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Posted 7/23/2010 3:56 AM (GMT 0)
Hey guys,

I just wanted to relate my psoriasis story.

I got psoriasis only after starting Humira for Crohn's (I know that ironically it can help existing psoriasis)

I was on Humira for a year and the psoriasis was bad on my scalp, and I also had mild psoriasis on my back and face, and severe crusting and plaques in the ears.I went to the dermo and he prescribed some topical steroids, and a bunch of useless creams. When I stopped the humira, I hoped the psoriasis would go away slowly. From research online, I see that most folks with drug induced psoriasis continue to have it after the drug is stopped. wonderful.

I started taking pharmaceutical grade omega 3's with vitamin D as I heard they could control inflammation levels and help my CD and psoriasis. WHile I have ot noticed a diffeence in my CD, my psoriasis is COMPLETELY gone!!! I don't know if I'm just a freak of nature or what but I really wanted to come on and tell you guys because if can help someone else thatg would be great. And it's worth a shot, for very little money.

I take about 5g of omega 3's daily (4 caps , 2 twice daily with meals) They also contain a total of 1000iu's of Vitamin D3. Now I hear both of these are beneficail for psoriasis and I have no clue which one helped put me in remission .. but I say give it a go! Worth a shot. Make sure you take a therapeutic dose (about 5g daily) and that you give it time, mine took about a month to resolve completely but mine was also not severe.

Good luck and hope this helps someone!

Posted 7/24/2010 1:09 AM (GMT 0)
Please explain "pharmaceutical grade" omega 3s.  Can this be purchased off the counter?

Thanks.

Posted 7/25/2010 3:38 AM (GMT 0)
pharmaceutical grade can also be called ultra pure.. I think. I get mine at GNC and they are under $30 for 120 softgels. No aroma, no taste, no aftertaste. They are large though. I have never seen pharmaceutical gradde omega 3's at the drugstore (ironically) but if you have a GNC or other nutritional/vitamin shop they would surely have it.
Posted 10/22/2010 1:01 PM (GMT 0)
Hi. I've got a patch of psoriasis on my arm. Nothing too serious but annoying as it is very itchy at times.

I'm in the UK and the other day we had an article in one of our newspapers about these creams you can buy over the counter.

Most of them make psoriasis and other skin conditions worse because they contain Sodium Laurel Sulphate which is an industrial degreaser.

I was using E45 cream and noticed every time I used it, my skin burned and turned the patch very red and angry looking. Even my son noticed it. He told me to stop using it as he felt it was making it worse - my husband agreed with him too.

Then we read that article. My son grabbed the tube and threw it in the bin.

Seemingly, even those that don't contain SLS have equally nasty chemicals in them which do the same thing.

Unfortunately, nearly every shower gel, bubble bath and shampoo on the market contains SLS - even baby products. Not good.

I did hear somewhere that Avon's Skin-So-Soft spray is very good for skin conditions but I haven't tried that myself yet. I'll see if I can get some and try it. Let you know if it works or not.

In the meantime, here's something that might help - home made skin softener and the ingredients are readily available.

Some almond oil mixed with a few drops of pure lavendar oil. Helps to soften the skin and the lavendar has healing properties. I have tried that and it does help - plus there are no harmful chemicals in it.

Given the amount of SLS in products, it's little wonder so many people have skin complaints ranging from dry, itchy skin to more serious skin conditions.

Washing powders, liquids and fabric softeners are just as bad too.

Makes life very difficult for so many people sad
Posted 3/5/2011 10:34 AM (GMT 0)
I am just visiting from another board :)
Lady F-like you I had mild psoriasis(both elbows and legs) and a lot of creams that did no good. The elbow patches were unsightly(and started travelling down my arm) and the legs used to itch like mad after a bath/shower. I used tea tree oil on the legs(stopped the itch) and then applied vitamin E oil to legs and elbows. I do not mean vitamin E cream that has minimal vit E but the capsules that you swallow(pierced it and rubbed in) I also took a vit B complex tablet daily. Within a couple of months the psoriasis had gone and has never come back.
I don't know which of these things ultimately got rid of it although the Vit B complex for me is a 'wonderdrug', psoriasis, headaches and spots went, perhaps I just just deficient in that lol.
Posted 3/16/2011 6:21 PM (GMT 0)
I'm soooooo glad I stumbled onto this thread! I'm always in the Crohn's forum, but I rarely pop in here. I too got Humira induced psoriasis. I've been off of Humira for 12 weeks and *most* of the psoriasis is gone, but not all of it. In fact, it's HORRIBLE on my legs. Summer is coming and I can't bear the thought of another summer in jeans. I have read a lot about Omega-3's helping psoriasis. I also wondered if vitamin E would help!

