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acid rebound or GERD? please help!!

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Posted 3/14/2013 8:34 PM (GMT 0)
Hello my name is roah!

in October, I went over to a friends house of mine and I remember having pain in my lower left of my rib cage it was sharp pain and when I went to the doctor the day before this horrible weekend occurred, she told me I had acid reflux. I didn't know what the disease was nor did I take it seriously. Little did I know she was going to misdiagnose my illness which was costochondritis (inflammation of the ribg cage which caused my sharp pain, it happened when I laughed and breathed in too deeply, it came and went) at the time with acid reflux.

So I was like fine and I was going to take over counter priscloec for it like she prescribed me but I still havent touched the pills and I was going to get them after the weekend at my friends house was over.
I had milkshake, pb&j, and some other stuff while i was down there because I didn't know of what the acid reflux diet consists of. I woke up that weekend on saturday with my belly button feeling twisty and notty and some weird pain my lower left of my abdomen, I got scared and thought it was my appendices or something. I went to the ER. and they said I had gastritis and I had to stay on BRAT diet and prescribed me priseloc as well. I didn't take the pill right away because I didn't have time to go and get them from pharmacy. So I went on carnival ride with one my friends and when I came down I couldn't swallow. I went and got the pills and started taking the 20mg omperzlone on October 12. went to the ER again and doc told me sounds like it was GERD and it was based of what I told her my main doc told me, and she increased my pills to 2wice day of PRISELOC. and I had to see a gastroenterologist on Thursday following that appointment.

so i went to see the doctor had the endoscopy done one me found an inflammation of my esophagus, he prescribed me protonix 40mg a day. he never told me when to get off nor did he tell me the results of my biopsy and etc. I had to wait 3 months because my insurance was maxed out on benefit until the new year which was this passing year. this all happened to me in 2012 since October of 2012. I went to see a new doc in January told me the results of what my last doctor endoscopy results were did the test on me where they check your abdomen said I did not have GERD but said I would have acid rebound since I took prisloec and protonix for like 4 months. HE prescribed me zantac 150mg twice a day for 10 days after seeing him and said to stop. so when i was taking them I have finally experienced heartburn for the first time ever because before all this MY POINT IS I NEVER HAD ANY HEARTBURN OR ACID INDIGESTION EVER I COULD EAT WHATEVER I WANTED. So after getting off the zantac I found that anything i eat even the clean foods bothered me its like lower and upper abdomen is in constant heat and light burn I don't know if its heart burn as well but I feel these kinda symptoms particularity after eating and it was last until I eat again. I also have dyspepsia like I feel full right away or something sometimes is stuck in my throat, chest pressure like there is no pain but I can feel tightness there but this started happening to me after i got off the pills. it also gives me gas and burping. so the new doc had another endoscopy done on me and said I was fine that I had mild gerd and i could take tums or gaviscon for it. but my prob is do I really have GERD? if I got these symptoms after the pill suppressing my acid for so long and is this acid rebound and how long does it take to go away or is it gerd? because what i can't understand is how i can eat vegetables and still have burning heat sensation in my upper abdomen and i don't know if its giving me heart burn but it feels like it can anyone help me out? how does acid rebound feel and how long does it last or do i really have GERD? I am scared and I can't seem to move on with my life its been the hardest 5 months of my life I pushed all my friends away, my family is exhausted from the constant crying. what should I do? and I am kinda scared to eat because everything seems to bother me when I eat.

Post Edited (inpinkagony) : 3/14/2013 2:41:45 PM (GMT-6)

Posted 3/16/2013 5:23 AM (GMT 0)
Inpinkagony
Sounds like rebound.
I was diagnosed gerd because i had mild inflammation area in my esophagus(got endoscopy done) last Nov, but once i was prescribed nexium and had it for a month i seem to have hard time to get off the drug. I had to take higher does for another two months after only two months later but decided to get off earlier after a month because i developed anxiety and heart racing.
Now i have been taking zantac instead about a week so we will see. Doc told me to take two weeks of maxmum does of zantac but i'll gradually reduce the does over two weeks. And i will just grit my teeth and let my body learn how to cope with the whole system on it's own, not depend on drug.
Take it easy and watch out your diet and try to get off the drug. Have patience. Ppi itself might have caused your depression. Long illness makes you tired mentally, too. Very understandable. I cried a lot, too. Now i smile instead and just 'deal with it'. Relax.
Again, take it easy and take it as a long term battle. Don't expect it to be simply gone just like that. Talk to your family how you feel and ask their support. It is hard, long suffering. I have my own thread under' stopping nexium due to the possible side effect'
Best luck!

