I have had UC since about 1995 and Humira in 2008 caused me to have SFN a few drs say, or full body CRPS a few other Drs say. My UC did get better for almost a year. I'll take any UC flair up...
On top of the pain meds, I find the lidocaine patches work ok on places of high friction or pressure like my feet and forearms. I also swear by ALA (Alpha lipoid Acid) 900mg 2x a day. It's a strong...
I live in NJ, and just looked up Calmare clinic. I'm going to call them tomorrow, but I am a little skeptical. Sounds too good to be true....
CRPSpatient, I did post a long while ago I think in the neurology section when the crps began. http://www.healingwell.com/community/default.aspx?f=38&m=1326389 Seems as though Humira caused or...
I did look into those mattress pads, but I get to such extreme pain that if the sheets have the smallest wrinkle in them I'll get an intense burning on my skin where the wrinkle is touching me. We...
I have a few questions to anyone with autonomic dysfunction and or chronic pain. My Dx has recently changed from small fiber neuropathy to crps. I've been on some form of opiates as well as neurontin...
Please try Alpha Lipoic Acid. It's an antioxidant. My Dx keeps going back and forth from small fiber neuropathy to full body CRPS (recently dx'ed by Dr Schwartzman in Philly, he said he was positive...
I just thought I'd check back here, and give an update to my condition. I'm still in the same situation I was in a year ago. The only difference is that drs have made me comfortable with narcotics...
I just got word a few days ago that I have RSD/CRPS....
I just got out of the hospital after about 10 days. I couldn't stand it anymore. Doctors ran ever test posible, and came up with nothing. I think I found a doctor that is willing to follow this...
I just got out of the hospital after about 10 days. I couldn't stand it anymore. They ran ever test posible, and came up with nothing. I think I found a doctor that is willing to follow this through...
I was told that there were human proteins in Humira, not mice/rat proteins. They suspected that the reaction was due to foreign protein. My colitis has been in check, with minimal flair ups in the...
Hello, My name is Anthony, and I am 33 years old. I just recently signed up at healingwell.com I live in NJ and have had health problems for the last 18 years. I had a collapsed lung in 1994 and...
colapsed lung?...
Boomer I've tried Remicade in 2006 and a week after my first infusion I got serum sickness and ened up in the hospital for almost a week. My blood pressure dropped to something like 60 over 40. My...
Yes that was the first test they did, and it was normal, they also tested my B12 (280) and A (45) levels, also ESR Westergrin (1), Merthlmalonic acid (105), Homocysteine, Cardio (9.4) All normal. A...
My very first colonoscopy around 1995 was a nightmare. I woke up in the middle of it screaming for the Dr to stop and that it hurt so much that I couldn't breath. I remember one of the nurses holding...
Patientspiders- I'm having a burning sensation in the same spots that you are describing, and I have found its from friction. It's always worse at night to the point that I have to wear sleeveless...
I think I'm having a reaction to Humira but I'm not sure. I started taking it in march, and within about a month, I felt a little burning sensation on my left wrist. It gradually got worse, we...