just so tired

Coming up on 3 years of on/off unexplained physical symptoms, tests, specialists, ssris, mris, unexplained brain lesion, derealization, unintended weight loss/gain, anxiety....

and I am just so tired. I don't feel like it's asking a lot to be healthy and well.

I'm just really really tired. And I wish I knew what to do next.

You are searching, and you will find, hang on and never give up, you will find Peace!

We are Praying for You.

Larry ***

I'm so sorry, searching1. I get it. Sometimes it can be so overwhelming to try and get to the bottom of things. I am still in the diagnostic stage of some major health issues that I've been dealing with for years. It seems it will never end.

This is what spiked my anxiety, and sent me here to talk with others who get it. Keep posting, and we will walk through it with you.

Thank you all so much. Your support & encouragement means a lot to me.

It can sometimes feel like this will go on this way forever. And having "real life" stuff like a house to clean and kids and work, etc. makes it seem so much harder.

Hi sknight.
I have had several Lyme tests (blood & spinal fluid) and Lyme co-infection tests. All came up negative over these 3 years. I even paid out of pocket to see a Lyme specialist just this past February, but she said she felt it wasn't Lyme and the blood tests she ordered came back negative too.

I have not done testing with Igenex, but those tests are sooo expensive. I've exhausted our funds with countless MRIs, EMGs, specialists and a spinal tap.

Searching1,

I got false negatives on my initial lyme tests (western blot, elisa). Then I found a lyme literate naturopath who had me take a few drops of teasel root tincture under the tongue for 30 days, then we re-tested, and that's when the blood work showed positive for lyme and co-infections.

Apparently, many docs don't understand that because lyme bacteria is corkscrew shaped, it doesn't travel very efficiently in the blood stream. Which means, it very quickly leaves the blood stream and burrows into the tissues. Teasel root is supposed to draw the lyme & company back into the blood stream where it can be picked up on blood tests. My naturopath said its even a good idea to take teasel root tincture for 30 days prior to doing a DNA type test through Igenex because it will help it show up on the results.

If you ever consider testing for it again, I would encourage you to do the teasel root tincture for 30 days prior to testing... and the same for anyone thinking about initial testing.

I understand about having exhausted funds on all the tests you've had done. I'm in the same boat. I've probably spent $30k+ on doctors and supplements over the past five years on this crap. All out of pocket. My savings and retirement money from the 15 year career that I had to resign from is gone. I moved back into my parents spare room last year (I'm 44 years old) and am trying to get disability approval but, even that is looking bleak. Bankruptcy will be next, if disability is denied by a judge at a hearing that I've now requested via an attorney.

I can empathize. :(