Posted 10/28/2012 10:25 AM (GMT 0)
Background: I have been struggling with my health for about 6 years now and have had many surgical procedures and surgeries.
Whenever I have "conscious sedation" using versaid, Demerol, etc they have to use about 8 to 10 times MORE than for someone my size -- and I still am entirely conscious and aware of what is happening.
Doctors are SO difficult with this issue because when I warn them and say I have difficulties and require more than normal and must be closely monitored, they assume I am drug-seeking. Which couldn't be further from reality. Because of their resistance to believe that I know my body best, I have ended up in several traumatic situations. I have woken up during two surgeries. One of which was when I was getting a chest port (device that is like a central IV for treatments etc). It was horrifying to wake up and have all the blood and pressure and being cut open on my chest where I could see. I obviously was disoriented, screamed, thrashed, and was restrained by nurses and strapped to the table.
Since then, I typically insist on general anesthesia and always talk to the anesthesiologist ahead of time. EVERY surgery the anesthesiologist tells me and my family that he had to use FAR more anesthesia for someone my size to keep me under and instructs me to tell my next anesthesiologist that I have this issue (anesthesiologists seem to be the only doctors who believe and act upon the information you tell them from previous experiences)
There has GOT to be a medical, and logical explanation for why this is happening to me...
I am BEGGING that anyone who knows about this to help me. I strongly believe there is some type of blood test or DNA panel that could "diagnose" this and be information that I can empower myself with and show future surgeons and doctors to better understand and not end up in the horrifying situations I have previously.
PLEASE help me find the proper path and direction I need to be on to never suffer this way again....