just diagnosed with autoimmune epilepsy related to VCKG. anyone has this before? its horrible started going crazy and my neurologist has never treated it before so she has no idea how to help me...
okay so in addition to having this rare form of autoimmune epilepsy and muscle twitching caused by anti voltage gate potassium antibodies i have antibodies to centromere. i was negative for...
after two years of misery and barely being able to walk upstairs im doing much better. i started a protocol where i do probiotics, vitamin d, magnesium as citrate or lactate (not oxide) a high...
i was given mega doses of cipro for a month and i have never been the same since. i never thought that antibiotic caused my problems until the rheumatologist asked me if i ever took it and i remember...
two years of chronic agony, muscle pain, arthritis, etc etc. i was 26 a competitive swimmer and athlete when everything was lost. all of a sudden an EMG showed polyneuropathy, i had carpal tunnel,...
it really sounds like that kind of vasculitis with the high EOS and the ANCA and ur asthma. but again im not a doctor so i cant be sure. i would bring it up to your doctor though. Also i would ask...
thanks i was diagnosed with polyarthritis and fibromyalgia but i do have alot of symptoms of scleroderma. im trying to get that ruled out with a new rheumatologist in dec. hope i will be okay . oh my...
also check for antiphospholipid syndrome and get your blood clotting factor checked. !!! see if they did that. hopefully all will be fine. also if your not already try detoxing it gets rid of...
sounds like churg strauss since u have the high eos. check with ur doctor there is treatment for it. dont worry you will make it worse. i just got tested for it last week and my eos was normal anca...
thank you i am trying to find a different lyme doctor. i wasnt told any of this information. i will try the on for three weeks off for one week idea. i was having a reaction to something and my skin...
well it could be blushed for other reasons as well. my face looks like that and i have positive ana and i was negative for lupus. i have mild raynauds too and my ana was nucleolar for scleroderma. so...
is it a bad idea to go off my antibiotics and go back on? i was having ana 1 160 and i got it down to 1 80 its still the nucleolar pattern. only my igenex test was pos cdc was neg i wanna go off my...
okay so my question is that if ana can be negative after being positive does that mean the illness is gone? i mean that means no more antibodies correct? the ana 1 80 is something that i should...
okay everyone so i got my new blood test and i had the ana 1 160 but now its down to 1 80 its still the nucleolar like before. okay so i started on a detox diet and i got my sed rate from 41 to 11...
sorry i was asking because theres a vasculitis called churg strauss and it has to do with high esinophils/ allergies and sinusitis. theres other kinds of vasculitis too but the ANCA is a test for...
the anca is for vasculitis. do u have any thing like a rash or spots on ur skin? also do u know what your esoinophils count was and if you have sinus issues? i had an ANCA and mine was neg but also i...
Hi everyone i have muscle and joint problems and vascular issues. i had an ana 1:160 in june it was the nucleolar pattern. at that time i didnt have any antibodies and everything was normal except my...
my first was mac lab only positive was 41 then i went with igenex and i got the results i posted above which was a positive test. i heard on igenex 31 and 34 can cross react with epsten barr and...
forgot my lyme test was as follow 31 +++ 34 + 39 IND 41 ++ 58 ++ 83-93 IND...
oh gosh i bet im the only who who wants to have lyme disease right now. I saw a tick in my apartment 2 years ago and i had been bit by fleas i had a CDC neg and Igenex positive lyme test. but i have...
oh i forgot to mention i called him in tears the other day thinking i had scleroderma and he was misdiagnosed me and he told me up till now there was no sign of scleroderma but time would tell. my...
I have started with chronic pain and a butt load of health problems for 2 years now. Used to be a competitive swimmer and super athlete. This all started with chronic sinus infections from swimming,...
thank u they started me on a bunch of antibiotics but i throw up if i take them all. how many is normal to take at once? they had me on biaxin 3 times a day doxcy twice a day and ceftin is this...
igG band 31 +++ band 34 + band 39 IND band 41 ++ band 58 ++ band 83-93-IND igM band 31 IND band 39 IND band 41 ++ band 58 + band 66 + band 83-93 IND does it sound like i have lyme? i also have ANA 1...
i had two tests for lyme the first was through MAC lab which said negative the second through Igenex. the LLMD said it was igenex positive and CDC negative. I also have a pos ANA. Should i continue...