I am so excited to try both! I'm going to get some Omega 3's today and I will keep you posted. Thank you Tara and Vixen for posting. At this point I am willing to try ANYTHING - the prescription creams haven't done a thing to help. I hope this does!
Posted 3/17/2011 9:31 PM (GMT 0)
Stef,
How is your Crohn's doing since you're off Humira?
Posted 3/17/2011 9:53 PM (GMT 0)
Not great. But not full-on flare-up either. I'm holding steady. Hoping to stay that way and get rid of this nasty psoriasis. I bought the fish oil capsules today from GNC. I'm keeping my fingers crossed for a miracle and maybe... just maybe it'll help the Crohn's and the RA too! I'll keep you posted.
Posted 3/18/2011 2:12 AM (GMT 0)
I hope so, too. Both diseases suck!
Posted 3/20/2011 11:52 PM (GMT 0)
My husband has psoriasis. I have Crohn's. He just recently started having swelling on the pads of his feet and arthritic pains. He went to his primary physician and had a blood panel done. It showed he is very deficient in Vitamin D and they've put him on a prescription grade 50,000 IU a week for the next few months. He's been on it about four days now and says the swelling/pain in his feet is improving. I've read that Vit D deficiency is expected as a culprit in lots of autoimmune cases. Just an FYI - if you haven't had it checked in a while, see what your levels are. Best of luck.
Posted 5/1/2011 9:30 PM (GMT 0)
No advertising or soliciting allowed on the forums, thanks

Post Edited By Moderator (Shaz032) : 5/13/2011 7:47:25 AM (GMT-6)

Posted 6/12/2011 9:48 PM (GMT 0)
Hi, me just visiting again :)
After years of being psoriasis free it has re-appeared on one leg :(
So I am now going to retest my theory that it was the B-complex that cured it-watch this space!!
Now you may wonder why it has re-appeared if taking B Complex and I must confess that since ds' crohn's diagnosis any spare cash has been used on various supplements for him(Calcium, Vit D,Vit E etc) and I haven't bothered too much with myself. LOL that is going to have to change now.At least I will be able to show if (when :) ) my theory proves correct.

Post Edited (vixen) : 6/12/2011 4:03:19 PM (GMT-6)

Posted 6/18/2011 12:23 PM (GMT 0)
I've never heard of pharmaceutical omega 3. I just buy over the counter omega 3 from the chinese market for 30 bucks500 caps. Maybe I need to try some other type, i didn't think there was a difference in omega 3's.
Posted 7/29/2011 2:45 PM (GMT 0)
I tried Vit D it did not help me. I find the best way to ''deal with'' Psoriasis is to have a bath (Soak), use a loofer to scrape all the skin off it becomes 'Very red' and inflamed looking, and then dry off. Then put Astral cream on thickly and reapply morning, noon and night. This is the only way to stop the itching. E45 is actually a bit irritating to the skin. Your elbows are nothing to worry about. I have it on my genitalia and Bum-hole and I can assure you that is one of the worst places to have it. ''Cure'' there aint one. If it leaves your body it means you have dealt with the underlying cause.
Posted 8/3/2011 6:32 PM (GMT 0)
I just started taking Turmeric after doing some research. It's the spice found in curry...anyway, I take 500 mg, 2 pills per day, Curcumin 95 (95 percent pure) and I noticed right away that my joints don't hurt (for the first time in months) and my plaques are fading. I will keep doing this and report the progress as time goes on. I hope it's successful..I've tried everything else.
Posted 9/17/2011 10:07 AM (GMT 0)
Hi guys,

I've just been reading everyone's posts and I know its been a while since they were written but are there any updates from those of you who were going to try something?

Would love to know if you had any successes to pass on.

