Thanks a bunch Labradorite and I hope Humira keeps working for you. Sugarmarie, I am going through a Crohn's flare atm. I have severe small bowel wall and mild ascending colon thickening. Due to this...
Hello scifigal2k, I've shortened the weeks from 8 to every 6 and increased the dose. Remicade has normally kept me in remission for the most part. It now literally isn't working even though it is...
Hi Labradorite, Thanks for the quick responses and the drug options. I've been on remicade for 5 years. I've felt worse the last several infusions. I've tried going up doses but nada. I also used...
Hi there, Turns out my Remicade is no longer working for me even though I have not built up any antibodies to it. Does anyone know what biologic is next when Remicade is no longer affective? I know...
Hello all, I have a few questions for you peeps in this forum that have experienced these symptoms. First off in March I started getting into shape, ate healthy, lightly worked out, and walked almost...
I'm sorry for your friends loss and can see how that may be upping your flare symptoms. Depression plays such havoc on a persons body and can really mess with a flare or even start one. This is a...
What meds do they have you on? I had three "inner fistulas" while on Remicade and was on almost a month of hardcore antibiotics. I haven't had the type you mentioned but am curious about the drug...
Like everyone else stated here Remistart is awesome in that it basically pays for your infusions and leaves you with just the nurse fee at a few hundred dollars. I too have major joint pain and...
Hi Nikki, They should not be basing your Crohns diagnosis on infammation markers alone. I was in an insane flare and showed nothing in my blood work. Is this your first MRI with contrast? If so you...
Hi there, You're right that it really sucks to be sick and I am sorry you are going through such a rough time. Hopefully after a few more rounds of Entyvio you will start to feel much better. I am...
Hello Mommy35, I agree with Gumby44 that an MRI or CT is needed to find out if you are going through a flare in that area. When was the last time you had a colonoscopy? Are you on any medication for...
Hello JAB, I am sorry it took me so long to respond. I was misdiagnosed with Diverticulitis and just found out a few days ago after my colonoscopy that instead I have a total of 3 healed fistulas one...
Ramman, I'm sorry you have this horrible illness in addition to Crohn's. I recently went through my first flare with Diverticulitis and was put on the same antibiotics you are taking and my bowell...
Hello JaSanne, Thank you for the kind words. I went to the ER yesterday due to excruciating left sided, at times right sided, upper stomach and lower back pain. It hurt so badly that I couldn't stop...
Hello all, I am confused and need advice from anyone that has gone through what I am currently going through. I recently went to the ER for insane lower left sided pain that a CT showed I had...
Thanks for the quick responses all, I have never had any left sided issues and I think the word "colitis" just freaked me out. I just did a full vaginal exam internally and externally with my...
Hello all, I am writing on this forum because I'm confused and frustrated with my doctors. A little about me: I was diagnosed with Crohns in my ileum in 2010 and after several hospital stays on...
Hi Amy, That is such a bummer about you doctor. I hope you find a GI soon that will help you out. You might want to try a low residue diet (eat soft foods; pudding, soups etc.) and see if that helps....
Hello Sarah, I am currently on Remicade every 8 weeks and noticed a difference a few weeks after starting it. I have noticed that a week or so before my next infusion I get bloating and my urgency...
Welcome back! Hope the surgery goes well....
I'm with ya there. I have friends that are nurses and doctors that act like if we just worked out more and ate better all of our problems would go away. I no longer mention it to friends and family...
Mirowpl, Are you on any meds for your heart? If so could they be contributing to your D movements? I know it sucks but I wore a liner when I was having problems with urgency and it helped with...
Rem, I feel for you and understand how depressed being sick can and often does make you feel. Eventually you will find an even ground with your meds and being sick all the time will become somewhat...
Awmom, I too suffer from the same problems with my docs inability to get into the terminal ileum with a scope. I had complications from the colonoscopy due to my stricture that it caused me more...
The numbness for me is with my hands when I try to read holding a book up or lay my head on my hands. My feet lately cramp up sup easily if I flex them too long. Hope this helps....
Will, I was recently diagnosed with Fibro and it was due to soreness in my neck, shoulders, chronic fatigue, numbness/weakness in both hands, memory loss or memory fog as they call it and insomnia....
Hello, I just finished my second Remicade infusion and have seen more energy and less fatigue/joint pain. However, I am still waiting for the flare to lessen. The first infusion knocked me out for...
Well it is good to know that I am not the only one that slips and eats out then pays for it:( You would think that with all of the crappy meds we take for this and many other diseases we could enjoy...
Hello, I can semi relate to what you have been going through with the crazy fatigue. I am sorry to hear about the fevers you are dealing with at the moment. Prednisone really helped me get rid of the...
I agree with Minou about wearing liners to help with the leakage. I get the extra long panty liners and it really helps greatly to avoid any *accidents* and my husband has this problem so he is now...
Hello Dana, I have been eating light myself to avoid stomach pains and made the mistake of eating a spicy chicken sandwhich. Shortly after that I had severe lower back pains followed by shooting...
Hello Mama6, I am sorry to hear about your sons diagnosis and can understand his problems with fatigue as that is a huge issue I am dealing with now in my major flare. I too am going to school full...
Hello all, Well I finally had my colonoscopy on Thursday morning after being diagnosed with Crohn's disease on December 15th 2010 and am pretty bummed by the results. First of all I did not know...
Thanks Pixelmation for all of your helpful tips. We use EVOO for all of our cooking and eat pretty healthy. I have found that my husband who used to tickle at the slightest touch is not so tickelish...
Heya Miriam, Thank you for your kind words but I am far from the perfect spouse. I just wish I could do more for him and would love any extra tips from people that are also going through some of what...
Hello all, My hubby has had Fibromyalgia for a long time and I have been trying to find ways to help him with his pain. I give him massages and listen to him when he needs to talk and give him hugs...
Heya Becoming undone, The unknown is so dang hard to deal with when it comes to this disease and feeling as if you are all alone does not help much either. When I found out I had this I started...
I had an MRI done on December 15th 2010 and all I had to do was drink two 16.9 ounce water bottles right before the procedure. Other than having to empty out my bladder constantly for the next hour...
I had an MRI done and the only prep I had to do for it was no food after midnight the night before and they made me drink two eight ounce bottles of water back to back right before the MRI. If you...
I live several states away from my mother and siblings so we are not close. My mother acts like a crazy teenager so every time I finish talking to her I feel more stressed out if that is possible at...
Thank you all for your caring words. I have been thinking about asking my doctor about some anxiety pills for awhile now to help with all of the stress. I think I will find out about it tomorrow and...
Hello again all, I am a new member here and posted my introduction not too long ago. A quick recap is that I was diagnosed with Crohn's Disease by accident last December when I had an MRI done for...
Hello Vince, Welcome to the board! I am with you on the depression front. It it very easy to feel down with this disease and all alone. Some of the things I have done to combat it are going to...
I agree with the rest of you that a heating pad plus body pillow are the only things that make me feel better when my stomach is hurting so badly. I have tried a hot bath but it is not as helpful as...
Hello all, I was recently diagnosed with Crohn’s Disease on December 15 [2]th [3] 2010. I was not expecting this whatsoever because I had gone to my doctor in October of this year to figure out why...