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Posted 12/30/2005 3:59 AM (GMT 0)
I suffer from chronic uticaria, and like many others who post on this website I have bounced from doctor to doctor with no cause found. They believe it is related to some underlying autoimmune disease. I have pretty major outbreaks which include angioedema, swelling so bad in my throat, lips and eyes I've had to seek emergency medical attention several times.

My point is there are a lot of people as frustrated as I am and while we don't have answers we need to deal with the hives as best we can. I would like to know what helps everyone when they have an outbreak. Specifically I'm looking for more natural remedies. What helps me is taking a lukewarm oatmeal bath. Aveeno products are the best I've found.

I'm past the point of feeling sorry for myself, and ready to start living again with or without hives (it's leaning more towards with).

I'd love to hear what helps all of you!!

Meg  eyes

Posted 12/31/2005 1:39 PM (GMT 0)
I don't suffer from hives but I just wanted to say that I feel for all of you that do. I had one case of hives (with welts) and it drove me insane, it stung, itched and burned so bad. Aveeno is good stuff, worked wonders for my kids when they had chicken pox. I don't have any remedies for you but hang in there and I truly hope they find a cure or reason for your CU.
Posted 1/10/2006 1:43 PM (GMT 0)
Hey Meg..i feel for ya, i had chronic uticaria for 2 1/2 years every day and for the last 6 1/2 years i have had hives due to allergic to all medications(wasn't before) in mild to trips to hospitals. Cold hives heat hives and pressure hives. I really don't have much to suggest in the form of what to do to to help hives since nothing but wait it through or visit hospital is the only thing that could help me. But one thing i have learned about myself as a hived up person is no longer worry about what people think when they see you with hives and think they can catch it(i once just to have fun in a waiting room kept sitting next to people and when they moved instead of not asking what was wrong i kept moving with them and when they got pissed i said you can't catch what i have but if you keep stressing like you are you will ....hee hee hive fun!) or if i go to a emergency room when they take me back to start treatment i ask to sit where i can see everything so my night goes by faster and can chat with people....I'm one who has had hives so bad that i was the next stop for large amount of interns since they had never seen a case so bad and that was in 3 states and 12 different hospitals.........any way, always keep a happy thoughts in your head...i know it's hard to do that all the time and make sure there is humor in your life and relax and take a breath and don't push yourself
take care and hope i helped a little bit
Posted 2/10/2006 8:20 PM (GMT 0)
Hi,

Well after having Chronic Urticaria for 8 years, I am still trying to get this horrible condition resolved! I doubt it will ever go away, as it is a histamine release from within the body, and my blood cells just aren't fighting like they should! I am allergic to every anti histamine which has been prescribed to me, but am now on another lot, which is for Asthma sufferers, as there is a slight link between asthma and urticaria. So far so good, they seem to be working, but not when it is that time of month! nothing seems to work! I flare up also, if I am stressed, upset, too hot, cold, if i have applied to much pressure on my skin, ie belts, and certain shoes I cant wear anymore. I only found out last summer that I am allergic to Quinoline (yellow colouring), Erythrosine (cherry pink colouring) and Sodium Benzoate E211. These e numbers are mainly found in packaged foods, ie curry sauces etc. Also alchol is a big factor, so guess what, I hardly drink anymore. After producing some nasty photo evidence to my skin specialist, was I taken serious. I am now seeing my skin specialist every three months which is a blessing, but I think I know, that there isnt much more they can do for me.....I have another appointment in March, so I hope to keep you all posted. Well, I do sympathise with you all, and after 8 years, I know it is a horrible thing to have to live with.

Take it easy, and try not to get too stressed over it, as you will flare up!

Cheers
Toni
Posted 2/16/2006 5:11 PM (GMT 0)

I have had chronic hives for 4 yrs. - So I also feel your pain.  I have been through every antihistimine know to man (including anti depressants - which have anti-histimines in them) with no luck.  My hives will break out for everything and anything.  You just never know when and where it will happen.  I have given up on anti-histimines and have started trying naturopathy.  My naturopathic doctor found 86 allergies from 150 items tested, including minerals, vitamins, additives, hormones etc, etc.  My regular doctor thinks I am starting to delvelop asthma.  I have had pnemonia twice in the last 4 mos.  So far I have gone through 2 treatments out of an estimated 15-18.  (Feels like voo-doo)  I will try anything to get rid of this.  Getting your body healthy and eating the proper foods is a great start.  A good friend of mine took her 3 children to the same place and the kids are now asthma and allergy free...!  Has anyone else had good luck with this?  I will keep you posted on my progress.

Posted 2/17/2006 10:11 PM (GMT 0)
Hi Meg,

I have been suffering with a chronic case of hives for 5 years. I have been to 5 doctors and no one can figure out what causes my hives. I am now at a dermatologist/internist one of the top doctors in the nation and he can not even cure my hives. I am on so many medications (cyclosporine, cyproheptadine,ranitidine, allegra d and hydroxidine). I am tired of being on all these medicines so I am now trying this chem free technique. You buy new clothes, bedding and towels from stores that have not prewashed their items in laundry detergent (victoria secret and wild oats). Wash these clothes in baking soda only for 8 weeks. Let your clothes air dry instead of putting them in the dryer. This is suppose to break down your immune system and get rid of the hives. I have tried this for a week and so far it is working. Right now I am not taking cyclosporine and taking my meds only once a day instead of twice. I have a few hives on my face, but they are tolerable. I am also not exercising right now b/c I know I will flare up from the heat. If anyone has any good ideas that have worked for them let me know. Thanks.

Jenn
Posted 5/12/2011 10:09 PM (GMT 0)
I use Hydroxyzine 25mg I take it in halfs as needed it will make you sleepy. with good results, ......injected in an emergency its called Visterol I think. I take 2 to4 halfs a day during outbreak. Maybe a whole if severe. You get used to them so you can function. I dont get as sleepy now.
I have some theories about all this, I think once you start a pattern of getting them It becomes harder to break the cycle. thats why people become chronic. I personally think they are a nervous response from stress, and low grade anxiety, even though your unaware of. meditation and relaxation has helped the most.
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