Hi J.K.,Welcome to the Healing Well Wrapped Club! Sorry to hear you're having so many problems. There are times when GI docs and surgeons, though they mean well, don't seem to truly understand the significance of the pain and problems we are experiencing when we go to see them.
It seems that they've left you few options. You can either seek out yet another opinion locally, or travel to a center where they deal with more problem cases. I don't really have any answers, but do encourage you to keep looking for help. Don't give up. There's an answer for you, and you will feel well again.
A moderator here, Bill, had a lot of problems with his first wrap. His docs didn't know what was wrong with it. Finally they just went in to fix it, although they didn't know if there was even anything wrong. It ended up to have been made incorrectly, which explained his problems. I'm just relaying this story to say that problems can't always to be discerned from the outside.
Hang in there,
and Good Luck!
Denise