Post Edited (Willovercome) : 3/15/2013 11:26:31 PM (GMT-6)

Posted 3/16/2013 6:13 AM (GMT 0)
willovercome: thank you so much for the response! Is there a link to your thread in order to see what side effects you have gotten? That is so funny, I have developed anxiety as well, I do not know if it is that but like the tightness in my chest was never there before the massive drugs I have been on the past couple of months. I forgot to add they gave me bentyl for week because they thought I had IBS when I didn't thank god I stopped taking those. Its just sad that doctors seem ready to write you a paper for pills when there are better approaches naturally. My biggest question is do the PPI cause hyperacidity (where there is a lot of acid) or hypoacidity (where there is little acid in stomach)? I read online that the studies said it sometimes take up 3 months for it to leave your system, my prob is I noticed the heat and burning is always there and the dyspepsia happens when I eat a lot I guess? and the heartburn happens depending when I eat. but the heartburn seems a lot quieter compared to first time I got off

wow I hope you take it easy and get better as well, I know its hard having a disease like this, as far as my family they are trying to be or I think they are my parents are awesome, but sisters are oblivious to the whole thing, they think I am depressed and stuff. Friends don't want to burden them than I already have it's hard situation to comprehend.

Post Edited (inpinkagony) : 3/16/2013 12:17:40 AM (GMT-6)

Posted 3/16/2013 6:31 AM (GMT 0)
Oh if you do not want to take a lot of medicine, you really should take DGL supplements, or slippery elm tea, they help with the healing naturally by protecting the mucosa when you eat. Do that with a strict diet and you will be healed up in no time but with the DGL don't take more than 4-6 weeks it should be healed by then (cause they tend to elevate blood pressures in some people.) I take three a day now (360mg) and chamoiille tea in morning again in evening and slippery elm tea at night. They just seem to reduce the burn naturally, but going to stop after two months. see if its really GERD or acid rebound.
Posted 3/16/2013 2:02 PM (GMT 0)
Hi Inpinkagony,

PPIs and H2 blockers cause hypo acidity. When you stop treatment your acid producing cells go into overdrive. I recently switched from a PPI to an H2 blocker and have experienced the "heat" and burping which I NEVER had before. I'm taking Gaviscon to minimize these symptoms. And following the lifestyle recommendations for GERD (small meals, no coffee, no alcohol, not eating 3 hours before bed etc. etc.) helps too. The hyper acidity is supposed to wear off over time... Not sure how long it will take.
Posted 3/16/2013 4:32 PM (GMT 0)
Snowinsummer oh but I never had any of these symptoms nor did I had heartburn or GERD before this so does that mean the pills gave me GERD now? oh I got off zantac feb 2 and I started with prisleoc in october 20 mg twice a day than a week after protonix for 3 months and half 40 mg a day and back to Priseloc 20 mg a day and than the zantac like i mentioned 150 mg twice a day. so were you experiencing any heart burn or anything before this? Yeah I been trying eat small meal a day thing but hard to follow with my budget and time. I read online it takes up t 4weeks to 3 months for people who never had symptoms of gerd before to wear off. I had to take it cause I had gastritis and I think caused my esophgitis when I got on the ride.


