My brother has diebetes and is going on a primitive camping trip for about two days. What do you do with insulin to keep it from spoiling? What do you do for weeklong trips in the wilderness? thanks....
I wonder if Crohns and GI disorders are as prevalent in small towns....
Its not working . . . . . I'm only taking one tiny pill at night. My doc will probably increase the dose....
/community/emoticons/shakehead.gif For the last 6 months (with the exception of about 4 weeks) I have been dealing wth intense chronic diarrhea and lots of blood in it. I was hospitalized and put on...
Well, I guess I am afraid of being always dizzy or unable to think or remember things....
Hi, I have been having what seems to be a flare with regards to symptoms--lots of blood, tons and tons of diarrhea, stomach pain. Anyway its been going on for over a month now. I tried accacia fiber...
Hi, Sorry to hear what your going through. Iv'e had this disease for about 5 years now and still there is no treatment that has worked. I have no insurance or job so I get my meds, if their...
antibiotics and stress...
I have been on humira since april this year. Started right after quickly getting off prednisone (I HATE prednisone). The humira does not seem to be working for me yet. I may have to go on a shot...
Has anyone had success with biologics to such an extent that the med got rid of your diarrhea and blood?...
Thanks everyone for your thoughts. I did not think I would create such a large number of posts from my post. It seems to me that we all have different kinds of colitis. Maybe as many as there are...
Is there anyone on this forum who had never taken antibiotics prior to developing Crohns disease? It would be interesting to know....
I have been thinking lately about the whole argument that food somehow induces disease activity or controls it. It does not make sense to me since I lived for 20 years without any symptoms from food....
Is there anyone on the forum who has failed Humira and had to go on Natalizumab?...
Well, I still have intestinal bleeding and it is getting worse. Humira does not seem to be working. My Doctor is going to do a flexible sigmoidoscopy to see whats going on. I hope I can get this...
Well, I finally started Humira on April 8 and now I am back to having lots of bloody diarrhea and my extraintestinal symptoms are returning. I have been told that it can take up to 3 months for it to...
Definetly ask your doctor. If you know a dietician he/she would be even better to ask. Also you might look it up on the internet. MAybe a phrase such as drug and nutrient interaction....
Thank you everyone for your input....
Mine went up immediatley after my first injection of solumedrol (IV prednisone). It is very common for this to happen while on corticosteroids. Make sure that you discuss it with your doctor....
If anyone is able to eat a balanced diet while having crohns please share your story....
I started Humira on April 8th and SURPRISE! I am getting worse! My doctor insists it is IBS but I have all the symptoms of a flare. Has anyone taken Humira and it took a while to "kick in"?...
Interesting discussion. I have been having the same experience with greens. Are any of the people posting on this topic taking PPI drugs (Protonix, Prevacid, Prilosec, Nexium, etc.?). I am and I...
I was never vaccinated for anything and I got Crohns at the age of 21. It all started a year or two after I was on antibiotics for 6 months for strep throat. I think the disease is all about the...
I spoke with a lead researcher, Dr. Fernando Velayos of the University of California-San Francisco, and he told me that researchers are looking at the possibility of combination therapy using more...
Yep, its for my crohns disease. I am definetly going with the syringes. Thanks everyone for the input....
Thanks for the input everyone. I am going with the syringes. My brother has diebetes so I have been around syringes a long time....
If anyone is taking Humira please let me know if they prefer the auto injectors or syringes and why. Thank you....
I think we will see that it is bacteria that is at the heart of this disease and many others. It is most common in industrialized "steril" environments. It has picked up the more we employ...
Anyone on Vedolizumab? If you have not heard of it, it is a new biologic drug that is undergoing phase III clinical trials right now everywhere. It supposedly is not supposed to inhibit systemic...
Yes, I get peace of mind from music of Johann Sebastian Bach. Not quite what you all are talking about. :)...
Has anyone reached clinical remission with this diet while being completley off medications?...
I will be storing 3 months supply at a time since I am going through the patient assistance program....
hmm. It seems so easy to make a mistake and destroy the medication. Am I overreacting? Is it really complicated? Do I have to constantly check the temp?...
Do you need a special refrigerator for Humira? It says you must store between 36 and 46 degrees. My large fridge is always fluctuating and I have no way to know what the temp is. Any suggestions?...
Hi, Does anyone have any suggestions on how to come to terms with the fact that I have this disease (Crohn's disease). It overwhelms me sometimes to think of what I [b]may have to go through. I am...
Has anyone felt like they were despairing over what to do about their Crohn's disease? My doctor wants me to go on the TNF blockers (Remi or Humira) and I am scared to death. I have read all sorts of...
Hi, Has anyone tried any alternative remedies for Ankylosing Spondylitis? Does anyone know where a good source of info is about alternative treatements for this disease? Thanks....
It's a strange med. It works differently for all. It was not working at ten pills daily, but almost as soon as I went on twelve daily (500 mg each) my disease seems to be in remission. WhenI went off...
I have been on omeprazole for about 1 and 1/2 years and I am getting concerned that I may be producing no more acid. Without stomach acid how does one digest food? I notice that if I eat anything...
What is considered clinical remission? :confused:...
Hey, Has anyone achieved remission of Crohns disease through Pentasa?...
Anyone ever been on a clinical trial using diet to treat crohns? I am looking at one right now, but would like to know if anyone has tried it....
Anyone know where to purchase Modulen IBD. I think it was discontinued in the US. Thanks. :confused: :confused: :confused: :confused:...
Any adverse reactions yet?...
I spoke with a very well known crohn's researcher who told me to keep watching the research being done on mycobacteria. He seems to think it very promising. It seems that a lot of people who have...
Humira since it is less likely to be rejected by my system. (Remicade is part mouse)...
Here is a question that deserves some consideration, Why do TNF blockers eventually stop working in some patients? To me this indicates that their must be something else triggering the disease such...
My doctor is one of the doctor's doing this. He taking from Penasa straight to TNF blockers. Thanks for your reply....