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humira and psorisis!!please help

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Posted Today 2:48 AM (GMT 0)
so have had crohns for 10 years..been on EVERY medication!..finally 3 years ago i was put on Humira it has saved my life..but the downside is i have psoriasis on my scalp and the Humira is supposed to help. but it has cause me to have psoriasis .i am close to losing all my hair on one side of my head..have tried everything with my dermatologist Please anyone..HELP!!! i am wondering if lack of water is doing it cause i def don't drink enough! please as a female losing my hair is sooooo embarrassing!!!!!
Posted Today 7:03 AM (GMT 0)
water can be the key to help this condition. but water with specific qualities . can give you specifics but not sure if that is ok on this chat site.
Posted 2/9/2011 5:58 AM (GMT 0)
Okay, I just looked at this tonight because I am having psoriasis on my scalp too caused by Humira which I too take for Crohns Disease. Unfortunately, it's not really helping my crohns either and I too have been on everything. The psoriasis is spreading pretty quickly too. I am wondering if I should stop the Humira.
Posted 4/18/2011 7:46 PM (GMT 0)
 I am shocked to read this. I have been putting off taking Humira to HELP MY psoriasis and PSA arthritis. SO why is ot causing it on you guys? smhair I use oatmeal everything (AVEENO) for my psoriasis. I do not have it on my scalp, I assume you have tried the medicated shampoo for it? A girl at work says it is really good. None of the prescription meds help my psoriasis, SO sorry Bellavita. What about the lazor treatments. My Derm. Dr. is always suggesting them to me. I just cant afford it right now.
Posted 4/21/2011 2:25 AM (GMT 0)
Normal - tell me about the laser treatments. What do they do? Do they make it go away. I also have severe psoriasis CAUSED BY HUMIRA! Oh, if I could turn back the clock and not take the @#%#@ stuff I would. It has wrecked me! Prescription topicals do NOTHING for me. I didn't even know they could laser psoriasis.
Posted 4/21/2011 12:35 PM (GMT 0)
I got my info out and it says it helps scalp psoriasis. I have not talked to anyone who has tried it. Im sure if you type in laser treatment for psoriasis it will come up. Here is my derms. info to look up if you want it. It has the info about laser. I hope it is ok to put it on this site. http://www.dermatologyinc.com/      Best of luck I hope it does help. It says that alot of insurance co. cover it. But my insurance has the lovely co pays that I cant do right now. Take care.
Posted 4/26/2011 1:30 PM (GMT 0)
   Hello everyone i haven't been on in quite some time, but i am back. I have started taking Humira shots now among other things. And it seems to pick up where the Methotrexate stops. My son had/has psoriasis in his hair. And when he started using fish oil treatment he did loose his hair in those areas. I like others before me have tried all the creams to no avail. Plus i didn't like them cause they stained my clothes. But i did use this stuff that i got from a Pure Romance party that is a all over body oil spray. It is like baby oil but lighter. Plus i used this lotion that was in a bar. Other lotions hurt really bad. And within a matter of days my psoriasis just flaked off. And i had it bad. I had it in the most ovious places like elbows and knees. But when i first started take the metho. i had over 50 spots on arms, legs, back. I am not saying i still don't have it cause i do. But i will most definetly be wearing shorts this summer instead of capri's or pants. I just have one small spot left on my knee and a few other spots on my legs and arms. But for the most part it is gone. This is such wonderful news. I have been battling this for years. I feel for those that have it and not finding anything that works. But i do know that there are alot of side effects from taking all these meds. I know one of my meds can cause my psoriasis to get worse in some areas. It may be Humira but i am not sure. I have been having alot of trouble lately with my Psoriatic Arthritis. I am now on Tylenol 3 w/codeine for the pain. Which helps sometimes. My pain is mostly in my hips and my lower hips (down where my legs meet my body). I have had x-rays of my hips but they didn't find anything. It hurts so bad it feels like my hips are out and i can barely walk at times. Not sure what to do about that. And i really wish more than anything that i had a husband that was more understanding in all this. I am not saying that he doesn't love or even care for me i know he does. He gives me a look that says is there anything that isn't wrong with you. I know i tell him i hurt all the time. I am not making this up cause i do hurt all the time. And i can't tell from day to day what is going to hurt. Any advice on what to do would help. Please and Thank you.
Posted 4/26/2011 3:11 PM (GMT 0)
shellsncheese, I can so relate to your problems with your husband.I have the same problem with my Fiance. Im 53 and lost my first hysband to cancer. I feel so bad complaining all the time too, but I hurt all over and it really does help if you can tell someone and they understand and sympathize. He just looks at me anymore like whatever. I didnt come on here for a long time but now that I have been on here I find that I dont complain as much to him. So complain away dear. We DO understand and sympathize.