Thanks for the help. :)
Posted 3/16/2013 5:29 PM (GMT 0)
Unfortunately, it sounds like the pills have caused your symptoms; this has been documented in clinical studies. But, I'm assuming the pills initially helped with the gastritis? When a doctor prescribes a medication, it's always (or should be) a balance between potential risks and perceived benefit. In your case, I'm guessing that resolving your gastritis was more important at the time, than potential rebound effects later on.
Posted 3/16/2013 6:34 PM (GMT 0)
This is my link, inpinkagony
https://www.healingwell.com/community/default.aspx?f=45&m=2670238
Yes, i did have a heartburn once in a very long while, and I tend to be careful about what i eat because my dad had a stomach cancer sugery 20years ago.(he is almost eighty now and very healthy though fish bone thin :) )
BUT, i have had no problems eating anything i wanted for years before this happend. I have met many people who claim they have never had heart burn symptom until they started taking ppi and stopped.
The major problem here seems to be that once you start the ppi, it messes up your system. Zantac never have done that to me before. When i develop a symptom i pop one at night for a couple of days and i would go back to normal. But this ppi is a totally different animal.

Anyway, it seems you are young and hard worker. I am 44 years old mother of 18years old.
But listend to this. i do have a mean sister like you do, yet! Lol isn't it funny? She thinks i am complaining too much and acting weird. She suggested me go out meet people for... Heart burn?
Sister is funny thing. She can be your best friend at times and a worst enemy sometimes. Lol
But my husband is great and my parents and other siblings are supportive and understanding because i am known to be never a wussy. I tend to swallow my pain and try not to burden people lest they worry or... Be burdened.
Hold my hand, honey. It must feel now that you are going crazy and becoming different person. You feel like you would never live like normal life ever again. You don't even remember what it was like.
but make a resolution and stop the drug and suffer through it. If it is fairly tolerable(meaning you don't feel like acid is burning a hole in your stomach ;) ) then you can do this. While watch what you eat just gradually lower your dosage along the way. For me, eating small at a time is very important.
I have a 1/3 rice bowl and a matching aize soup normally but if i don't measure out first and just chomp away while talking or something then boom, my stomach is so full it can not move at all. And then after a struggle, finally when it gets the food down, feeling tired and all, it sends me a sign it is now empty, hungry.
Also, 3 hours before i go to bed i can't eat, right? but i get low blood sugar(i don't have a disease. Just getting old. :) ) when i am completely hungry for hours awake so i have to drink honey tea or somethng. T.T Silly stomach.
My doctor said it is not moving very well which is same problem as my dad's. he eats like a bird and claims he wouldn't eat at all all day if it's up to him. No appetite at all.(due to the surgery he's got half of the stomach on top of his lazy stomach )
But i digress.
Keep it up! You can do this. Especially since you are young your body should be able to heal on it's own. Eat healthy. Immune system is the most important key in this not the drug. And since you have been taking nutrient stoping drug for a long time, since you are talking about your budget, go to Walmart and get some vitamins. Some year ago they checked the brand and the contents of the vitamins and minerals and walmart ones were not less, even better than brand name stuff. Treat yourself.(be sure to take vitamins separately with your antacid. They work through stomach acid and antacid will prevent them to be absorbed.
Love yourself. You deserve it. You have your future ahead.

Post Edited (Willovercome) : 3/16/2013 12:50:33 PM (GMT-6)

Posted 3/18/2013 4:43 AM (GMT 0)
Thank you everyone for the suggestions.

So yesterday I got the results of my biopsies and they found irritation in my esophagus now I do not know if the rebound does that to people without GERD but at this point i believe I have the illness, my doctor is not really helpful because I try to explain to him how anything i eat seems to give me either heartburn or sour stomach followed by the dyspepsia symptoms. Right now he said I should take Gaviscon, I am taking the 100 chewable tablets but I do not know how to use them properly. I have went to the ER yesterday and found out I was clinically depressed.

I just feel that I am not getting the help from my doctor and when I heard the word irritation my whole world jumped because I started thinking about this is what it really is going to be like living life of constant worrying if damage is being done in my esophagus and strictures and etc. I can not live life like this. Hopefully I get the help the I need tomorrow when I go see the counselors but its sad because I am so afraid of whats happening to my esophagus now even tho its mild, I refuse to eat because food has become my enemy in every way. That's why if I do not get the help, I know I will starve myself to death.