im so confused about my blood test and diagnosis. ive suffered intense chronic pain for 2 years now it started in my upper back and shoulders and then went to my hips, elbows, wrist, ankles and knees...
good luck. i would take the above posters advice lol. i have sacroilitis as well but its due to ankylosing spondylitis and poly arthritis from an auto immune disorder. mine is nothing mechanical. the...
okay sorry i have another question.. i was told that the fleas can carry bartonella. im currently on ceftin... will ceftin take care of bartonella as well? i have no idea. 6 months seems a long time...
can lyme be treated in the late stages with oral antibiotics or are the iv antibiotics needed? i have mostly cognitive issues and lyme arthritis. my llmd is treating me with oral antibiotics two...
i quit my antibiotics last week cuz i developed a yeast infection that would not go away. i finally got rid of the yeast. if i go back on after a week of stopping will i not be cured from lyme or...
whens the last time u had an mri or xray on it? if there was any kind of nerve damage from the spine then you could have the incontience. but i would think that would be more low back... is it just...
Hey there!! You SHOULD get the HLA B 27 test. its a high indicator for developing Ankylosing spondylitis and it also is associated with reactive arthritis and arthritis related to bowel inflammation....
sounds more like arthritis or another autoimmune that could cause polyarthritis. now ppl with autoimmune can get secondary sjorgens. but the sjorgens main symptoms are dry eye , dry mouth, dry skin,...
Well English first of all reactive arthritis can take a year to go away. is it swelling in the synovium or is it tendon swelling? I got the diagnosis of two auto immunes i have the hla b 27 gene and...
OMG. i feel like Mrs Rice Krispies over here. Every joint thats been effected with the arthritis after about 6 months of the inflammation everything pops and cracks. if i squeeze my shoulders blades...
i heard minocycline can be good with RA . alot of rheumatologists will prescribe it. But if you want to try it id defeinetly take loooots of probiotics and eat yogurt cuz you will get a yeast...
no but i was going to ask my doctor about that exact combination. I am just on sulfasalazine. i have an interesting but stupid case. I have the HLA B 27 gene and spinal arthritis so i have the...
ughh i hear ya sister. I was given the ankylosing spondylitis diagnosis as well and im 28. Ill try to help you with what im doing but i will tell you my story first. I actually was just diagnosed...
thank you.. i didnt know all the ways it could be transmitted. i will ask my ob to test me this thursday and if they cant ill ask my rheumatologist. do you know what the main symptoms are and what...
im wondering if i might have hep c cuz my blood test showed one elevated liver enzyme AST. and high wbc count. also a year ago i had intense itching all over my body lasting three weeks. i dont have...
Hi there, I just recently went to see a rheumatologist for my chronic muscle and joint pain that has gotten much worse over the course of 2 years. I had a ANA nucleolar pattern 1:16 and the HLA b 27...
Did anyone develop rheumatoid nodule with lyme ? My problem is I smashed a tick two yrs ago and I am sure I have lyme but I a lso have the hla b 27 gene which causes autoimmune disease and arthritis....
I was told I had fibromyalgia for like 1 year now I found my rheumie thinks I have seronegative arthritis based on my hla b27 gene. I was promised there would be no permanent Joint Damage between now...
Does anyone know a place where they can look at my blood under a microscope for lyme bacteria instead of using western blot ? Please help I live in indiana...
my rheumatologist report could this be lupus? ANA 1:16 nucleolar pattern HLA b 27 gene RA factor 15 iu/ml absolute netrophils were elevated WBC count was 14.7 (normal 3-11) all antibiodies tested for...
and my joint pain so far the swelling is tendonitis and bursitis but i dont do alot of moving around anymore and its in literally EVERY tendon that swelled. both elbows, ankles, knees, shoulders,...
hi everyone i do have a lot of pain in my spine it actually started in the neck and shoulders and went to my hips. but i also have joint pain as well. i did some research and the nucleolar pattern is...
im so confused and frustrated with these doctors. so far nobody has been able to help me or find anything to make me feel better. i was looking at my test results and here they are Rheumatoid Factor...
i have a question is it possible to have adult onset celiac disease? i made a post already in the lyme topic and the rheumatolgy one. i was trying to figure whats going on with me. my main complaints...
oh thank you guys for all your support. i figured with my long post nobody would read it lol. im just so desperate to have my life back. before this mystery illness two years ago i was a very good...