I was part of the previous thread about OPLL. For a while we had a group on Google but that faded away. I continue to have problems related to my OPLL, Congenital fusion, stenosis, DDD, and OA in...
Haven't had much activity on this subject for awhile. I still lurk here once in a while. I am trying not to focus on my condition as I don't have many answers. I have an appt. with my Rheumy in...
I am sorry to hear about your condition. I have looked into surgery for OPLL and I don't know if I would consider it but so far it only mildly affect my gait. I have 3 areas of OPLL in my thoracic...
Update on diet and going back to work. The actual diet is going pretty well. I am still in the initial phase so it is really restrictive. I can only eat fish, chicken, rice, nuts, fruits & vegtables...
Hey I am still lurking now and then. I have poor internet service. RockDoc, Your symptoms are very similar to mine. I recently have been DX. with another condition, DISH by my Rheumy. She had xrays...
Hey George, Nice to see your still lurking. It sounds like Karen is having surgery today. I will keep her in my prayers. My update: My Rheumy had all of my spine xrayed. She is going to review my...
I am hoping we can get another forum going concerning OPLL. I hope by bumping this message I can get some replies. Is there anyone else who has tried Acupuncture? I am curious what results you may of...
I am still around. Been very busy with work and personal issues. I have been to 2 Acupuncture tx. for pain. The second seems to have helped some. She is also trying Cupping. I am not sure what is...
It would be nice to continue this thread in one section as this is a rare condition that has so little information available. Nancy...
George, My sis in law swears by him. I have only been to a Chiro 15 yrs ago after I slipped and hurt my lumbar spine. I went once and didn't feel that treatment was for me. I know from research that...
Welcome Alex, Glad you decided to join us. You need to concentrate on taking care of yourself so you can heal well. I have a few questions but I will wait a few weeks. When you feel better please...
I haven't been very good about posting lately. It seems to be all I can do to work my shift and try to do stuff around the house. I went to my PCP a week ago. She thinks I should be on pain meds 24...
George, I have widespread Arthritis. My first Rheumy put me on Pred. and boy did it get rid of my inflammation and allergies. It also raised my BP. I was on it for about 8 months. My first Rhuemy...
George, What kind of testing is used to give a Dx. of DISH? I have been repeatedly tested and always come back neg. for diabetes. I do have wide spread arthritis in many of my joints. I am on a...
Interesting. I have only had to pay to have copies of reports or Cd's etc if I wanted to have them mailed to me. If I picked them up they have been free. I am overweight and have allergy induced...
Jamie Justine, I too am from Oregon. Are you willing to go to S.F. to find the answers you are seeking? I will be following your story as I am still seeking in my own area. Not much luck so far....
Welcome! It's great to see we are not alone. I wish I had the answers you are seeking. I still have so many answers to seek. Lets all keep each other posted and hopefully we can learn from each...
George, OPLL showed on my MRI 1 year ago in cervical. My last MRI showed it cervical and T-1 &T-2. The Neuro said he didn't see any problems. Some of the symptom you have stated do seem to be a lot...
George and Birgitta, I went to a NS last spring and he didn't seem concerned about OPLL. He also didn't really want to talk about it. My surgery last June was suppose to reduce my symptoms. (C7-T1...
Hey, I went to the Neuro for the EMG. All he found is some signal in my elbow area. He said emg wasn't good at checking out the shoulder. He had me turn over because he was going to try to check my...
Hey, When I went to my new Neuro I asked him to check my Thoracic area too because my previous MRI said he wasn't able to determine what was going on at T-1&T-2 because it wasn't taken in all planes...
Hey, Watchguy What has your Doc. decided to do for your OPLL? I don't think everyone needs surgery for it immediately but you do seem to have some other problems that will probably need treatment....
Wow George you have been through a lot. Its really nice to hear from someone so positive as you seem. Some days its so easy to be negative when life throw you a curve. I wish I could find a NS or...
Thanks for reply George. I live in Oregon. I also have a congenital fusion which may be putting pressure on the disk above and below. I am fairly frustrated by my previous NS. He knew That I had a...
I guess I belong here too. I have OPLL @ c2-3 and C7 - T2. I also have congenital fusion at C5-6. I have had surgery to unpinch a nerve at C7-T1 but it didn't work. My recent MRI suggests that I get...