I came across this http://www.ccone.com/nh1/alkdiet.html and maybe I will try and eat like this, I might have to eat organic because it seems even regular banana bothers me. But the sad thing I do not have the money to eat an healthy diet. That's why I refuse to eat. why must such sad disease exist?

willovercome: what kind of honey do you use? I love honey tea. and as for the soup I am afraid to make soup because broth have onions do you make your own homemade? Thanks for the pep talk too. But since I am 22 I need professional help at this point but its nice to have you guys even tho I think my mental state at this point is beyond help :(

yeah its sad but I do not think the people around me understand what life is really like for me now. How I am always sad, honestly my family think its a minor illness but they do not know the severity it has on us. I try and tell them that I just can't have anything but they think I am crazy they are like so what you have disease and get over it. That's why I am seeking help to discuss the negativity in my life.

and about your situation I am really sorry your stomach is putting you through so much trouble. some times I wish I had support group in my neighborhood or something or in our neighborhoods, because it takes another GERD member to know the pain of another GERD member. Take it easy and I guess you can always come and escape here, thank you so much your letter made me cry :)

Post Edited (inpinkagony) : 3/17/2013 10:48:33 PM (GMT-6)

Posted 3/18/2013 12:25 PM (GMT 0)
Hi there,

I went through a very tough time of Gastric Rebound when I had to go off Protonix @ 80/Mg day for my second esophageal manometry. My GI doc wanted me off for at least 2 weeks and would only allow me to take either Tums or Rolaids. up to 24 hours before the test.

I had to also extend that time without anything for an additional 24 hours since he wanted an accurate 24 hour pH/Impendence study. The point was to make me rellux as much as possible to correlate with the data recorder and my symptoms which I noted on paper (and on the recorder.)

Usually, 2 weeks of Gastric Rebound is the norm before reverting to a more "stable" pH, from what i've been told and experienced.

Any way you slice and dice it - the experience was very hard for me.

FWIW,

Gastricman

Posted 3/18/2013 5:52 PM (GMT 0)
Gastricman,
Slice and dice, alrgith! Lol you just gnaw and chew on it, right?
I just started my 'ranitidine 150 only at night' week! Woohoo!
I got Gaviscon on my belt and will flash it out whenever i feel 'it' coming. Hehehehe(imagine mad gigle, rubbing hands together)

Inpinkagony,
Getting professional help is good. But be sure to tell them or your doctor about your possible side effect of ppi, ok? Now i feel great. I almost forgot even how i felt when i had to stop the ppi.

Any honey will do. The idea is you put on a mild salve on the scar, so you may use any honey. Here, some people talk about certain honey but my grandma used to give us honey for mouth sore, heartburn, sore throat etc. Get the idea?

Store bought soup is too salty and you don't know exactly what is in it. Cooked onion is no problem (cooking process makes them sweet) but you can make cabbage and beef broth soup since cabbage is good for stomach, they say.
You need every bit of nutrients and energy especially when you are sick. Everyone is losing weight here it's like weight watcher in hell version. Lol
Don't be afraid of 'what' you eat, is what i think. Just always remeber to CHEW very well. Make everything mushy before you give it to your poor stomach. Help it to digest faster so that it won't have time to regulgitate.

It takes time. I mean chewing and healing both. :) Every chewing will get you closer to healing.

RARARA everyone!
Posted 3/19/2013 2:34 AM (GMT 0)
Roah, I am so sorry to hear about the misery that you have been through. I am pretty much in a similar boat as I have been also dealing with digestive issues since November of 2012. It just makes you depressed at times thinking about what is wrong with your body that used to be completely ok.
I think Willovercome is absolutely right about everything she has said.

