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Padraig........ My Story ........My Wife..... Your Story?????

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Alzheimer's Disease
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Posted 9/6/2006 2:10 PM (GMT 0)
Hi Lyn and fellow carers, I never knew I could feel so tired after the past few days. I have just looked up one of the most testing things I did, to walk 100 miles in 1970 in a time of 19hrs 52 min 21sec. I feel more washed out now and I think this is more mental then physical tirdness. Took Jean shopping to-day as normal a bit painful lifting her but worth it. She's looking good and I'm savouring every rmoment I have with her, they each add a richness  to store in my life's memory bank.

Hope you are enjoying a well earned rest and you get some laughs reading Ch 6. How is your Dad keeping. May your God go with you.    Padraig   

Posted 9/6/2006 6:57 PM (GMT 0)
Dad is doing okay its you I am worried about my friend I am glad you posted.........wow I would not have made it all that way ..........Great for you .......I am savouring every word in this chapter andyou are so right it is so full of humour .......Give G Jean a gentle hugg as well as yourself please......You are an amazing human being and i am proud to call you friend ........Love and God belss......Lyn
Posted 9/7/2006 10:06 PM (GMT 0)
Bump......Hoping you are okay my friend and so is G Jean ........God Bless........Love Lyn
Posted 9/8/2006 4:13 AM (GMT 0)
LYN' i hope u will feel better after this darn bronchitis and pneumonis and pleuresy is gone ...i am proud of cait she is having the highest achievement award please tell her that i said that ok ...she is a very good student and very smart too and i know u r so proud of your daughter who wouldn't lol so u take care and hope wer can talk when u feel better ...love ya franny
Posted 9/8/2006 10:46 AM (GMT 0)
Thanks sis will do
Posted 9/9/2006 2:40 PM (GMT 0)
hope all is well .......
Posted 9/10/2006 3:27 PM (GMT 0)
Worrying about you Padraig and G Jean.....Hoping it is just the darn AOL again .......
Posted 9/11/2006 8:18 AM (GMT 0)
Hi Lyn and you special people. No need to worry looks as though we are back on an even keel. This darn rib is still sore but I can still lift Jean and doing fine running and some exercise. We are inching towards the 24th our 51st wedding ann. There's no control in her body, keeps falling to one side and when I took her out yesterday for a strool I kept having to hold her head up, it falls back. I think she was very tired, must work on her limbs and neck. She has gone a little further down the Alz road, can't complain she's gone way past the stages which are termed as final. I haven't been able to find anyone on the same part of the road as Jean. I read on other sites nothing but heartache and pain, upset at loved ones not knowing them. Am I just lucky that she still knows me? I'm in heaven when she kisses me and becomes all emotional. At last I've finished the final chapter, hoping it's enough for a book. The story of the Alzheimer's years I feel must be written with no punches pulled. How are you doing, I can't understand how you manage to care for your Dad. Has he still got a cast? Must dash, dinner to make ready. You take care of both of you. May your God go with you. Padraig

Posted 9/11/2006 2:00 PM (GMT 0)
I am glad you are finally finished the book am looking orward to the endind Yes you are luckier than most but perhaps Your God believe you deserve this with Jean the love and her still knowing you for all that you have shown and given her.....It isnt easy with dad at times but ......am I to give up I read your posts an I get my inspiraration ........Be well and thanks for letting me know you are okay .........I am watching the 5th anniversary of the 9 11 .....very sad today just as bad then
Posted 9/12/2006 10:31 AM (GMT 0)
Bump
Posted 9/12/2006 2:25 PM (GMT 0)
Hi Lyn and all the special people caring. I have taken heed of the warning signal of Jean's seizure. I talk to her before waking her up, always about her school days, home, friends and family. It's strange how we fail to notice how most older folk look back and talk about their earliest memories. We all know what's in front of us, except I may be nearer it, when future planning appears pointless. At the NH I noticed AD suffers talked of the best and happiest times of their lives, childhood days, no worries carefree, a safe place to get to one way or another. Even now I can look back and find the one place I was peace: in the infirmary of the orphanage, a place to sleep, blot out the world. Therefore I reason if suffering from AD with confusion and stress why not make your way back to a carefree time. Sorry to ramble but it's the mind that requires treatment with comfort and pleasent memories. May your God go with you.                    Padraig 

