GMT 0)
Hi Joy,

Have fun visiting your sister!  Your mom must be doing well for you to be able to to leave.  I thought about you when all the dangerous storms were traveling around Georgia.  Glad to hear you made it through fine.

I'm starting the Xolair tomorrow. At nearly 61, I want to enjoy the time I have left!  If it can make it possible for me to be able to go outside in summer, instead of being stuck in he house, it is worth any small risks attached.  My old asthma doc as well as my new one are very comfortable giving it to me, so I'm going with it. 

 It's extremely expensive ($1000+ a month for just the med) and my insurance denied it. Fortunately, my doc put my name into the company that makes it. They called and asked some questions about finances, I sent them our tax returns, and lo and behold, they're providing to me for free.  Thank goodness.  It's worth a try...if it works, great!  If it doesn't, I'll just stop the injections.  Fingers crossed, though.

Bill,

Live and learn.  What an annoying thing to have your daughter get hurt doing a PE unit at school!  Our kids were basketball players, but the PE teacher was a wrestling coach.  He always insisted in a wrestling unit, and I remember once when our son got hurt doing wrestling moves (bridges or something) that weren't appropriate for someone who hadn't trained for wrestling. He was out for a few weeks.  It was frustrating as heck.  Glad to hear your daughter's shoulder surgery went well!

Good luck with your SCS procedure!  I hope you find real relief.  You be careful out on that ice.  With the way things have changed climate-wise, it's not as predictable.  Take care!

Sandi,

You just keep looking for those rainbows!  Yes, we are enjoying our little grandkids.  Our grandson is nearly 27 months and is growing and learning leaps and bounds.  He's been sick the last week, so my husband and I are Clorox wiping everything he touches after he leaves! 

With asthma, I don't need to catch a bad cold!  Unfortunately, he has inherited a little of my asthma, so he needs my nebulizer when he has a cold.  Hopefully he'll outgrow it.  Unfortunately, I didn't!  Whenever I get a cold, it's off to the races.

Have a wonderful time at your fish fry.  It sounds delicious! I'm sure you'll find plenty of corners to tuck that yummy food!  Enjoy every moment!

Kitt,

I know it's rough for you with those side effects from your chemo.  You need to remember that we're all rooting for you and sending healing thoughts and strengthening vibes.  Watch for the rainbows Sandi is sending your way.

 

((((HUGS)))) to all!

Denise

Posted 2/4/2013 3:23 AM (GMT 0)
Hello Friends..

Went to the fish fry today and there was so much food, I tried to eat a bite or two of most everything.. wow I am still stuffed....
BILL
We went fishing a few weeks ago and I caught a striper.. about 15inches.. none of us knew that there were any striper in Okeechobee.. we have been told since, that there were 6000 released into the lake 2 weeks before I caught mine.. funny thing is though.. they were released at the other end of the lake (approx. 55 miles south of us) and in that short a time, they came to the top of the lake.. and the crappie was delicious today!!

Denise...
My daughter had some allergies when she was small.. pretty much grew out of them but the residual symptoms never went away.. when the weather changes she still gets the drainage and stuffiness and cough.. hope he grows out of it too!!

I can feel the rainbows, they are on their way..
KITT
Don't you ever doubt it..Hugggzzz and prayer coming at you!!!

Sandi
smurf tongue turn turn tongue smurf
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