But this thread has been somewhat eye opening for me and also I am a bit fearful of what lies ahead for me. I had GERD like symptoms since November, BUT I too was eating everything and except for the lump in throat feeling, everything else was ok. In February, I thought well this thing has gone long enough and maybe I should see a doctor. My family doc told me that I most likely had GERD and asked me to start taking Prilosec to see if that would help me. During the next 5 days of taking Prilosec, I didn't have one decent bowel movement and based on that, my doc told me to discontinue the Prilosec and just wait until I see a specialist. about 2 days after stopping Prilosec, my digestive problems went from annoying to pure hell. I lost my appetite completely, couldn't even drink water and just started feeling miserable all over (insomina, anxiety, depression, heart palpitation, stomach burning which never happened before.) I actually thought I had cancer because it was so bad. Now based on what I've just read, I think it might have been acid rebound. Does anyone else think that was a possibility? The hell period lasted about 2 weeks when one day, my appetite was back and my stomach didn't seem full of acid and gas anymore. Coincidently, near the end of this hell period, my gastroentrologist started me on Aciphex (another kind of PPI) and I took it 20 mg of day for about a week and things seemed to get better. Then he told me about a week after that that I had h.pylori and that I should start triple therapy (two kinds of antibiotics + 40mg of Aciphex).

I am almost done with my triple therapy (Friday is going to be the 14th day). I would have been on Aciphex for 21 days (14 of which would be double dose). I want to stop taking PPI's. I can't sleep at night and I can't digest my food that well. I was thinking about stopping the PPI's when my antibiotic treatment runs out, but wow, if I went through the 2 weeks of hell because of the discontinuation of Prilosec, I can't imagine what's going to happen when I stop taking the Aciphex. I guess I'll just have to wait and see. At least, I won't freak out thinking that it's cancer but perhaps this acid rebound, which I was completely unaware of. Why don't doctors tell you these kinds of things?
Posted 3/19/2013 3:07 AM (GMT 0)
willovercome: well for now I might just stick to organic. I went and bought some stuff today hopefully it will help, what made me mad is my doctor said if it bothers you don't eat it and I am like well I am eating even the good stuff and it still bothers me, so this is definetley the rebound right? is your buring constant or just start after eating or drinking something? Honestly I am not going to depend on my doctor anymore, I am try and make through these two months with my slippery elm, marshmallow root tea, chamomile tea, and my DGL licorice root, I am going to take my probiotics because I feel like the not having enough bowel movements is contributing a lot to this. I guess I will take the antacids like he said but i am just afraid of more side effect and it said to take it for two weeks. I might find another doctor, it just sad because I want to know if I really have gerd or not? Because before my ppi's I was diagosed with gastritis and I was on ppi to heal my esophagus from the damage I got from gastrtis, so we will wait and see I am going to get another endoscopy done and the PH monitor done this time in two months. He as doctor just said follow your diet, take the anti acids and be on your way. But I am just constantly panicking about the future of developing strictures its like we are unsafe from our own bodies LOL and barretts thats where I need the psyc help.
So any honey is okay? and oh you are saying onions are fine as long as they are fully cooked? I noticed garlic and salsa are my enemies which I do not mind giving up that stuff is bad for me. But the sad thing is I developed all this after I got off the PPI that's why I am still unclear with my whole diagnosis. I am just wait and see if this is the rebound or really GERD because I do not even know what GERD symptoms are and I got these set odd symptoms after the PPI's before this I was fine as pea LOL.


Oh and do you ever go out? because since I am young do you have any advice on what my order should consist of? I decided to just eat the salads and the soups but like you said since we have this illness we can't even trust eating outside because you do not know what they put into our foods.
Thanks for the support.

Chris K: wow really? so maybe I do have GERD? because I had no type of symptoms before. I had to to go to the ER to see why my bellybutton was feeling werid not and they said I had gastritis but the symptoms came after the 4 months on protnoix and the prisloec, like I developed the chest tightness, the food feeling stuck in my throat, the constant burning in my stomach, the fullness and the belching after I was on the drugs not before, I wish they did discuss the side effects with us as well. I swear doctors are just ready to hand you slip and call it a day LOL

