Anyone have this? If you have it, did it respond to Anti-TNF alpha medications? thanks!...
starrnr, was methotrexate added specifically for your AS? did you find it helped your axial symptoms?...
my diagnosis is based on negative lab work, HLA b-27 +, SI and back pain. 12 years ago I had an episode of tailbone and neck pain that lasted 18 months. Will have MRI of SI joints next week....
ok, my rheum just said - you have severe AS, and if you're lucky and respnd well to tnfalpha inhibitors, you may be able to do activites of daily living. ??? Ive had SI pain and back pain for 4...
yes ginny, i think your problem sounds similar to mine. what gives? I've actually noticed the problem off and on for 9 or 10 years, but its been very mild and intermittant. I really didnt have back...
hi all. im 34 nd just got diagnosed with AS. Ides, we've messaged before about AS i think. my question is: does anyone here with AS get tired hands really easily? doesnt matter what im doing, if i do...
im ok now. not sure what that reaction was. about 5 minutes after the shot (which was no sweat!) i got a little back ache and a sudden rush. then queezy, burny, and funny feeling for the rest of the...
anyone here have a reaction to enbrel (not the skin reaction!)? i just hade my shot 3 hours ago, and from the moment i got it have felt a little queezy, flush (my ears burn), slightly itchy (but no...
its so freaking bizzare isnt it? looking back, i recognize mild intermittant symptoms i have had of AS over the last 12 years (kidney stones, "tailbone pain" once 10 yrs ago, that fatigued/heavy...
thanks ides, the slogging through mud analogy is perfet, that's exactly how i feel right now. my limbs are just heavy. how long have you had AS? how often do you have flares and how long do they...
I've got bilateral SI joint damage on XR, and a moderate amount of pain there that has come and gone for years. Im HLA B27 positive. HOWEVER, 3 months ago, I developed crazy symptoms, and am cusiour...
the problem with the immune sytem is that it is both too strong and too weak. our immune system regulates itself through a myriad of chemical pathways that tell it when and what defense to switch on,...
I got shingles during (and because of) my last prednisone treatment. It hurt alot for a couple weeks, and produced nasty scabs (that healed totally). I started valtrex too, and had no problem with...
my doc seems to be giving me a choice between the two. id feel better if he would just tell which is safer, or better tolerated straight up. anyone have any insight into this? yeah, yeah, im gonna...
heres what ive discerned about crohn's and arthritis: 1. CD sufferers often get "peripheral arthritis" associated with their CD flares. This can occur in many joints simultaneously, and on either...
other options to help with a bad c diff infection include adding a second antibiotic, by mouth (prefereably, just like the vanc) or IV (only if you must), or. . . drum roll. . . stool transplant. im...
i got teetiny little red bumps on my arm chest as my current flare came on. they itched, never broke open or anything. to be honest i think they were related to seasonal allergies?...
one more question ides, i know you're supposed to exercise with AS, but does that make the enthesitis worse? stertching and exercising just seems to egg mine on!...
so ides, did your enthesitis onset coincide with a flare? do they get worse with flares (i kno AS can take on a life of its own with respect the CD) for me its affecting literally every joint in my...
17 years? wowzer. its hard for me to imaginge going 17 years feeling like i do now.. do you have crohn's colitis only, or small bowel disease too? ever have fistulas or abscesses, or just the single...
thanks ides. i appreciate your response. seeing rheum md next week....
potatoqwn, is yours arthritis (peripepheral arthritis,in the joints themselves) or inflammation of the tendons (enthasitis)?...
does it seem to get better or worse as time goes by? have any of you been diagnosed with or have symptoms od ankylosing spondylitis?...
mine seems to be hands and feet at the same time, both sides. ides and blue meanies, do you guys have colonic involvement? does it affect all your joints at the same time or just some? do your...
anyone here get enthesitis when they flare? wsnt sure what is was until i looked it up today. it describes me perfectly. its pain around joints where tendons insert. I have it in my hands and feet...
potatoqwn, did you have any luck with other meds before humira? where is your disease located?...
unfortunately, ive already got colon disease, at least if the ct is to be believed. and i believe it because of the location of my pain. i gues what im driving at is, do fissures herald more advanced...
does anyone here have fissures without or perianal disease? or do fissures imply its only a matter of time. . . question#2, for how long have people found remicade or humira to be effective?...
no sbft, but capsule endoscopy was bland, or so im told....
what is wrong with me? i've had symptoms of D and burning abd pain for 18 months, as well as fissures that come and go. a ct scan showed colon/ti thickening typically associated with crohns. crp was...
Im going through the exact same thing right now, only I cant get below 30 mg/day. My whole abdomen gets sore and a little prickly? Even at 30, things are not super. Im going to chat with the GI this...
my understanding is that the entocort may not help the entire colon. The mesalamine should though, and a person can take as much as 4.6 grams of that per day. Ask your doc if your mesalamine dose is...
im slowly losing ground on the 30mg/day. I guess I'll talk with my gi about starting something else. Is Imuran always the next step? Was anyone here able to get off a long pred course without an...
I startd pred for a flare 4 weeks ago. 40 mg daily. Super response, though not 100% symptom free. Problem is, I cant even get down to 30 mg without return or worsening of symptoms. Are some symptoms...
MRSA is old news. Penicillin resistant Staph developed within 5-10 years of the invention of penicillin (in the 1940s). We made Methicillin to get around that in the 1950s. Within 5 years MRSA...
its amazing to me, the variety of experiences people have had with it! I dont mean to sway people one way or the other. I know everyone is different, anatomically, and prone to experience the...
I know it comes up from time to time, so I tought Id recount my experience yesterday in detail. Hope it helps those of you who are contemplating one without sedation. Im a youngish male, with no...
I did the fleets phosphosoda thing a couple hours ago. Im sure some of you know it, the one where you put the flavor packet and minibttle of liquid into 12 oz of water, drink it, then repeat the next...
Your family doc can also do an office procedure called anoscopy to look for fissure/ulcer/roids that may be the source. Its a clear "funnel"-like device, a couple inches long. You get the idea....
Im sure this has been explored on the board previously, but has anyone heard of credible evidence of an association? I read there was a study that was going to be published at some point that looked...
Im on pred (2nd week, 40 mg) and asacol. Felt alot better first week, now im going 2-3/day, with mild abdominal discomfort off and on. Is this typical? Has anyone here tapered off pred successfully...
I have a brand new bump on my hard palate. Its red and little sore. Its not an ulcer though, and there's only one of them. Anyone ever have anything similar?...
* you need. . . . the magic pill cam. And/or IBD serology. ...
Has anyone had problems with fissures for a long time, without ever having fistulas or abscesses? Or do fissures mean abscesses and fistulas are in the works for sure? I wonder because I keep getting...
Radiologists are MDs. They interperet the tests themeslves, that is their whole raison d'etre. He told you exactly what he should have, that he didnt see evidence of crohn's on your test. It might...
bo, Other tests to consider are: 1. a small bowel follow through, or a CT enterography to look for IBD in the small bowel. 2. IBD serology testing. It is said that these tests are now 80-90%...
This all sounds alot like me. I dont get cramps or bloating though. I get a burning sensation in lef tlower abdomen, occassionally on the right, almost a gnawing feeling. Its never that bad, but it...
Can any of the guys here tell me what their symptoms are like?...