    Bellavita did you find out about the laser treatment? Maybe you should put a post on forum asking if anyone had tried it. I think that is the best thing about this forum. You can get true resullts of meds and side effects from people that actually tried them. When I get So frustrated about all that I am taking and doing that DOESNT HELP I get on here for more options.

  shellsncheese I am so afraid to try the Humira. I cant now because my liver enzymes are high. I tried the Metho. and had made my mouth bleed so bad couldnt eat. But the Humira worries me. I use a heating pad on my hips and hot baths. Im sure you have tried that. Have you tried the patches icy hot etc. that you put on and leave on. I think they would be expensive all the time. I cannot use them OF COURSE. I break out after 2 sec.

   Ok as you can see Im a talker. On top of everything else I have terrible sinus problems today. Throat,nose,ears,under my eyes. YEA rah! shakehead Go to NEW Internist tommorrow. The 3rd. one in 2 years. hopefully I will like this one. I keep looking to see if old one is practicing again.. no luck. She is off with kids. Take care all.

Posted 4/26/2011 4:13 PM (GMT 0)
Normal: Sometimes i just feel like the "Nagging Wife". But i do know how i feel reflects how i react to certain situations at home. If i have been hurting i tend to be alot grouchier with my family. Not that i want to be like that. Sometimes i can't stand to even be around myself. I just want to be understood by my family. Alot of times i just want to be held by my husband and maybe a little massage. Not to be taken in any sexual way at all. I know what you mean about starting new meds with serious side effects. I have seizures and alot of the meds that help with psoriasis and/or psoriatic arthritis can cause seizures or make them worse. I have had chest pains also and no body knows why. I have had every test imaginable done to rule out this and that. Alot of people say it is acid reflux. But i took prilosec for the longest time and it didn't help. And it felt different than any pain that i have ever felt. It starts out in between my boobs and radiates in my ribs and upper back. The pain is so bad that it drops me to my knees and takes my breathe away. Any type of breath that i try to take hurts. I find that if i sit really still and don't move and only take little breathes until the pain goes somewhat away that help alot. I have a big family history of heart problems. My dad and uncles and my twin brother has all had heart attacks. I am with you I thought if i just only knew what is wrong with me it might help but probably not. Just more problems to add to the list of what is wrong with me. I really like this forum i don't feel so alone in all of this mess. I also found out that i had degenerative arthritis in one of my fingers. And everytime i mention to my husband that my finger hurts he kind of makes fun of me. That actually hurts more than my finger does.
_______________________________________________________________________________________________________

Seizures, Psoriasis, Psoriatic Arthritis, Asthma.
Meds: Tylenol 3 w/codeine, Carbamazephine, Folic Acid, Celebrex, Methotrexate, Humira
I have had seizures since i was about 15. But i was diagnosed with psoriasis about 14 yrs ago and the arthritis about 1 1/2 yrs ago give or take. For the most part i try to stay positive but it is really hard without the support of my family.
Posted 4/26/2011 4:43 PM (GMT 0)
shellsncheese, I have a friend with RA and HAS ALSO HAD severe chest pain for 2 years off and on. She has had test on heart over and over. They told her it was acid refux for 2 years. They just diagnosed her RA and said the chest pain was the arthtitis, that it was in her chest. She ask me if I had chest pain with the PSA. I have had pain but afraid to sat anything because I smoke. rolleyes I am trying to quit but I am so grouchy anyway because I feel so bad that my work will say GO SMOKE A CIG! Im on FMLA right now. I actually got wrote up for my anger. I was always the never get mad person. I found out that Savella for my fibro can cause anger issues. To be honest I have been angry since my late husband died. Anyway ask Rheumy if PSA causes chest pain or gets in your chest like RA. Well I am going to take a nap. I try not to but with my Fibro I get so tired. Now I have this sinus problem so I will really be grouchy if I dont. Hang in there, I will check this site frequently, so if you need to vent I will listen. Take care.
Posted 4/27/2011 3:12 PM (GMT 0)
Normal did your friend ever tell you what they told her to do about the pain in her chest. I usually do my emergency inhaler and that helps me some but i never know when i am going to have them. Well i take that back, cause before i have a really bad chest pain spell i have bad headaches for usually for about 2 weeks straight. And i don't normally get headaches only when i am sick and the i think is cause i have been coughing alot. My doc told me once that the reason i was having headaches was probably from a sinis infection. But wasn't sick. So one day i had chest pains and headache so bad i went to the ER. They told me that i didn't have to be sick to have a sinis infection, but they did a scan on my head just to be sure. And you know what my sinises was clear as a bell. And they couldn't tell me why my head hurt so bad. They gave me a shot while in the ER and told me that i wouldn't feel any pain by the time i left. They were wrong. My head hurt just as bad as when i went in. Today i am feeling pretty good today and i really want to clean my house from top to bottom but i know if i do that type of cleaning i will pay for it tomorrow. I just hate it when my hands and feet swell. Nothing seems to help. Not even propping them up. And it hurts to walk on them too.
Posted 4/27/2011 4:16 PM (GMT 0)
Shells, She tried alot of things for her chest,nothing worked. They havent told her what to do since they told her it was her RA. She is on waiting list for Appointment with Rheumy now. 6MONTHS! I am going to my new internist today and my rheumy tommorow. Do you work? I will find out tommorrow if I am going back to work or not. Really worried about what will happen either way. I cannot function very well at work anymore, but I am afraid of financial if dont.

