Thank you again. This all began this week with the reading of her autopsy, I know shouldn't have, but had to have closer. She was and is a person who deserved my respect. I had to know how her life...
Thank you for all your lovely and warm things to say. My seizures have been getting worse over the last few months and it have been difficult with the lupus. My sister passed in June but the wound...
I tried to help her, I tried so very hard. I gave her everything flew across the country it was just to late. She was depressed. Then she drank. Then she got cirrhosis, then pancreatic cancer no one,...
I was a "regular" on the lupus board up until 1 1/2 ago then my entire life was engulfed by the illness and following death of my younger sister. I have been bound by all the pain the death brought...
Hi Caren, It is very scary to think of going off my current medical insurance. 1 of my seizure meds would be 400 a month (without insurance). Have you had a talk with your doctor about alternative...
blueskyfvr --Please call your doctor and if he can't see you maybe he'll send you to the emergency room. Migraines can be extremely painful and last for days in some cases; but it maybe another type...
Thanx for the info. I am going off of depakote and on to topamax for both mood & migraine problems. I'm am really hopeful to lose some of the weight I gained when I went on the depakote. Crossing my...
Was curious how many people are on Topamax and actually lost weight. I hear it also has a nick name of Dopamax, has anyone had any cognitive problems on the medication?...
Dear BP I'm so sorry to hear you have been laid off. Gods speed in getting you new employment. Bbsoshare is right on the mark. You have to take care of yourself and dealing with your stress. All the...
I see the potentional for this to get very messy. If he does file I am going to get an attorney (thank you Diskus). I lost my sister recently and have had a very difficult after losing my sister...
Thank you Diskus; I have alot of other things going on as most of us do. I really don't need this added stress and I'm glad to know I may have legal options to ensure my privacy....
Hi everyone; I have an unusual situatuion which came up yesterday. I have a friend w/BP. I was introduced to her by someone who thought we could be a support system for each other because we both...
Thank you for your concern. The 9th was a tough day for me but have been getting better with each passing day. All of you support has really helped. Sorry I went into solitary but I needed to think...
MOM KITT KAREN everyone has made this make more sense. I thank you so much for the words and thoughts you have "said" to me. To others 3 months seems too long for my feelings to be so raw. I really...
Thank you for all your kind words. I was considering getting grief counseling which I now realize is a good idea now. Thank you for sharing your painful stories. It helps open my eyes to my options...
Hi I was wondering if anyone could tell me what the "normal" length of the greif process is or when one should be worried. My sister passed away 3 months ago and I can't get passed it. Moving on...
Just an FYI at the web site http://www.pristiq.com/ you can get a coupon for a one month supple free with a doc's script. Good luck Julia...
Thank you to everyone for your kind words and loving thoughts. My sister was 2 months past her 30th birthday. She was diagnosised with epilepsy shortly before her death. Previous to that they were...
Haven't been posting on this site for a while but best of luck!! I'll keep you in my prayers. Julia...
Well, I have not been here for a while; and it was because my sister was ill. She developed seizures with in the last few months and they were severe. Repeated incidences of grandmals in a day. She...
Congrat's--Animal therapy helps so many- autisic children for one. What a grand way to help others get through the darkness into the light. Keep us updated on your progress. Many Blessings on your...
Thanks everyone. By happen stance we had contact with my daughter last evening. It was a complete eye opener. I now know she is very conflicted because her BF " can't stand us." That she is so...
I was vomiting for 3 days straight. I had to go to hospital and doctors twice for fluids due to dehydration. So yes I was off my meds because I couldn't keep anything down. On the 4th day I started...
Hi everyone. Recieved the new Epilepsy foundation news letter and thought I'd share the topic this month is Epilepsy Fdn.-Epilepsy & Behavior. The link is...
Thank you too everyone. My daughter says that I am a horrible person. She says that she doesn't believe that I have seizures as does her BF. She says I am making it up to excuse my behavior. Before...