Thanks for the encouragment. I went to the Rheumy today. He looked at my eyes and didn't see anything. He didn't seem at all concerned. If it happens again I will go see my PCP. My Rhuemy says to up...
I have been on a adventure with my hubby so I haven't got back to you'll for a while. I go to my Rheumy this morning. I feel really inflammed and crappy this morning since I tossed and turned more of...
Well it happened again yesterday. We went on a motorcycle ride with my husband to a friends house. While sitting at the table I had the same arch with scallops in my vision. It only last for about 15...
Thanks for your replies, I didn't think the Plaquinil could affect my vision so soon. I do wish it would start work on my arthritis soon. I take 400mg of it daily. I have had some digestive upset but...
Something weird just happened to me. My eyes saw a arch with scalloped edges when I was reading my book. I couldn't line up the print. Then it got kind of dark in my peripheral vision. I closed my...
I tried to explain my condition to my husband last week. He doesn't understand the fatigue that I feel. I try to get to bed at 9-10 and get up at 515 to get ready for work. He says that I am getting...
I am learning alot about pain managment from you'll. My state licensing board will require that I take a 6 hour pain management class next year. I hope that what I learn will help me understand more...
Breezy, Your words are very reassurring. I am to start Plaquenil soon. I have read that that the side effects weren't as bad the other DMARD's. I am waiting 2 weeks until I am out of school for the...
I feel like I could cry this morning. My husband was very busy last night so I spoke to him alittle bit last night. He thinks I should get a second opinion and he thinks I need a hot tub. He was O.K....
I got the results from my bone scan. I had many joints light up. Most are the ones I have been complaining about. My SI joints are fine. The rest of my spine, feet, elbows and wrists showed...
Ducky, I have a 7:40 am appt. I am alittle nervous. Right after I have to get back to work. Let you'll know what happens. I probably will have some ???? that you'll can help me with. Thank for your...
Thanks for your responses. I tried the Ultram and I had very fitful sleep due to weird dreams. It didn't really help the pain much. Tylenol doesn't do anything for the pain and I am medicated for...
Anyone have a suggestions on what to try? I have tried Tylenol3, Tylox, Vicodin, Percoset. These all make me very nauseous and vomit. I would rather live with the pain. After surgeries in the past I...
Finally my Rheumy believes that I am feeling so badly. I went in on Tuesday having a terrible and visiable flare. Having weaqned of Pred. He ordered a bone scan, MRI and CT scan which I had on...
I weaned of the Pred. in 2 weeks. There was a few days that I was very stiff and in pain. The only joints that were visibly red were my big toes but wrists, hips, neck and one knee all stiff and...
Mom, That sounds terrible! Make sure to let us know what happens. You should call your Doc. Did you get an DX? I assume you did because you are starting the MET. I am still waiting for a DX. I am to...
I have insurance and can get a second opinion. It takes 3 months to get an appt. with a Rheumy in this area so I have been hanging in there. I have noticed that many people seem to be on Pred. in...
Just an update. Doc visit # 4 in 3 months. I am to wean off pred. 10- 5555555-2.5 2.5.2.5 2.5. I am to note length of morning stiffness and any pain and location of pain. He said he didn't think that...
Momto3, I am a mom to 3 also. My baby is 20. I am only taking 10mg. of Pred. It make the pain go away for about 2.5 weeks. After 2 weeks my Sed rate and CRP went back to normal. Now after 5 weeks my...
Are you going to a event in Oregon? We live in Oregon. It is a wonderful place to ride in the late spring, summer and early fall. lots of rain otherwise. Where I live you can be at the beach,...
I was looking through the posts and thought this where I need to respond. What a crappy week! It start last week on Friday a lady rear ended my car on my way home from work. She said she wanted to...
I had another attack of Costochondritis a couple of nights ago. I felt a sharp jolting pain in my chest on the left of my sternum. It kept me awake most of the night. I also was very cold shivering....
I have Costochondritis (chest inflammation). It can be quite frieghtening. The pain is sharp unlike the crushing, heavy pain of a typical HA. I really don't know. I have been to check it out many...
Is there something else that can stop a flare and not cause the jitters, rapid heart beat etc. What is AP? NanMac...
I can relate. I seem to be having a flare. The Pred. seemed to help for the first 3 weeks but now many of my joints are very painful. I am afraid to call the Rheumy because he will probably want me...