Partner Has Alzheimer's......I Need Help Please

Welcome to the Alzheimer's forum and HW
Please do feel free to read the threads already up and they do explain AD and what to expect
If you are homecare provider for your loved oone there are threads on that as well
Could you plz give a few more details so we can understand just what is going on.........??
It would be a big help for me .......


Stay strong
STAY with us

LYN

hi again.....i have a question for someone who's been here.....is mumbling a common behavior? my partner will mumble to herself, sometimes while i am talking to her....she will look away from me and seem to carry on a conversation with someone else, always mumbling...

she was diagnosed with early onset alzheimers....i was surprised to find out it could attack someone so young...

she is currently taking namenda and aricept....also xanax when she needs it  and trazadone...she was on paxil, but seems to get on better without it....along with a blood pressure med.....

thanks....she seems a bit better on the namenda.....the mumbling is disturbing but i will deal with it.....i've learned alot about myself through this......still no matter how tightly i hold on she seems to be drifting farther away......

it is just getting so hard to get legible sentences from her anymore that the mumbling makes me feel like i am missing out on something important she may be saying....does that make sense?

i'm sorry you haven't been well.....so thank you for taking time to answer me.......

I solved the problem when my wife could no longer talk, (of course she was in the so called 'end stage' for about six year) by asking 50/50 questions i. e. 'yes' 'no' answers. In the final few months I tried to get the yes/no nod but it was not forth comming, I did try to explain to her: "When I kiss you and you kiss me back, it's a yes and when you don't, it's a no." Only a matter of weeks before she passed away I was explaining it and gently told her how very much I loved her and asked: "Do you love me?" For the second time in five years she gave me the best gift anyone could ask for, a very quietly whispered "Yes". The first time was just over two years earlier as I strapped her into her wheelchair to take her out on our 50th wedding anniversary. As I knelt to strap her legs in: "This day 50 years ago you took this stray on, would you do it all over again and marry me." I can picture her now as she summoned up the effort, with a strangled "Yes". Though two yeses I'll treasure till I die. The light has gone out of my life now, but the caring for her on my own 24/7 365 days for the final five years has given me a strength and fulfilment that keeps me going. I'm one very lucky person to have been fit above average to do the caring. I wish you all a peaceful Christmas and that your cross be a little lighter in the future.
May your God go with you. Padraig

thank you so much for your advice.......i'll pray i have half of your strength.......

 

a home nurse is coming this afternoon to help make sure my partner has what she needs so i can bring her home tomorrow.....she'll be on oxygen and have some breathing therapy for awhile but she'll be home......i think they keep her too medicated at the hospital instead of dealing with her..

i may be able to get some sleep once she is home and i know she is ok.... i just need to know she is where she feels safe and secure.....thank you for asking.....

Are you sure she said HOSPICE
A Hospice is where they can keep them more comfortable and they have more nursing staff at least here in Ontario thats the case
Are you able to still fully function ( even though I am sure you are drained emotionally and physically)
I have NO idea why this would be brought up
BUT I do know I would call your Case Workers Supervisor and get the total answer as to what they are talking about if it were I
PLEASE hun know I am holding your hand
SHE does not need to go away from you
YOU rae what she needs IMHO
Luv
and God Bless
LYN
Email me if you care too

OKAY hun it is help caring for her thats what it is
Community care access
It might help out and you can spend more time with her while they do the things you normally have to do that take up your time from her
Think aboiut it
No rush right
keep me posted plz

Luvs
LYN

my partner had to be taken back to the hospital after only being home for 2 days, she had a collapsed lung and we couldn't get a grip on the fevers.....she just came home yesterday and is doing some better....

i'm not sure about the hospice help, i am used to doing things for her myself and she gets frustrated and anxious around others....she will have a home nurse coming for a few days until they are sure she will be ok at home.....so far she so good with that....

i thank you so much for your concern and help....

lynnie

 

she definately does know the difference.....

before she was this bad she would get very nasty with anyone different doing anything for her.....now it's just evident with body language and i can tell she's uncomfortable around others....there is still a home nurse who visits because of the iv medications, and my partner will sort of drift off when she is working with her, sort of distancing herself i guess....

you know, i feel out of place around here a little....everyone here is dealing with a parent or grandparent and i hope i am not out of line or making anyone uncomfortable, i'm just looking for help and understanding like everyone else....

i've gotten so much information from this site for a long time now and it has all been helpful.......