Thankyou for your reply. i have phoned my nurse help line for advice, hoping that they get back to me soon. One of the problems is that there does not seem to be a support network in the U.K. Is...
Thankyou Lynnwood, I do hope it is worth taking in the end. welcome to jerome /community/emoticons/smile.gif regards...
Hello I notice that a lot of people on yhis thread are on lots of medication, as you are, have you had any experience of taking Plaquenil 200mg tabs at 1 twice a fday. I ask becaurse I have just...
Thankyou for that Free Spirit, I will keep looking. kind regards puzzledbyitall /community/emoticons/smile.gif ...
Thankyou Lynnwood Can you tell me if this is also the case for the U.K. or can you tell me where I coould find this information. Regards Puzzledbyitall...
Hello Imp 36 Thankyou for making contact with me. I am sorry that you are having so much pain. Over the weekend I to have had a flare up of pain in most of my joints, which has kept me awake, due to...
Hello, Just to let you know that I use both the Biotene toothpast and the mouthwash and I am able to get both on prescription from my Gp. There is also Biotine Lubricant to put on tongue, however...
Thankyou Lynnwood, I am due to see my Rheumy next monday, I had another blood test a week ago to see if its ok for me to take some drug he would like me to try. I will ask him that question. Many...
Hello Lynnwood, Thankyou for your reply. It is nice to meet you. I have been to see a Rheumatologist who after a very painful lip biopsy diagnosed S.S. The thing is, no one has said if this is a...
Hello, I am a new member also. I have been diagnosed with this peculiar syndrome, I am at the other end of the age scale, I S and really did think no one else suffered from it. Good oral hygiene is...
Hello, I to am new to the site. I have this week been diagnosed with S.S and am feeling pretty fed up about it. Its not just the dry mouth and eyes, its all the other health problems that ccome with...
Hello everyone, I have been reading the posts with interest as I have this week been diagnosed with S.S. I am 63. I was diagnosed after results of a lip biopsy which I found very painful after the...
Hello everyone, I have only recently joined the forum, which I stumbled across by accident, it must have been fate. I underwent a lip biopsy on 8th Sept. I have since been wondering why I allowed...