LV - I've removed your post as the rules clearly state "No Flaming". Please do not flame again or you will be banned....
Hi there, Perhaps your first step would be to read the Canadian Consensus Document for CFS-A Canadian definition. Have your doc read it too. It's excellent. There's no one test for CFS and other...
Hi Kim, Sorry you're suffering so much. It IS truly hard to distinguish Lyme from CFS often since the two overlap so much. Four years of abx seem sufficient time to judge whether you've been helped...
Have been on Neurontin for many years and never had this before. Upped my nighttime dose by 100 mg and have noticed the last few days have had ankle swelling, esp in the evening. Do my best to keep...
OK I should painful burning hands and feet...driving me crazy. I have CFS and fibro. Anyone else and what helped? Have tried the B12 shots, no change. Feels like a neuropathy gone haywire, autonomic...
Cherryberry, Thanks for your input...I do feel like I"m constantly fighting a bug but it never really "comes out" like in normal people, I know my immune system is really "cranking" hence the visit...
Thanks ouchy for your reply, I'm sorry you're also facing the same thing. Actually I ate a bit better today so maybe it's very up and down....who knows? I am seeing a new CFS doc soon and I am very...
I have CFS/ME and fibro. From time to time I've had a zillion GI complaints and all my work-up has always been negative from celiac panel to barium enema (done recently for abd pain in Feb/08). A...
dear doghouse, dumb question but just making sure...do you have CFS or do you suspect you have it? only reason i ask is that i know in the past antibiotics have made my fatige skyrocket, i do know...
Hi Jerica, Welcome to the board, I'm a newbie myself here but have had this illness for many years!! Sorry you are suffering so much, but it does sound like you have a wonderful doctor. CFS is a very...
Agree with Bee and Maria, it truly depends where you are on the "illness" scale. Therapy is like undertaking exercise....in other words, do it with extreme caution. How in the world if one is really...
Hi Kim, so gald you've been able to find such a great doc. A couple of quick thoughts: muscle twitching (fasciculations) are very much neurologically based so even though cognition may not be a...