Hi weary. Ok well I have been and still am on methotrexate. I'm seriously debating if its even working for me at this point. I'm flaring and in pain constantly. Now where I can deal with pain, this...
Ok well I had to share to this. I have been dealing with this disease for 35 years...I'm 37 by the way. I went on disability because now, the disease has eaten so much of my bone its a wonder I can...
Thank you all for your replys. Weary - no worries it's nice to see I'm not the only one with a dopey doc. I just dont get it. These doctors are supposed to understand when we say we dont feel good....
My doctor writes me today and informs me that my CRP is high (10) which shows inflammation in the body. I ask him what my sed rate is because having had this disease for 35 years, thats what i always...
Hi Gabby - I have had Arthritis for 35 years. I'm 37 and was diagnosed at 2. I have been on and off prednisone for years and my personal experience: Putting you on a high dose than tapering you off...
Hi Jenny....I have had Arthritis since I was 2 and am now 37. I also have a 7 year old daughter so I understand your frustration. I have been on so many drugs cant count, but lately im on...
Was just in bed and got up to get a drink, and had another "thought" that worked well for me. When I started to flare again, I went out (on advice from my aunt) and got the sleep foam beds. the one...
Well, the good thing about having it this long is, I learned to deal very young in life with pain. I dont know life without pain so its not like I'm missing it. As in your case and many others, you...
I'm sorry your having such trouble. I agree with golitho, its the fluid. I have had JRA for 35 years and morning are always the worse. However once your meds kick in it should help. I always have...
Thank you both for your reply. I am a fighter and I do try to stay strong. I just need to vent too because every once in a while....I just cant take it. I'm sorry to hear you both are suffering....
I'm just having a bad 2 years and its only gotten worse. I have Juvenille Rheumatoid Arthritis. It's like normal Rheumatoid Arthritis except I was diagnosed at age 2. I am now 37. I have dealt with...
Thank you both for you answers. Beckey, I'm sorry your hurting and I hope you feel bettr soon. Morning stiffness was always bad for me. I found after a hot shower, that would always loosen the joints...
I have juvenille rheumatoid arthritis. I go by what my sed rate is.....always have always will....to tell me how bad my flareups are. So when I flipped at my doctor that its high and I'm in pain and...
I] Ok just venting out my thoughts on the yawners. Niki ...
My doctor just sent me to an ortho and told me I should have ankle fusion done. Has anyone had this done? What is limitations? Will I be able to run again? How long is recovery? I have researched...
Thanks for the replies. I had my first infusion. They did give me benedryl and I'm already on Methotrexate and prednisone. Made me very tired...didnt read that as a side effect but it happened....
thank you all sooo much for your responses. I have been so nervous. My nurse assures me its fine, but this is the first time I'm having a IV and i guess I'm just a wreck. I pray that all of you are...
Hi. I came to the Crohns Disease forum because someone suggested I may get the answers I need. I have JRA had it since I was 2. My doc has decided that I should try Remicade. I have read so far that...
My doctor is starting me on Remicade tomorrow. Does anyone have any success stories or failures with this medicine? Any side effects? Any input would be appreciated. Hope all of you are well. Niki...
Hey] The bad news is, its gonna be 33 here today with the wind chill making it 28. Oh and we are expecting 8-12 inches of snow....can you say PAIN!!!? lol Yes the north stinks, but my daughter loves...
Hi Bella. Well, I have learned the hard way. Never take one doc's word for it. Go to you GP and ask for a referral to a different specialists. I was with a rheumy and had some new pains, all of a...
My orthopedic recommended that I have ankle fusion. They will not do joint replacement since I am so young. I have gotten several opinions and they all agree that ankle fusion is my best bet. I'm a...
Hi Kibbles. Thought I would share my experience too. I have had JRA sinceI was 2. I have been on and off prednisone for years. The highest dose I've been on is 100 mg a day. That was because I flared...
Just wanted to get on and say a quick thanks. Thanks for being there. Thanks for letting me vent. Thanks for the support and hugs. This has been a blessing for me to find other people that share in...
Thank you both for the gentle hugs. I've been trying to rest and relax as much as possible. One date at a time right? Its nice to know there are friends out there...GB...
Ok I'm just soo not having a good day! Yesterday my Aunt and Uncle came over and we worked on my yard cleaning leaves. Should I have said no? It is my yard. So I worked and worked. Today takes me 40...
I have been taking Methotrexate for a year. 6 pills once a week. I just recently switched rheumatologist and learned that the Folic acid is to help the folic deficencies the Metho takes away. My new...
Thank you both for your kind words. I'm trying to do my best. I just feel like no one gets it and I dont want to be mean, its not my way. Like today for instance, my aunt and uncle came up to help me...
I was diagnosed with Juvenille Rheumatoid Arthritis at age 2. I am now 36. For the many years I have had this, I've been on multiple drug treatments, physical therapies, doctors, and NEVER have I...