Have you had your bone density checked? I have osteoporsis and so why I ask because one can loose height because of that. I have not yet but am 32 and I heard with age it can happen. I would get your...
Well I use a fan that does not blow on me but just makes noise at night. Also the tv usually. For me I don't feel it has helped my pain but non controlled noise from outside forces makes me super...
Have you had testing done through bloodwork,xrays,mri,etc? What type of doctors have you seen? I agree to talk to your gp and get some initial testing and to be refered to a specialist....
Yes I do know when the RSD needs asap attention. Actually my one pain doctor squeezes people with rsd in asap because of that. I would write a letter to that doctor too about the receptionist not...
I think for heat or ice it depends on what your chronic pain condition is. I have RSD and that is a big no for ice. I also heard that if you put heat on for too long that it can rev the nerves up...
I think one of the great things among many of forums like this is that their is no judgement. We all relate in one way or another regardless of how or why are pain started. Thank you for sharing and...
If I were you I would leave a message for the actual doctor to call you back rather then going through his receptionist. I have done that before and gotten better results. I wish docs would realize...
I have been up for awhile. Not as bad as the night before when I got out of a bed at midnight. Such a bad cycyle bad pain/lack of sleep/crabby mood. I agree about the getting ready maybe lifting your...
I think it is a good idea to see the pain doc. For me the pain doc has dealt more with pain control then my gp,neurologists etc. There are other treatments you may have not even thought of that may...
I agree about talking to your doctors asap. There are also programs to assist you such as maybe a day or inpatient program. I would also look into support groups....
I have tried many and am on meds you stated. For myself I try to not read about the side effects because mentally it sets in too much fear. For me with meds it is best to start very slow and build up...
I did not read all the responses. Just in too much pain but wanted to respond cause I can relate. Not only to the loss of friends but also loss of family. I think this issue makes it hard to trust...
Sorry that happened but I think it is great you reached out for help. I agree about asking a store employee or a strong looking man. This reminds me awhile back I used to park in handycap. I had a...
Well when I was on a lot of meds my pain doc talked about slowly taking away to see what is working and not etc. I would think and I am no doc but that there could be a transition time where just...
Wow we have some artistic people on the board. I may take you up on the help with the bears. They are so cute. For Micheals on Sun in the coupons they always have a 40 percent off coupon. I would...
This is a good topic because I am trying to find things to help distract too. I have tried beading,chrochet,reading,board games,pain pottery,making greeting cards,journal I want to try to volunteer...
Hi I have rsd as well for 4 years and also have seen so many specialists treatment etc. A few thoughts and I think for me the way I cope etc has and continues to change through this condition....
I am sorry but can relate to all your feelings and struggles. A few things. Have you told the people in your life who are not understanding how it makes you feel and how they can help you? I know...
You know I was just thinking of this thread because I remember years ago when I was not having luck with anti depressents my psychiatrist suggested I take fish oil supplements. I do that anyway and...
Hi. I agree about finding a teach hospital. My best pain doctor came from one and he was even better then Cleveland Clinic. Have you thought about seeing a pain doctor? I was in a pain program with a...
This just my experience and everyone has to do what they feel is best for them. So I don't want you to think I am telling you what to do. I have seen a holistic doctor and also am under the care of a...
I did biofeedback. I have major sleep issues and anxiety as well. I have a trust factor too with doctors in general. Most mental health professionals will come to the phone and you can ask questions...
I am sorry about your husband and also the stress this puts on you. I do not have this problems but when I went to Cleveland Clinic pain program which was 8 hours 5 days a week many people did have...
In my life I have people who understand and people who don't. I do say how I feel and try to educate but for the people who don't understand it does not help. I try to focus on the people who do care...
Hi. I am sorry for your I can relate to the outer and inner self esteem issues. A few thoughts I have which are all easier said then done and not always do I apply them to myself though I am trying....
Any block of injection I have had has increased my pain level. My pain doctor said what is supposed to settle the nerves revs them up for me. From other people I know who have these the length of...
I am sorry but can relate. I have nightmares about my pain and things happening. A few thoughts. Do you and your mom talk about what went and continues to go on with her and how you feel? I guess for...
I had always thought it was a warm pool. For me I know when I did pool therapy at Cleveland Clinic part of why I was so flared up cause it was too cold plus too much for me in terms of time and...
Wishing you good thoughts and a quick recovery. It is such a positive you like the doctor and staff. I hope you feel better soon....
You know the worthless issue in the pain clinic I went to they had us try to develop interests or learn how to do things we enjoyed before the condition now but in a different way. I remember this...
For me those fiber powders or pills actually constipate me more even with adequate water. I have heard from others similar. Some other things I have tried I will suggest is prune baby food or juice....
Hey well I posted about weather but not about moving near family on yahoo. The part of MI I am from it is above 0 but very cold. I am not sure the highs and lows but maybe 30 and 15 for average in...
Gosh I am sorry. Well I went to a teaching hospital in my hometown but I was not treated by students. Only the head doctor and director and any procedure I had I wrote in that he was the only one to...
Well I can relate too. I am a "Debbie" downer by nature. I know that is not good but I guess at least I admit it. I know that when I have a negative view it makes it that much harder to get through...
I am sorry for all you are going through. I think you should ask them what you asked here why you would do more PT if you were worse last time? What will be different? Also if it does make you worse...
Thank you all for your replies and support. I know there is no perfect with conditions that cause such severe pain. I just feel so drained from every aspect of this conditions and lack of pain...
Do you notice anything different in your life with the recent worse pain? For me sometimes there is no reason so that can be too. Have you looked into other treatments? I am not sure for your...
I am sorry about your loss too. I take magnesium glycinate. I read and saw a holistic doc plus another forum I am on suggested it. It is important to get a brand that is absorbed well. The oxide type...
I am sorry for your struggles. Also if I am confused. I would get another opinion. I think yes a condition you may have and you may have to learn to manage it but it can get to a better point with...
Right now I live alone and am in a state where I have no family or friends basically. I moved here 2 years ago from MI because the cold and winter is so hard on my pain level. I have rsd and pn. Well...
I am sorry you are going through this but think it is great you are so focused and have a plan. I think the support groups are a great idea. When I went to the Cleveland Clinic pain clinic may had to...
What helps people cope and get through the days. What they have learned to do to help enjoy life with the current pain limitations. When I went to this clinic for pain a part of it was learning to...
As older members could you state what the forum used to offer and does not now? Is there a way to get some of what you felt was good about the forum before back now? I would think if many found it a...
I have burning pain in my feet and legs at times. I have peripheral neuropathy and rsd both conditions have this as a symptom. I see you have a lot of dx have you talked to your doctor? Some meds can...
I am new to this forum but am a regular member of a similar board for 4 years. At times there is a change in the forum and older members seem to disappear and there becomes so many new people. It is...
Hi I am sorry for your pain. A few thoughts that came to mind and I did read the whole thing but I forget so forgive me if you stated something already. Have you seen a neurologist? If so did they do...
Hi I am sorry for your pain but can relate. I have had my condition for 4 years and have been back in a horrible flare up of pain. 4 years of 24/7pain to a varying level takes a toll. I agree about...
I am sorry this happened to you but can relate. Would you feel comfortable to call the office and ask to speak to the doctor? If not I would write a letter. I know it is stressful to start with...
I can relate to you a lot. With my mom who is my closest support to me I tend to get upset and not stay calm but with everyone else I stay calm. Could you write your husband a letter and then read it...
Thank you. Actually the cold in FL we have been having was good for me. It was not too cold but under 35 plus any rain or snow I am a painful mess. The summers though I am swollen mess. I am not...