I noticed a lot of you are fairly young and I feel very sorry for your pain and the tough decision we all have to make about working or not working. I am 45 and just got SSA approved and I almost at...
Has anyone ever been reviewed after 3 years of receiving their social security disability? Has anyone been reviewed and had their benefits taken away? Any input is greatly appreciated. ...
Has anyone ever been reviewed after 3 years of receiving their social security disability? Has anyone been reviewed and had their benefits taken away? Any input is greatly appreciated....
yellwdaisy, I hear you loud and clear. I would definitely apply for the disability and do not give up. Most of the time they deny you but if you keep fighting for what is your right, you will get it....
I have been having slightly elevated RA factors since my early 30's but never dx w/ RA by a physician. This is the 1st time that a Rheumy has dx me w/ RA, but he stated he cannot treat because it is...
My levels weren't too high, but I was just wondering why they show positive and then negative. Thanks for the above information. Usually they are at 16 and now they were at 13. Anything under 14 is...
Thank you for your response. I appreciate it. RA doc said that he can't really treat it because I am not at an aggressive stage and some times these meds can give you serious side effects. I am a...
Okay, I have been going to the my RA physician for about 9 months. I have had 2 elevated rheumatoid factors blood results. I went in for a follow up today, and the 3rd blood test indicates negative....
Can anyone give me input on Amitizan. I was just prescribed d/t to my bowel problems. Thank you....
Lynnwood, I wouldn't worry about it. I have a friend who has RA, FM and Osteo and she was 40 yrs. old at the time of approval, and she is now 48 and she has never been reviewed. I am sure it is...
I looked at this site, but this is to create a site of awareness and ask for donations. We have this already. We have created a site, but I know that I cannot promote on the forum and ask for...
Thank you so much for the information. I appreciate every little bit of help and guidance I can get from this wonderful forum. God Bless. Have a blessed day....
Not sure how this would work, but I would love to promote a website in regards to a lupus very sick friend I have. I know it cannot be advertised here, but I would like to network her story. It is a...
Amy, thank you. My apologies I have not read all the rules/regs so I was unaware of not being able to post the link because is a fund link. Now I know, so when this becomes active, I will not post as...
Amy, thank you for your support. She has started to take action in getting her story out there by publishing it on the newspaper and she is working w/ a network to get her elegible and a hospital to...
I have been suffering migraines since I was in my mid 20's. I am now 44 and for the past few months I have been getting daily headaches almost like cluster headaches, but my concern is that everytime...
I have a closed friend who has Lupus. She is right now in the process of getting her name out there so that she can get into the system for a kidney donor. Her news made the Charlotte Sun Herald...
Savella did wonders for me. When I started to take it immediately I felt a huge relief in the pain level. I felt like brand new, but I developed an allergic reaction to it after a week or so. I had...
As for me, I can relate to the feet pain. It does not matter whether I have supportive shoes or the best shoes, my feet are always hurting. At first, I thought it was the type of shoe, but then I...
Thank you for the input. I appreciate it....
Plaquenil is used for RA and some types of autoimmune diseases. Plaquenil is a big use for Lupus patients. Some RA's do use it for these types of autoimmune diseases, but not everyone has a positive...
Although his results are back normal, it does not mean that he does not have an auto immune disease. Have him evaluated by a specialist and do not give up. Keep going. They will find a dx for him....
No red spots nothing visible just very painful and itchy itchy hands. Both hands. Thanks for your input. I appreciate it. I am so confused I can't tell if it's my FM or RA or just my imagination....
Bev, Thank you. Yes it does. Did it take you a week or so to recover from DNC or was it just a couple of days? I hear sometimes it takes a week to feel good again. Very painful procedure....
My hands hurt a lot and they itch when they are really sore almost like heated itch. No redness visible or lumps or rashes. Just itchy very painful hands and I feel them swollen and a bit warm...
Does anyone know what does signs are. Sometimes I wonder if I have Lupus or starter. Thanks for the information....
I am worse when the weather is too hot or too cold. I live in a warm climate but I could only imagine if I lived in a Winter place, I would be far worse than what I already am. When I run cold water...
Can anyone tell me if they have to go through a DNC because the tomaxefin is causing endrometriosis polyps? I have been experiencing heavy and very painful periods. I have not had any skipped ones,...
Northwoods MN Do not feel guilty. Only you know what you can handle and know your body and what you are struggling with everyday. Being on SSDI does not mean you sit at home and do nothing all day....
Yes, I did get steroid eye drops. My eye was very inflammed. I believe the reaction to the plaquenil really hurt me more than help. I only took for a 1.5 week but I noticed that I felt strain on my...
I thought scorpions were deadly? What did your PC say about the sting? My aunt got stung by a Scorpian when she was on an international vacation and she was rushed to the hospital. She almost lost...
Does anyone experience chronic neck pain w/ RA? I have had a neck ache and headache that just won't go away for about 4 days now. I also have the entire left side of my face, ear, and neck/shoulder...
SkeeterZX22v, thank you for the input. I had to stop Plaquenil. I had an allergic reaction to it. I first started w/ a sore throat and then I felt like my neck was going to break from the pain and...
Hi Onion, I hurt for you just reading your story. It sounds like you have a lot on your plate and your wife has a serious problem. This is definitely not a healthy environment for both you and your...
Check it out w/ a physician. I have both FM and RA and I have excruciating pain in my lower back. I walk to keep active and my back hurts so much I can barely move afterwards. If I have a busy day, I...
This is normal for Lupus patients. My good friend has Lupus and she was put on both Predinisone and Plaquenil when she first was out of remission. She is now on many different serious types of meds...
I noticed that I am getting a sore throat and saw some bumps on my tongue since I began the Plaquenil. I stopped taking it a couple of days ago because I felt like everytime I took my 2nd dose for...
Red usually means a possible infection. When in doubt, go to the doctor. If you noticed a change, I would make a stink about it. Better to be safe than sorry....
I am very sorry for your loss. She is in a better place. Pain free and peacefully. Amen!...
Loved the eye exam. Thanks for sharing....
I like the idea. It gives you some information that I find helpful. I like to hear how other people are dealing w/ the aches/pains and different types of diagnosis. So it works for me. Glad to have...
I use to be on Midrin about 7 years ago or more. I loved Midrin and it helped, but when it went off the market, my doctor would not prescribed and I was unable to buy it because it was a discontinued...
FW THank you for the input. I was told by my physician to check my eyes every 6 months too....
Thank you. I appreciate it. Anyone else has any input?...
sjkly, could be. Thank you for your time. Hope all is well....
sjkly, Hmm confused. My doctor told me this is a positive rheumatoid factor....
Can anyone share any side effects w/ Plaquenil. I am on 200mg and would like to know what to expect if any? Has anyone lost or gained weight on this med? Any information is greatly appreciated. Thank...
Hmm I wish I had that for a side effect when I took Cymbalta 5 years ago. I had an increase of appetite. I gained about 20 lbs, but once I stopped the Cymbalta, I lost the weight. This is the reason...
Thank you all. I appreciae the feedback. Yes, my rheumy did mention that I will need an eye exam (visual exam) every 6 months. Rheumy also said that it will take a couple of months before it kicks...