Sorry. This phone drives me nuts. I meant to say that Savella helps with pain and fatigue. Start out on very low dose. It took me months to get used to it but it is a miracle....
Savella is a new med prescribed specifically for Fibromyalgia. It helps with fatigue andd fatigue. I guarantee it works because I take it....
My factor was 49 and is now 18. There is a lip biopsy that can be done to c if u have Sjogrens. Also, I had a spinal tap, which is something u really need to watch. Make sure the doctor performs...
Dry eyes not ryrs...
I just want to tell everyone that I found something that has cured my dry ryrs. I use Lutein. You cannot believe the difference. It is in capsule form. Please try it!!!!! If you get headaches, try...
I get bladder spasma well most of the time. But since taking Leutine, Evening Primrose Oil and coconut oil, rhet have improved quite a bit. Excuse the errors....
Butterflake, I was told today by my internist that I am having bladder spasms. This is the reason I am having difficulty emptying my bladder. Only problem is that muscle relaxers will dry me out, so...
LMFD. Have u had blood work and ur inflammatory factor checked? If u don't get answers, u may want 2 consider c n a rheumatologist. I have Sjogrens and have these sumptoms like the sunburn, numbing ,...
Jason, excuse errors. M typing on old blackberry. Yes I have ur symptoms n more. Try not to stress. It only makes condition worse. All I can tell u is what works 4 me. I take lots of vitamins plus...
I sit on the toilet and my urine stops and starts. I lean in a different direction, and it starts again. Even after all of that, sometimes when I stand up, I still leak and it can be a lot of...
People with Sjogrens cannot regulate their temperature according to my doctor. Yes, it comes on like a hot flash with me and eventually leaves. Some medications make it a lot worse, so pay attention...
I meant to say it was my "first try" with meds....
Plaquenil was my try with meds. It gave me eye problems; my eyes felt like they were dilated all of the time and the sun drove me crazy, even though I was wearing dark sunglasses. I have to say...
Thanks everyone! Ahhh, yes I suffer with swollen parotid glands, choking, dry mouth (hence, bad teeth), severe pain in my eyes (even though I have tubes and prescription drops and wear sunglasses),...
Thanks to both of your for your help. I am going to look into the lip biopsy. I have been ill for 3 years and still nothing shows in the blood, except for the high inflammatory factor. My white blood...
Has anyone ever heard of this? I do have every symptom of Sjogrens and am miserable but Sjogrens does not show up in my blood work (or any other autoimmune disorder). My inflammatory factor was at...
Hello. Well I have had swelling and severe leg pain but in both legs. I was told by a Physical Therapist that my tendons are shrinking. I was put on stretching exercises which help in general except...
I had the flu two weeks ago but just a day before it hit me, my legs became very weak. I had a difficult time just taking a few steps. The pain was so bad that I had to use four heating pads. It took...
I meant to type doctor and weak but can't see what I am typing. Lol...
Sorry it has taken me so long to respond. My Mother broke her hip and the docot put her on Hospice. I spent two days in the hospital with her and became exhausted. I threw up but the strangest thing...
I think it was Eden who stated that shr gets constant infections. Sorry I am old blackberry that doesn't do well on this site so excuse sp errors. I get a lot of infections. It is every couple of...
Yes, my legs get weak on occasion. I feel like I too need a wheelchair. I have been in the mall, scared to death that I won't make it to my car. But, I don't give up. I refuse. I do hand stretch...
I have Sjogrens and am miserable. You know the symptom; I have had it. I am responding to let all of you know how I have been treating my symptoms. This may help someone. For the headaches: Imitrex...