 I have to pace myself if do housework. Takes me forever. If I push myself too hard I pay dearly. I use to take Flexeril if I over did it and it would knock me out. Doesnt do much of anything now. I have Amrix but im going to ask if I can get stronger Flexeril.

 I totally agree with you about massages. I believe in theraputic massage. It is too expensive ti pay for it, plus I cant relax with a stranger. My physical therapist did my neck twice and it felt so good but she was trying to stretch it and it caused muscle spasms all down my back. SHe sid she couldnt do it anymore because it caused Fibro Flares.

  I will let you know if I find out anything about chest pain. What do you take for your swelling? Im not really taking anything right now and I need something. Take care.

Posted 4/27/2011 7:32 PM (GMT 0)
Normal, No i don't work anywhere full time. I have a part time job that i do when they need me. Which is good. I really like it cause it does get me out of the house. Before i was diagnosed with Psoriatic Arthritis i slept alot and people would comment on how much i slept. But now they know why i slept all the time or why i would get totally exhausted doing just a little bit. And the comments have slacked off some. I don't care what people say anymore. I really miss having a working tub in my house. The heat from the water is so relaxing to me. My husband thinks that a shower would be better cause it beats on you but sometimes that even hurts. I don't pay for anyone to give me a massage for the same reasons you have. I sometimes feel when my hips hurt that i think i should see a chiropractor but i also think what good will it do if it just my arthritis. I have used icy hot roll on version on my hips and feet but i really cant stand the smell that much. I only take Celebrex for the inflammation. And with all the other meds i have to watch what i can take. I know i hate having arthritis. I am only 36 yrs old. But on those days when my pain meds don't even help i feel like i am over 80.
Posted 4/28/2011 4:12 PM (GMT 0)
Shells, I went without a tub for 2 years, you really need one. One time when my rhuemy ask me how I felt I said "My mind thinks it is 25 and my body thinks it is 90 and the fighting is killing me" Sometimes the Drs. in trying to make us feel better give us too much meds. We have to decide which ones to take. Im going back on Savella as soon as I finish my antibiotic. Internist said had a sinus infection so now I have to worry about my IBS for a couple of months. Or should I say worry more. Thanks for the talks, I was really starting to feel lonely and depressed about my probelems. Then I read about all the deaths from the tornadoes and feel really petty for being in POOR ME MODE. rolleyes Trying to snap out if it and be happy with what I have. But talking to you really helped. The sun is out for the first time in weeks. Going to Rheumy today to see if I am going back to work next week or going on long term disability. Both options really scare me. I know now that I am on an antibiotic I will be a mess.Well gotta go get ready. Take care. P.S. Ask for a tub for mothers day yeah
Posted 5/1/2011 9:22 PM (GMT 0)
This is my first time on this thread, i have read all of your comments and was thinking that if you want to get rid of the skin condition and get your hair back, i could possibly help, my mother has a scalp condition and it it totally gone and her hair is growing back and all within 4 weeks. She is getting her life back and all because of a natural ingredient. I don't know if i can name it on this forum. So get back to me guys and we can speak soon. I want to help you all, give me the opportunity and we can do it together. Speak soon.
Posted 5/2/2011 4:12 AM (GMT 0)
Johnny welcome to this forum. It was my son that had the hair loss not me. And it was only once. He uses some fish oil stuff for his hair. He has is in his hair and in his eye lashes. One of the most weird places to have it. But he doesnt take anything prescribed for it like i do. Which i hope his doesn't get that bad to where he has to. But if he could take something that would help him not have to have it anymore would be great. I take alot of meds to try to get rid of mine on the other hand. Not all of it has gone away. I still have some small spots coming back. For the longest time all i wanted to do was hide in my house because i was to embarrassed to be around people i didn't know. They were all the time asking me what was on my elbows and knees. Or anywhere else i had it.
Normal: I hope all goes well with the Rheumy doctor. I really enjoy going at least to mine. I feel she really understands my needs. And i too have enjoyed our talks. I don't feel so alone all the time. And no matter what i explain to my kids, they still don't understand my pain and how i feel all the time. I have been having alot of trouble with my hips hurting and alot of swelling in my hands and feet. Swelling is so bad i can't grip or make a fist very good. I am going to talk with my hubby about that tub thing cause i sure miss having my tub. Plus i have an Anniversary coming up on the 25 of May. Maybe it could be a anniversary and mothers day gift rolled into one. I wouldn't mind that at all.
Posted 5/2/2011 11:37 AM (GMT 0)
Email me on No email addresses on the forum please - this protects you from SPAM and i will tell you exactly how i am helping people like you. Best wishes.