Posted 9/12/2006 5:49 PM (GMT 0)
I just read an atticle today in Alinfo and it states that all you are doing with G Jean is giving her a better life quality ...the shopping ,exercise ect ......go to resources and you can read this .....am loving and savouring every letter of Chapter 6 my friend ........God be with YOU both ..all my love ........
Posted 9/13/2006 9:44 AM (GMT 0)
Have put the chapters all together and reading as a whole for the first time tonight ......this is so great .....God Bless.Luvs ya both
Posted 9/14/2006 11:47 AM (GMT 0)
Got your email and I will respond later kk I have to get some things done today .had a visit from my dad in his boxers quite the site lol......Talk to you later.......Give G Jean a Hugg for me ....Luvs ya .....God Bless......Lyn
Posted 9/15/2006 11:59 AM (GMT 0)
bump
Posted 9/15/2006 2:40 PM (GMT 0)
Hi Lyn and fellow carers. I'm very tired to day not with caring but outside problems. The nuns of my first Institutions are tough cookies. Their lawers were first questioning the death of the boy I witnessed through poisoning from eating the pods off a laburnum tree. Next they wanted me to name the boy, now they want me to furnish the year of death and his age. This happened almost 70 years ago and they fail to understand none of us knew our date of birth. I only learned mine after age 16, also learned people had parties and presents. I just want to forget those years by writing my story I'd hoped to get it out of my system.
Jean has improved a lot, I think she can see how thrilled I am to have her, as I fuss and dote on her. I thank God to be given this very special privilege to love and care for the first person in life to show me what love was. May your God go with you. Padraig
Posted 9/15/2006 3:04 PM (GMT 0)
I think you will run into alot of this along the way of it being published I am so sorry but thats the laws luv cruel and sometimes made for the wrong peeps ........you need some one to help you with this .......I might have an idea back to you in a bit ....Luvs ya
Posted 9/16/2006 9:34 AM (GMT 0)
  tongue       Well have a couple of ideas actually and worked on one just basically yesterday .....there may be a way around some of this ...keep your fingers crossed that this will work and it IS legitimate so no worries ther ...Luv and huggs to GJean ....God Bless yeah
Posted 9/16/2006 2:16 PM (GMT 0)
Hi Lyn and fellow carers. Lyn do you ever sleep? you seem to always be on the go. Take it easy for you and your Dad's sake. I feel a lot better to-day.One of my problems was my back hurt bad, I think due to lifting Jean before my ribs healed. I'm OK now after two days of exercises, it looks like I'll have to keep them up for ever. Not wanting another restless night I remembered the story of a man twisting and turning, when his wife asked him what troubled him. He explained he owed a sum of money to their friend's husband across the street, telling him not to worry she'd fix it. opening the drapes and window, she shouted across the street. He friend opened the window and was told "My husband owes yours some money and he hasn't got it." Bid her friend good-night, closed the window telling her husband he could now sleep, as it was now their friend's worry. I phoned Ireland last evening and let off steam then slept great.

I'm surprised how well Jean has recovered, I'll have to see if I can get some form of strap to keep her from falling to one side in the w/chair. I strap her legs and waist, now I have to keep pushing her upright. Love and take of you Dad. May your God go with you.           Padraig 

Posted 9/16/2006 2:30 PM (GMT 0)
Yes my dear I do sleep rearely lol
been having horid nightmares about Mom as of late and all this killing goingon in the schools here in Ontario has me sick to my stomache I worry about Caitlyn non stop....Where are these kids parents or perhaps I am being to harsh I just get so angry thinking I cannot even send Cait to school I am not sure if you were a member last yr when she herself was a victim of a bully at the school who brought a gun. She did have to go to court I am proud of her for her courage here it could have been on video or just a deposition ...she chose to face her fears and go to court .......anyways am glad you are feeling better and I love that story it is funny and oh so true isnt it ......
Perhaps one of your ties or a soft belt could help hold her up or would she happen to have one of the old fashioned aprons in the drawer that fit fully across the front come down and tie we used these in some instances in the homes but had to have a doctors order for it of course.........I was wondering if you would email you # number I have free unlimited time on weekends and evenings and I would love to chat for a few minutes ...........if you dont mind ........I am increasingly edgy about my dad and what is going on with him but i tend to keep it bottled up inside maybe so it doesnt seem so real and true not really sure why. My crohns is acting up today due to lack of sleep and sneaking "No NO foods " that I should know by now they will get me in the end lol but hey I have to cheat once on a while right ........All my love to you and G Jean wishing you all the best take care and God Bless my friend God Bless........
Posted 9/17/2006 12:47 PM (GMT 0)
I re sent that email for Great granddaughter.....Hope it works I thought it was so cute .........
Posted 9/18/2006 10:03 AM (GMT 0)
I got your # was sick last night and didnt call but will try this week
Luv you and G Jean
God Bless
Lyn
Posted 9/18/2006 12:55 PM (GMT 0)

Hi Lyn and you fellow carers. Lyn, I see you get little sleep, if I were to do without enough sleep I'm sure I'd not last long with my caring duties to Jean. Do you not get any help? You can't keep pushing your self. It's OK for me I run and work-out it helps with sleep and banishing stress. I find it hard to believe I've gone through the same routine every day, Christmas included for comming up to three and a half years on 1 Oct. Still I look forward to each day I get with her. Although I don't want any help I'll miss our daughter's visits come early Oct when she goes on vacation for 2 weeks. I've been looking at other Alz sites the pain and hurt so many carers are going through seeing their loved ones fade and die. It has a deep effect on me, reminds me of the time I took Jean to see her grand mother with flowers and a present. I told her she was so lucky to have family, where as I was lucky l'd never get to know what awful pain it must be to lose a family member. What an emotionaly barren youth I was, now I can't contemplate losing Jean. My instinct to emotional pain is to run till I drop. We're both doing fine now she's eating well and I'm free of pain. I pray both you and your Dad have the same good fortune. May your God go with you.    Padraig

Posted 9/18/2006 3:21 PM (GMT 0)
I so look forward to our conversations each day you are a bright star in my existence along with my dad.............I know it will be rough on you when the time comes but I also know you CHERISH every second with her.......I also belong to Alzinfo .com I think that you would be a good person to have as well on that sight it is a sad thing to read some of those posts....it is in the resources here on HW......Love to you both am on my way to doctors have not been to well last couple of days .......Take care and God Bless........
Posted 9/20/2006 8:23 PM (GMT 0)
Hi there ......Hoping all is well had a great day with dad at the market he had lots of fun today and ran inot many of his old friends .......Really enjoyed self with him and Cait ..........Take care and God Bless

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