Your too sweet, thank you TayIsa. :tongue: :-) :smilewinkgrin: :wink: :turn: :turn: :turn: :turn: :turn: :turn: I'm feeling so much better mentally now thank you, got over all that 'feeling sorry for...
Wow, what can I say? I know that this whole site is a 'god send' but you guys really are sweet. You helped by just replying and reading your posts actually but a smile on my face today, so thank you...
Hi everyone, I'm a regular user of the RA site and the people, advice and support are wonderful but I just thought that as I've been in constant pain, 24/7 for the last two years I would ask for some...
Hi guys, On Wednesday this week I had an injection in my ankle/foot to help with pain, not only was the procedure dreadfully painful in it's self, but 4 days later and still in more pain than I had...
Jo, Your not horrible at all.....I can understand that it's good to hear that your not alone and somewhere someone is suffering the same things as you. Maybe like you are already you can swap stories...
Hi Loomis, I'm so sorry to hear about your wife and all the problems she's having, must be a very difficult time for you both? I was on Humira for over a year, but suffered none of those side...
Hi Medieval Peasant When I was on Humira (for about a year) I chose the syringe over the pen as my specialist said if I was someone who wanted more control it would be better. The pen apparently you...
Gosh you two (Jo and CaMama) sound like your really suffering at the moment you poor things. I'm two weeks away from my next remicade infusion and so feeling it right now, I get about 2/3 weeks...
Hi Jo, Could help but chip in on your discussion re: patches for pain..... I've tried them and they did nothing for me, Jax I understand if my memory services me well tried them and they were great...
Why don't you tell us more and get it off your chest. A problem shared is a problem halved. Peggy...
Welcome Spiritguide, You've made the first step by telling us a little about yourself. Keep posting and letting us know how your doing, what's going on meds wise, or ask for any advice here. You...
Hi, I'm not sure where your from but in Australia once applied for from the specialist I had my script s in my hand within 2 weeks. It course could be a completely different thing in other countries....
Hi Honeybee, I've been taking Mxth for 18 months now for AS. Last November my blood tests came back very high so I was taken off it straight away. I noticed a downturn in my condition by not being on...
Dear Jax, So pleased the move is over for you, now all you have to do is sort everything out in it. :smilewinkgrin: Sorry about being in pain though, but I'm sure even you think it's worth it. You...
:smilewinkgrin: The first wednesday I'm available would be 10th March. I've got perth then Hamilton Island inbetween then and Jax you have the move and Jo you have your appointment. Gosh how...
Jo, I'm in Perth next week so wouldn't be able to meet up with either of you. :tongue: Having said that it does sound like a good idea don't you think? :idea: How wonderful to put a face to the names...
Hi Libby Your more than welcome with any help I/we can give you. I know what you mean about talking to husbands, they do worry so much when all your doing sometimes is verbalising/sounding off on how...
Welcome Little Libby, I too have been taking the fish oi. for some weeks and feel you just have to try what you can these days. Doing the medical route is what we all have to do, but it doesn't do...
:tongue: :tongue: :tongue: :tongue: GOOD NEWS AT LAST.....The results for hubby came back clear and o.k....he has two very large cists on his thyroid and will have to take meds for ever and a day,...
Hi everyone, Well I've just come back from the Rheumy, wish I had some good news but I don't... :shakehead: Seems that not everyone was at the meeting last week, so those that were there said they...
Jax, I forgot to say hope all goes well for the 20th, and be careful you don't over do it with the packing, cleaning etc. A shiny new house with a new kitchen to play with :yeah: I wish I could close...
Well it happened again, wrote lots and lost it again. Jax, I'm going to read up on that drug in case it's mentioned on Monday. I'm sure that medicare won't take too long, they don't usually? and the...
Hi guys, Firstly thank you for all your kind thoughts and concern. He had he's biopsy and came out smiling (mind you that was because he was numb!) he said that the doctor took a lot of fluid and...
Hi gonuts, I'm not a moderator but do have AS. It took 6 months to find out what was wrong having had anti-inflammatory drugs, physio, and much more through my GP. I got to a place where I insisted...
Guys, Don't you just love it I'd written a huge post and just lost the whole thing.... :cry: Jax, we don't know what the growths are that he has hence the biopsy on Wednesday. He went to the Nuclear...