I hope you feel better, I am still unsure about what situation I am in and I am constantly worry about the future and stuff. I don't want to be bother to my doctor but it just breaks my heart that he sent me on my way fending off for myself and not really hearing me out. So I might have to find a new doctor, but the think that sucks is the area I live in he is suppose to be one of the best. and my insurance sucks so I can't always overuse my benefits.
Posted 3/19/2013 3:10 AM (GMT 0)
willovercome: I would love to hear your idea of cooking the beef broth and the cabbage broth? how long do you cook them for and what do you put into it?
Posted 3/19/2013 3:11 AM (GMT 0)
Thanks everyone for the pep talk and stuff. :) its nice to know there are people out there dealing this.
Posted 3/19/2013 3:33 AM (GMT 0)
oh and how do you know if your stomach doesn't work with anything when it constantly burns after eating everything? even the lifestyle changes thats my biggest worry I still have the burn now maybe its the almond milk? or the rebound in general? when everyone is on the rebound it starts after eating or constantly there?
Posted 3/19/2013 3:34 AM (GMT 0)
inpinkagony, I believe that GERD is more of a symptom than an actual disease of its own.  In my case, I was having GERD because of gastritis, which was in turn caused by h. pylori.  I had chest tightness and that pill stuck in throat feeling before I started on PPI, but after taking PPI and then stopping, that brought on some heavy duty malaise.  You might have what some doctors might call GERD but I hope that you too can find out exactly what is causing it.  Please know that you are not alone and even though we have never met, just because we are going through similar stuff, there is a certain sense of bond and I really, really too hope that you will eventually feel better.

And my little rant about doctors. Doctors won't discuss any side effects and they think 90% of the side effect is because of what's in your head.

Doctors today, there are some good ones out there, but man, a lot of them just ... suck.  My gastroentrologist, on my first visit, seemed to be turned off by the fact that I came with a notebook in which I kept a log of what I was eating and what my symptoms were (he must have equated notebook to "oh my gosh, this one is going to go on and on and I might miss my tee time).  When I tried to tell him how crappy I was feeling (weight loss, loss of appetite, insomnia) and how scared I was, he would have none of that.  He heard "lump in throat" and his brain went on auto-pilot.  He said I had GERD and left the room and came back with four sample boxes of Aciphex and told me "here try these and talk to my assistant to schedule an endoscopy".  Zero empathy and it was so obvious that he wanted to hear the minimum that would allow him to make a dignosis based on his past experience and any other concern I tried to express, any other questions I had, I was wasting his time.  Believe me, I am looking for another one.  I wish you the best.

Posted 3/19/2013 4:00 AM (GMT 0)
oh that makes so much more sense, I just wonder how long the rebound will last? My doctor believes I have GERD but I was trying to explain to him how my body should not be reacting the way it does to all the foods I am eating you know? Its like I have severe allergies or something and this only started happening after the heavy medications before I had no symptoms. He confuses me by saying well it must be the rebound, so he had me on zantac 150mg twice a day for 10 days, and it helped but it caused more odd symptoms, I mean it reduced the burn I guess but its still there. and I tell him I read somewhere the burning can last up to three months with people with no heartburn symptoms before he goes uh no its month I am like did you forget I was on it for 4 months so it might still just be the rebound, he goes uh no it should have taken a month to go away. I am just so frustrated on the little knowledge our so called doctors have about the whole situation. Oh I had gastritis without the bacterial infection. I got my results everything from my biopsies came back negative and I did second one after my first two and everything came back negative except irritation in my esophagus so I wonder what caused that because before I never had that. can the rebound cause irritation in the esophagus? and according to that I have GERD. I am sorry I just feel like I am super confused and I am not understanding whats happening to my body I never had any type of issue before all these medications I was put on.

yes I know thank you for always listening to my ranting. and i know I just can't believe how sad doctors are.
Posted 3/19/2013 4:27 AM (GMT 0)
Inpinkglory,
Ok, cabbage soup here you go. I actually made meal balls(just ground meat, chopped green onion, tofu, egg) with it, but for you, simpler version would be,
1 cup Cubed stew beef about 1/2inch by 2/1inch.
3 cup Chop up cabbage. Rough. It will all become mushy
You don't need no stinky measuring cup. Use your grip. Tea cup. whatever. It's just example ratio.
Put them all together in a pot with 5 cups of beef stock. Boil in medium low heat, half covered until in becomes 4 cups and cabbage all soft and mushy. Skim the fine dusty bubbles and fat while boiling.
Salt for the taste.
Just like that. No big deal right? i teach my daughter how to cook easiest way. It doesn't have to be fancy, you know.
Whatever you do, just rememebr to chew. I feel my stomach is not moving literally when it feels 'stuck'. I can't explain other than that.

