One of the first things I noticed many years ago was that the outer wall of my nose would collapse at night when I lay on my side. Right side, left nostril collapsed and vice versa. After going...
I had blood work twice and the only way Sjogren's showed up was through a lip biopsy. It was done in my home town and had to be repeated at a major univerisity Sjogren's clinic where it came back...
Didn't make it into the study because of one little med I have to take. It was disapointing but in another way it was a relief since it lasted a year and I don't have that much patience. I am finally...
Not sure how long I've had it but I started feeling really sick at about age 53 and had no idea what was wrong. Was just diagnosed a year ago April as was my sister who starting getting sick at about...
We've suspected an auto-immune problem for several decades and have studied Sjogren's intensely for several years. I'm now involved in an NIH funded 8 million dollar study and a clinicial trial at a...
Yes, he did. Everything is secondary to the Sjogren's....
I lived with the symptoms you're talking about from about age 54 till about 2 years ago when I elected to have Nissen Fundoplication surgery which stopped about half the problem. It had to be done...
I bet you know Cammie. :)...
Hi Gilda, I'm new here also and it seems to be a pretty quiet place. We sound a lot alike and I'd very much enjoy talking with you if you'd care to do so as well. I heard the same thing your doctor...
I've been officially a member of the Sjogren's Club for about 8 months now and while it's good to finally know what's wrong it's also good to find new insights, new information and to look for people...