Jo, seems there's no let up with the headaches then? How do you cope and do they come on the same day each week? prednisone is not something I'm very familiar with but it sounds like it's a bugger to...
Oh Jax I'm so sad to hear your not only in physical pain but mental pain as well :shakehead: It's all so frustrating and I fully understand you not being happy. I've often talked with hubby about the...
Jo, great idea to start another post off, wow we all have a lot to say don't we :smilewinkgrin: . Jax, so glad you got the paperwork for the sticker, if only half filled out, don't you just hate that...
Jax, I like you didn't want the walking stick, the car sticker etc, I've had my head buried in the sand so far down on all those subjects BUT I have changed my mind on all that, my husband and boys...
Hi Camama, Hopefully (ha ha) it's only medication, but to be honest I was in shellshock as everytime I've been there its something else on top of the list of things/medications I take on a day to day...
Hi Camama, Welcome, nice to see new people join in. all one big happy family here sharing our days good and bad. Look forward to hearing how your days are going. Peggy :smilewinkgrin:...
I hope you don't mind me joining in, but on reading this site (the eye problem caught my attention) I just thought that I would relay my story. I have AS and started two years ago with Humira and...
Oh Aaron, I so know what you mean about the cane, I too have one but only within the last month or so. My boys (well men now) take the micky out of me all the time, but in a good way. The lastest...
:smilewinkgrin: o, once again so sorry to hear your reaction with Humira, you girls certainly do seem to be put through the mill with these drugs :mad: Hopefully the result is worth it afterwards....
Jax, I'm so sorry your having these reactions with remicade, my heart goes out to you as I know it's difficult enough having the drug without these complications. I've only ever had complete...
HAPPY AUSTRALIA DAY ONE AND ALL...... :smile: Just getting ready to meet the family in the city for a fun filled day of togetherness, food and drink..... :yeah: I hope you all have a wonderful day...
The welcome changed was sudden where we are, one minute it was 38C with 30/40k gusting winds, the roads were full of branches and bits and pieces and I had to miss quite a few objects, which was no...
Hi one and all, Love the nickname 'Jax' :tongue: Funny how people shorten names. Obviously mine is Mags short for Margaret, but only my mother ever called me that, she hated it when people called me...
Wow, you two were up with the larks.... :tongue: Good idea about the chair base ones, I'll try anything. Last night I was in so much pain, aches all over and felt dreadful, so I had an idea :idea: to...
Wow Jacqui.. What a lot you did, I was exhausted just reading it all. :smilewinkgrin: No seriously it sounds like you had an awesome time there with the children and congrats to your son, how proud...
Good to hear your alive and well... :tongue: Look forward to hearing your news. Take care Peggy...
Welcome Red Queen, I think the purpose of the 'into' is to talk a little about yourself? So don't be shy :blush: tell us what brought you on here. What are your symptons? Do you have any questions?...
Hi Jo, Glad your weekend went well, what I can't understand is that Sydney had such wonderful weather! We travelled down home (south) on Wednesday afternoon and hit rain and cool temps on the way and...
Hi Lynne Welcome to the site and don't despair..... Your feelings are normal, I can say that as I experienced the same things when I was told I had AS and started taking the Mxth. It's just that you...
Ivy, You too kind, thank you for posting that on here, I'll give it a go at finding it and will let you know as and when if I've found it and it's been of any use. It's so difficult as they say...
:wink: i girls, Well I've made a big decision this week!!! :idea: I've been in pain for 2 years straight, the back is better with remicade infusions (although not quite so much this time without...
Hi Jo and Jacqui, How strange life is?? I've been suffering terrible headaches, neck ache myself for the past 4 days which I put down to the increase in my diabetic meds (I don't have diabetis but...
Hi Penelope, As Jo said 'never been afraid to ask any questions here' I've always found someone has a comment to make. I had all my bits and pieces taken away when I was 35 (19 years ago) so can't...
Welcome MissRudy, You couldn't have come to a better place. As for finding the right balance it takes a while, so try and be patient (we know it's hard). Stick with it and don't worry you will find...
Hi Jo and Jacqui :smile: Well where to start, firstly by adding I'm glad I'm not the only one with 'brain freeze' as my other half calls it. Do you think it's the drugs we take or just our age?? We...