Thanx It's hard to face when you lose so much. I had it together for a long while, but now I have to face that my daughter only wants me when she needs money and then is verbally abusive and writes...
Some times my mind takes me back to other times. When I had a whole family and I was healthy. When my daughter was a part of my life, and my marriage was happy. Then reality shows through. The...
Yeah good idea, new fashion trend--I hear 80's fashion is back anyway!!...
Hi Darren I had asked about mesial frontal lobe seizures, because of a conversation about my symptoms. At this point I am not considering surgery. I am very fortunate to see both an epileptologist...
Thank you, you all are so wonderful. It is confusing navigating through all the different terms and options. I will check the other thread. Best wishes, Julia...
Hi, was wondering if anyone has or know anyone with mesial frontal lobe seizures. If anyone does, what medication did they or you get. The seizures are usually medication resistant and require...
HI Ashley I don't usually post here but read your question and yes I have had that happen. It went on and off for a period of years. My neck would send this horrific pain down my neck through my...
Hi, Saw the question about Diet Coke ingredient as a siezure trigger on Jim's post. The question about http://www.naturalnews.com/008952.html [/u] ...
I would never try to get between my DD and her father. My husband does feel torn when her behaviour is rude and nasty toward me. I am sorry Anvil that your Step father wasn't loving toward you. I...
Oh, I appreciate all of your wonderful and thoughtful suggestions. My daughter has gone to DX; but I truely believe she can't see past BF opions. ShynSassy commented on his control over her; well she...
Diagnosised 2 years ago; but had it for a while was on trileptal and now also take depakote. Blessed Be Take care...
I also posted this on the depression page. I guess I need to vent or and stop pretending this isn't real. I feel like I'm walking around with a fake smile on that everyone can see through. My...
Thanks everyone. BF does not believe that you can "forget" time. Part of my seizures is that I say or do things that happen when I appear concious but am actually having a siezure. They warn you that...
I guess I need to vent or and stop pretending this isn't real. I feel like I'm walking around with a fake smile on that everyone can see through. My daughter is getting married; the only problem is...
HI Ginny HBP is disconceting, Nsaids can cause fluxuating Blood Pressure. Lupus also has a risks for kidney, heart and lungs. Check out http://www.homehealth-uk.com/medical/lupus.htm . They have good...
A friend our the family has a daughter who "passes out" from even mild pain.She has hit her elbow on the counter and passed out. She was on the soccer field and when bumbed she "hit the ground" and...
Well I feel awful to hear you are going through all of this. Have you considered the option of seeing an infectious disease doctor? Where do you live? Is it possible you contracted Valley Fever or...
Hello, I was wondering if anyone has had a repeat EEG came back abnormal BUT without actually registering a seizure. My neuro says I have abnormal Temporal Lobe activity on the test so I could have a...
Wow Marji, I'm glad your okay & everyone else too. It seems that this test has many meanings and out comes. I will ask when I go on Wed. for a through explaination on the test and if it has anything...
Hi- Take a deep breath and know you are not alone. Sadly it also isn't uncommon for some types of epilepsy to go undiagnosised. The good news is now that you are being treated, you should be on the...
HI bhkhh, I got a some bug bites while out on the 4th of July weekend. They too became inflamed and swollen. You may also want to try over the counter cortizone cream on the bites that are looking...
Thank you very much for the information Donna & Bill-God Bless Julia...
Hi Heather, I just wanted to say I'm glad your feeling better and hang in there till August. New doctor New hope! Feel better and God Bless. Julia...
Hippi, Summer colds sneak up on you, sorry your not feeling well. Kick you feet up and let everyone take care of you for a couple of days! Get well soon, God Bless, Juila...
Thanks so much Judy, I didn't realize that my seizures could have anything to do with my test reading. They ordered a retest, I should find out those results this week. I do have the chest pain which...