Today is my first day starting '150 zantac only at night' i had one last night and had three meals sucessfully today without any heartburn. I will continue with 150 zantac at night this week but i am very optimistic. I feel much lighter since i stopped nexium 8 days ago, and now feel i got away with getting off ppi at least though i am still on h2 blocker. I actually feel i digest 'better' even when i haven't had 75mg this morning. i believe you can gradually wean it off like me, lowering the dosage little by little, without serious rebound.

Pink, btw, actually i see you are saying 'lol' and am so happy to see you now show a resolution to overcome this. Your tone beccame much lighter. Have you noticed yourself? :)
Good luck with doctors you guys!

Chris,
I feel i am a sort of collegue with you because you and i have joined here about the same time and come across in many topics. How interesting world!
Posted 3/19/2013 4:35 AM (GMT 0)
inpinkagony, do you consume alcohol fairly regularly?  Do you regularly use NSAIDs (non-steroidal anti inflammatory drugs such as aspirin, ibuprofen)?  If you answered no to these questions and you have already been biopsied several times for h.pylori and those came back negative, I can understand why you would be confused about having gastritis.  Those are the most common reasons.  Coffee perhaps?

Acid reflux/GERD can definitely cause esophagitis.  And yes, PPIs can cause weird symptoms/side effects that makes you go insane sometime just because it's so confusing.

This thing sucks.  It too has consumed me for the past 5 months.  I just wish the doctors understood our plight and tried to explain things a bit better. 

 

Posted 3/19/2013 5:21 AM (GMT 0)
I did all of that so thats why it led to my gastritis but its gone 100% gone now, so my prob is where did I get these werid symptoms because I never had them before thats why i am surprised I was diagnosed with GERD when my intial diagnose is gastritis but I got esophagtis when I got on the ride was that because of the GERD or gastritis can do that too?

I never consumed a lot of alachold until last summer and ibrofen I was dignosed with CTS so I had to take naproxen for like month! with combination of alchol and excessive hookah and than I got gatsrtis got on ride came back with inflamed esopgahus so my question was what caused that inflamed esopgaus because i only had gastrtis at the time and inflamed esophagus was gievn the pills took them longer than I was suppose to and when I got off the did i finally experience heartburn and indigestion and dyspepsia and all these werid side effects after the treatment, this is where my story is unclear so i must had GERD all long but never knew? or having the pills caused the GERD just dont know what to think. I keep playing the days in my head over and over before all this happened. That's why I need to see another doctor but my family thinks I am crazy what more do you expect. I mean today my burning is in vengeance attack LOL, and trying to explain to my doctor its not just what I eat that bothers me ITS everything I eat bothers me and that should not be the case because if u watch ur diet ur GERD should silent down than why is it not doing that so I def think this is the rebound but he cant seem to agree.
Posted 3/19/2013 5:28 AM (GMT 0)
willovercome: haha yeah I woke up out of my slump today, I just decided to focus on THE NOW U know? I can't let my life be consumed by this disease. I am going to follow my diet and slowly introduce some of my favroites in moderations, and I think I am going to do what you did wean off because that's what my doc should have done. He didn't know the part of me being on the protonix for 4 months which is why I am still feeling the effects. so how is your weanin off like what did you start with? I did 150mg of zantac twice a day. for 10 days I mean it simmered it down but for some reason I am still having troubles. should I go to 150mg a day starting tomorrow and than 75 mg and until the last dosage, my doc said take over counter anti acids but they dont seem to do the job haha.

my gosh your recipeies sound so delicious I was scared I was going to have to give up soup haha! with start these recipes after my strict clean veggie diet for 2 weeks.
Posted 3/19/2013 5:29 AM (GMT 0)
oh willovercome: how much did your heartburn come in week? before the nexium and evertything?
Posted 3/19/2013 6:10 PM (GMT 0)
Pink,
To me it was an acute attack. One morning as i settled down to read on the sofa(unfortunately leaning down right after breakfast. I should have known better) IT came up to burn my esophagus. The acid. Bur~~~~~~n, you know. ;)
And then it wouldn't go away. i felt nauseated everytime after i ate for weeks. i couldn't eat because i felt full when i had barely ate anything. It was NOT exactly 'heartburn' all the time. I was having night time cough, too, though. That's when i went to clinic and got nexium. I felt i got better but when i stopped, the former symptom and heartburn came back two weeks later and i had to take higher does. like many here, only after i stopped nexium it became really 'heartburn' everytime i ate something.