If you have something that works, please share it here... unless, of course, you're trying to sell something?

Thanks.

Shaz
Moderator of Psoriasis and Ostomy Forums

Post Edited By Moderator (Shaz032) : 5/13/2011 7:42:35 AM (GMT-6)

Posted 5/4/2011 3:21 PM (GMT 0)
   John I don't see why you couldn't say the name of the product since it is a natural ingredient. I as well as others talk about alot of products on here in the hopes to help others that my have not of heard about a certain product or to see if others have tried it and what they think of it. I would feel more comfortable talking on here then through email. Not that i don't trust you. But i just prefer it this way.
Posted 5/8/2011 1:11 PM (GMT 0)
See about changing to Embrel. Humara did not work well for me. Embrel knocked out pain and psoriasis.............
Posted 5/8/2011 1:56 PM (GMT 0)
Rather than hand soaps and cream I would tackle it from a nutritional angle-vitamin A,E and B complex worked for me, it took approx 3 months though and I do not have a vested interest in selling these either!!
Posted 6/5/2011 4:32 PM (GMT 0)
I've been on Humira for about 4 years.   At first it was a miracle then I started having to take it weekly.  about a month ago I started having a rash on my buttocks, now it's on my leg.    Rheumy thinks it's psoriasis.    I'm supposed to start on Remicade infusions but am afraid to until I know for sure what the rash is.   Rheumy says the Remicade will help if it's psoriasis, but Humira is advertised to help too and it seems to be causing my problems now.   I have a cousin that did well on Remicade but when she had to stop it, she was covered with psoriasis from head to toe, worse case I ever saw.   Anyone have any comments regarding the Remicade and psoriasis?   Have to take something for my psoriatic arthritis or I'll be all cripped up again.   Wish they'd find a drug without all these darned side effects.

Alicat

Posted 6/5/2011 5:57 PM (GMT 0)
I was on remicade for 6 years - no psoriasis. Never had an outbreak in my life. Took Humira and about 2 years in, I got the worst psoriasis ever. I didn't realize it was from the Humira. If I had known I would have stopped it immediately. Alicat - stop the humira before it spreads worse. I know people take remicade to treat psoriasis, so maybe it will help your arthritis AND the psoriasis. I hope so. It's worth a try. Good luck!
Posted 6/6/2011 1:27 AM (GMT 0)
That makes me feel a little better about starting the Remicade.   Hopefully it'll work for me too.   I'm gonna call my rheumy tomorrow and schedule the first Remicade treatment.   Seems like all these drugs they give us only work for awhile and then we have to try something new.   Told my rheumy we're just a bunch of guinea pigs and that if the meds not kill us maybe they'll help.   Gotta keep trying I guess.   Thanks for the info.

Alicat :-)

Posted 6/6/2011 1:28 AM (GMT 0)
Stef, do you have psoriatic arthritis?
Posted 6/6/2011 1:32 AM (GMT 0)
Yes, I do. I've had arthritis since I was 2yrs old, but when I was a teen the docs noticed pitting in my fingernails and said it was indicatory of PA. Since my father actually had arthritis as a child AND had/has psoriasis, they dx'd me with PA. That being said, I NEVER EVER EVER in my entire life had so much as a red spot on my body UNTIL I took the Humira. So, I blame the humira for the outbreak.
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