Yep, I have sero-negative RA and even my sed rates are normal. Of course I am only puffy for Dr appts. and only swelled a lot privately. I think one of the best remedies for RA is a rheumy appt. I...
Hello, I have RA and have never had a positive lab result. I can flare anywhere and do have more in the lower half of my body. I don't seem to have a problem eating nightshades or spices but many do....
I have not gotten what I would like from the Enbrel. I am at 14 weeks along with changing the MTX to injectible 20mg 8 weeks ago. Hmmmm not sure about all of this. I see my Dr in June so maybe she...
Hi, It took me almost 2 years for a firm Dx from a rheumy since I am sero-negative and all of my labs come out negative though I did have the obvious symptoms. He said that many people just suddenly...
Hi Doety, I live in Cheyenne and now that we are having warm days I see absolutely no difference. My pain levels and puffiness are just as bad as they were last winter. In saying that, I am unable to...
Yes, when my son was under 10 yrs old he had a huge problem swallowing pills and was getting too big for liquid children's meds. The Dr. we were seeing said she had the same problem with her kids and...
I finally had about 3 moderate days after my 7th Enbrel shot. I take all 50mg in one shot per week. Glad to hear that you are getting good results....
Hi, You are the first person I have found that has the same throat problem. I found out that yes in some cases our esophagus can swell. I always have to keep something nearby when taking meds to push...
Hi, The thing is that I have always tested negative for RA but there is no doubt that I have it with my x-rays, symptoms and response to the meds. It is called sero-negative RA so my advice is to...
Reading the testimonies regarding AP I disagree that it only helps those with mild RA. I am in my 7th month of AP and though I am still awaiting results it can take a year or more. You might check...
Maybe go to your GP in a flare and see if you can get a note for work just until you get to your rheumy?...
Thanks for the info. Due to distance my attorney has filed for an Award of Record but chances are I will have to travel to Colo for a hearing but you never know....
Momto3 I sure hope that the meds help you. The added Enbrel is helping little by little but I still need the pain meds and my Dr said that I may always....
Momto3 I know that this is a very frustrating time for you as I am sero-negative and it took a while for a firm RA Dx. My reduced swelling response to MTX helped my Dr's with the diagnosis. Though I...
I am sero-negative, all labs are negative. Do you swell any or have any redness? It was a long time after the pain started before I began to really swell. I am grateful that I had a Dr that...
CaMama did you have representation? Are you still working? One reason that I went ahead and file in 2005 was that due to Arthritis I stopped working in 2001 and in order to qualify for SSDI one must...
Savanna according to my rheumy the RA is "under control" but not in remission. I learned a lot this week. Under control means swelling and stiffness are down (damage comes from the swelling) but as...
Savanna thanks for the long descript ion of your SSDI process. I am at the Judge level (3rd level in my state) and awaiting a decision for an "Award of Record". My attorney filed for that due to the...
Oh Erin I am so sorry that they have put you through this! You and your Dr must be on the same page. Does your Dr. agree that you cannot work? Is he/she totally behind you? Also, it is your...
Hi Theresa. I am happy to hear that you are seeing some results from the Enbrel. I have taken 4 injections with no change yet and Dr. wants me to change my MTX tabs to injectable. I grew up in KY...
Thanks Lori for the hope! I have had 2 injections and your post keeps me trying. The day after is really bad but I can just stay in bed all day if I have to. So glad to hear you are feeling better!...
I gave myself my first injection this past Tuesday and wow was I sick all day Wednesday and part of Thursday. I could not stay awake from fatigue and the pain was worse. Finally by Thursday I was...
Theresa, I was cleared to start Enbrel by my insurance last Tuesday and they called to say that I would receive it tomorrow. Yours should be in soon and I know the wait is difficult. My concern is...
This might assist you in your decision. http://www.nlm.nih.gov/medlineplus/news/fullstory_41192.html...
I also start as soon as it comes in so we can compare notes. My insurance approved it as well after some conversation with my Dr. Good luck....
About 6 hours after taking it I am nauseous and tired for the rest of the day. I understand about RA taking away our normal life and we must create a new life that includes RA etc. I haven't worked...
Harley I too have bone erosion and thinning but on 20mg of MTX. I have decided to go ahead and start Enbrel and it should be in soon. It was a hard decision but as of right now I have no life and am...
Hi mom-to-5 it sure is a small world! I am totally tired or the snow, cold, and wind. Do you see a Dr in Ft. Collins? I went to Dr Thakor last August but have found a great team here thank God cause...
Hi momto3. I am new here but also found my first nodule on my achilles tendon right behind my ankle 2 days ago and am sero-negative as well. Soooo though I have no answer for you I am very interested...
Hi and this is my first post. I tried MTX for 25 weeks and last week my Dr Rx'd Enbrel to go along with it. Had some erosion and bone thinning so I have hope for the Enbrel. Maybe you need a biologic...