Thanks,

Sam
Posted 9/17/2011 2:50 PM (GMT 0)
Hi - the Turmeric worked really well until one day I was at the beach for too long and burned a bit on my legs. This seemed to seriously aggravate the plaques, and now they're back again. I'm still taking the Turmeric (Curcumin is the name on the bottle) but I don't know if I messed up the healing process or what.
Posted 12/6/2011 9:05 PM (GMT 0)
Just to update - I tried the omega-3 fish oil. It didn't help. All it did was give me fish burps and diarrhea - not good since I have Crohn's disease anyway. I bought the expensive stuff from GNC so I know it was good quality (did my research before buying). At least for me - fish oil is NOT a help.
Posted 1/26/2012 1:18 AM (GMT 0)
does anyone know where my son can get remicade treatments in the Boston area. He is covered and has only 50% insurance! I looked up the cost of remicade 700 dollars,which means 5000 for doctor,there has to be a place for 25 year old can get a remicade treatment without paying that much!! Thanks for any help I"m a heartbroken mother. In MA we were told we can't buy supplemental insurance you have to use what you have,,crazy
Posted 1/26/2012 10:40 AM (GMT 0)
Hello OhSusieQ and welcome to the psoriasis forum. Is your son needing the Remicade infusions for treatment of his psoriasis? I did Remicade infusions for 3 1/2 years because of my crohns disease and I do know how expensive it is. His drs office will have to set up the infusions because it is a weight based medication and the dr faxes all the info to who is going to do the infusions. Some drs use out patient facilites like an infusion center or even at the hospital as an out-patient. All of this should have been discussed at the drs appt.

If he goes to a hospital for the treatments, many times they will write off the balance to charity based on his income, worth him checking in to. Take care.
Posted 1/31/2012 7:21 PM (GMT 0)
 

Just visiting again:) with an update!

TBH spent a few months faffing around with different 'cures'. Tried things like Omega3's, apple cider vinegar

and the 'wet' method where you basically keep the area constantly moisturised.

There was no change with the omega or vinegar(both taken internally I hasten to add) The wet method I found to be a disaster as I literally only had to lightly scratch(incredibly itchy this time around) and I would take the skin off. Come November I decided to get serious and go onto the B complex and E's and again there wasn't a huge improvement in the couple of following months. Now was into January and decided that I was eating far to much cheese(1lb week :( ) and cut it out of my diet(to get my weight down).  Couple of days later I have to confess to having some and within 10 minutes my leg was itching again. Since then have laid off the cheese and have been itch free but my leg was still a mess. Looked into homeopathy treatments and took Sulphur for 6 days (it is recc for 5 days and then to stop taking it)and finally there is improvement. Leg is still a mess but it is an improved mess, as in more white skin is appearing between the thickened red/purple raised areas.

 Now I am not saying that anything is a miracle cure and obviously what worked for me last time, didn't work this time. What I would say is don't be frightened of trying diferent things. Just as not every drug

is suitable for every person the same can be said for alternative treatments and as I have found what worked for me last time wasn't that good this time.

I have been taking regular photos as I said I would and will get them posted in next week or so.

Posted 5/22/2012 10:48 PM (GMT 0)
I have the plaque psoriasis on both elbows. the right much worse than the left. about a month ago I started using olive oil on both arms and I am seeing some improvement. The left elbow and arm looks much better but again, the left is not as severe as the right. I can see improvement in both so I am sticking with it for now. I do not know what happened but I now have an outbreak on both hands and they look nasty.

I will keep you posted on how I do with the olive oil.......Susie
Posted 6/28/2012 4:51 PM (GMT 0)
hi! i have psoriasis from many years and now my joint got affected... well i took steroids aswell. now adays its little under control n want it to be like that coz once medicine starts working then my body gets immune to it n stops responding to it.
i got a hope from Omega 3's.. how much in "mg" i shud take? plz guide me
Posted 7/1/2012 7:56 AM (GMT 0)
with my UC (which is gone now that i have no colon) and my psoriasis i find that usually most things i try work once but i can't get them to work again. i think that is an autoimmune thing that people seem to experience where some remedies don't work more than 1 or 2 times.

another thing to keep in mind when finding remedies is to give your body a break from them after a month or 2 otherwise your body becomes used to it and immune to it. if you stop for a bit and reintroduce it, it is more likely to have a more positive effect than continuous use.

another autoimmune dilemma with remedies and therapies is that it is different for everyone. one thing may help one person but not someone else. annoying. >_<
Posted 7/14/2012 8:06 AM (GMT 0)
Just started on the Omega-3 wish me luck.... had this disease for 11 years now. my relationships weren't healthy so im trying to cure this on my own..


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