Anyloo,
Since, everyone is diffferent i think what is important here is not 'how many time' but 'are you feeling it is being healed or getting worse' day by day. Basically the main reason you do the endoscopy is to see if you have a stomach ulcer(you could have a hole in there), cancer(include barrett's esophagus) or h.pirori. Once they find non of them and some red area, they have nothing more to say other than you have gerd, gastritis and give you drugs and shoo you away. Why- you ask but they can't answer because they don't know. It could be many things. It could be what you ate, drugs, menopause(hormone imbalance), your stress. It could be your work or leisure activity. And they don't know you like you do. Unfortunately statistics show that many patients lie to their doctor for various silly reason so i can't blame doctors 100% that they tend to think we are hiding 'what we did last summer' ;)
So since you had had endoscopy done and you had more or less 'not so severe' case, try to relax and follow your plan patiently.(it doesn't depend on what you feel but on how serious the eroded area is. Even if you have mild case you can feel terrible and i read in some cases when doctors are just fed up with complaint they prescribe anti depression drug which is NOT good. Another drug to get off painfully later!!)

Anyloo,
Do you think it's possible that you have your good spirit back because you stopped ppi and started h2 blocker? To me it was obvious. I hum and twirl around at home now but when i was having ppi i was like, i just want to die.... You know? When my symptom was clearly gone at that time why would i have made that up?

If you still feel heartburn all the time, since you had ppi longer than i did, i feel you could go with whole two weeks with 2 150mg a day.( that's what the fine prints and my doctor said) and than you could lower it to one 150 a day. It's still equivalent to 75/75. So it will maintain situation alright.

Do you know Gaviscon? It works differently from any antacid. it forms a barrier and blocks acid to come up at all. You take it after your meal. It could cause constipation the fine print says but three times a day is just half of the maximum does so it should be ok since you are having a lot of vegetable.
Choose vege like Broccoli and cauliflower and cook them soft. Pour the balsamic vinegar and olive oil and salt and pinch of pepper(won't kill you. Delicious food makes you feel good because your body produce endorphin which is happy hormone.)

You can do this.
Btw, this is not a pep talk.
It is a fact. :)

Post Edited (Willovercome) : 3/19/2013 12:17:17 PM (GMT-6)

Posted 3/19/2013 11:07 PM (GMT 0)
willovercome: thank you so much for all your support, I went out and bought some probiotics, vitmans enzymes, and organic honey some slippery elm supplements the gaviscon and the zantac nd the dgl going to take these for the next couple months I am start off with my zanatac 150 twice a day for 2 weeks than 150 for another week or two than 75 mg for week and any if needed than gaviscon and maybe get PH thing done and see if my esopagus is healing but my last question for you do you take your zantac with glass water before bed or with meal and than bed? it said to prevent symptoms take 30 min -60 min with meal to relieve take with water which one should I do while weaning off and the morning one how should i take those.?

when you get off the pills you might want to look into some enzymes and probiotics I heard they help so much because one of our biggest causes is our body doesnt break the food down fast enough.

I started today with 6 mini meals and ate until statisfied, still have the burping thing and probbaly will continue since it started after the zantac. but hey one day at time. I know I been on the drug for like 111 days so it might take me until june but i am ready have my suppliments and everything oh when u start feeling better look into some culture yogurt they are so good because the ppi killed so much of our good bacteria that we need to restore our bodies back in order for it digest well, another thing i heard if you are suffering from hypoacidity which is low acid HCL tabs will help but i am not gonna take those until I get my PH done in june so we will see :)

stay in touch! will keep you posted.
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