Nanners- No where in my post does it say that you took pain meds for your crohns solely or any other person directly for that matter . I was responding to the original posters question regarding the...
I have multiple health issues but in terms of my Crohns I do not take any pain medications for it. I use Cimzia to basically keep my Crohns under control and for the intestinal pain that I do get I...
The Triamcinolone is the generic ointment of Aristocort apparently...
Well I spoke to soon as my issue is starting to reappear which I was just to see the dermatologist today, initially I thought my skin was just red as from my RSD my skin changes colors all over from...
Jim I know exactly what your dealing with especially in the sense of living check to check and being denied the medications you need because of insurance decisions that are not medical informed...
Cogito my reply to you in which started with "wow you are very sensitive..." is in no way being sarcastic which if you read my reply it is clear to see that. Its simply stating the fact that you are...
Wow you are very sensitive to medications. Woozy/sleepy/bad feelings that prevent you from functioning are when a medication is to much for your body to handle, which in this case if this happens at...
Might I suggest one of the following: ~Neurontin (which because of your tolerance don't discredit it until u reach a dosage of 300mg x3 daily or more) ~Lidocaine Patches ~Fentanyl Patches ~One of the...
I am sorry to hear you are dealing with these types of issues as well. Have you tried the cream I mentioned though? I am fortunate she saw me as initially she was booked for months so it was going to...
Hello straydog I was on remicade for 4 years and I thought it was a miracle drug as it put my crohns basically into remission which was nice as I was all ready more then busy with my RSD throwing...
External RSD is able to be treated with the correct type of PT treatment which involves finding a physical therapist that has had previous experience in treating RSD/CRPS so they all ready have an...
straydog- I had been told by another about the use of a pacemaker for the stomach, but there's a few issues, first just a few months ago in June I was in for a SCS to try to help with my pain from my...
Thanks White Beard, I agree 100% with you I'd rather just be working too. My docs told me to apply for disability in the beginning and I refused and tried to work against their recommendation but...
First off once again thank you for all the comments. Laura- It does sound like some of the stuff down in Australia is a lot more than in the US. Your 1562 in the US would be roughly 1608 which seemed...
To clarify the reason why my jaw dropped is because your amount is near 3.5 times more then me. So don't call it a pittance :( I am lucky my gastroparesis barely lets me eat cause I could not afford...
I'm not entirely sure why there needs to be multiple poking and prodding as I have had an epidural towards the top of my spine in attempts to help with my pain by using bupivacaine and other...
If my jaw could drop any lower it would fall off and go through the earth and end up in china. WOW I mean just WOW...
For any of you that are on disability what is your monthly income? is that while being single or married? and what state are you in? I think I'm getting screwed over, guess we'll see with everyone's...
Hey holmesla, I am sorry to hear about your sleeping issues. My chronic pain from my RSD has left me with insomnia for years and I tried every over the counter and prescription medication possible to...
Hello Starsunshine, RSD is a very scary disease as it can progress and literally take control of your body, people do not realize how advanced the central nervous system is and often forget it is...
I really recommend the IV Lidocaine infusion to try and if some benefit is found then add the Physical therapy on top. I am glad he is able to sleep though that is very important and a big plus. I...
Hi belle66, While Endeavor08 has mentioned the key factor of talking to the school especially the guidance counselor which is very helpful in order to talk to the teachers but also help arrange a...
Hello educ8athome and welcome, I am very sorry it has to be that your here about CRPS or as I still call it RSD which was its first name. This disease is beyond cruel to say the least. In answer to...
stripey- I've not heard of any doctor push the use of imuran or prednisone while on any of the biologics, yes to the common side kick of methotrexate which is almost always put with biologics. I was...
Ishiman0627-Yep something just didn't jive right in your system with the imuran as a side effect is kidney issues. Your sepsis was most likely the mixture of imuran and the prednisone making your...
Hello Ishiman0627- I was on predisone for close to 4 years while I was a child. Main issue for me was mood swings and weight gain. Weird thing is most of the weight was chest up especially my face. I...
Wow you have been through a lot too. I'm sorry you've had to go through so much. I wasn't able to do sports as I was all ready dealing with issues in middle school and high school and surprisingly...
I think the reason I'm not being put back on methotrexate is because I was on it before back when I was on Humira and there was no improvement of my crohns nor arthritis. No matter what medication...
Talked with my doctor today and it seems I am going to have to suffer because all the pill form medications I am allergic to and then the multiple injections out there I can't get because of being on...
Im sorry to hear about everything being like it is for you, I hope things start to get better for you soon so you can get your procedure and be out of the hospital soon. Hospitals and ER's have...
Remicade is a nasty drug, I was on it for a good number of years and then it caused this problem. Ironic though Remicade a drug used to also treat Psoriasis caused my Psoriasis. Sadly all the drugs...
Hello JoeFalcon, Sorry to hear you as well had something like mine. Do you have Crohns or Colitis? What medication are you on for it? Mine was determined that the Remicade caused this which my last...
Sorry for late response to you want_2_be_well. I thank you for the info should this cream stuff not turn out to work completely I will definitely bring them to my dermatologist. So far I do not have...
I know I'm joining this conversation late but just wanted to add a few things. First Tramadol is a narcotic-like drug, what that means is its a opiate agonist which is a synthetic created drug to do...
Ok Mobic is a no go as I'm allergic to Advil and Lodine and Mobic is in that same family. :shakehead: Any other pill suggestions??...
I wasn't saying you didn't know, I was pointing out the obvious difference of RSD gastroparesis vs side effect gastric delaying and how RSD can cause other issues. I see I didn't know you resisted...
I believe they did put another two pain meds in through the epidural but whatever they were they didn't do anything. Which it kinda makes sense in my case as screwed up as my nerves are nothing is...
CRPSpatiet- We are sure its the RSD, true narcotics can cause issues but when narcotics have no effect on your system not even so much as a withdraw after dropping high doses cold turkey....
Hello tmjpain and glad to meet you as well. First off I am very sorry to hear about your headaches/migraines I had an aunt that had them very bad. Migraines/headaches are usually linked to heart...
First of thank you to both Judy2 and stkitt! Judy2 last night after no one answered I began re-looking over med lists again and I found mobic. I will be speaking with my doctor tomorrow and have him...
Hello CRPSpatient, I've been dealing with RSD for over 8 years now. Mine started from my left foot getting stepped on within two days my foot was dark purple with white blotches, extreme sensitivity,...
straydog nice to meet you and thank you for letting me know about Laura. Your very correct in the beginning it was basically like getting hit by a baseball bat because my doctors didn't know what it...
Nice to meet you as well Momto8kids, I as well have been on narcotics for years and been on just about all drugs imaginable. Sadly I don't get the option of rotation as cruelly most medications...
I would like to extend support to anyone dealing with RSD (Also known as RND & CRPS). I have been dealing with this monster since I was 13, it has destroyed my life as well as my family and...
I'm sorry to intrude on this conversation but upon reading the last post I wanted to ask this question to Momto8kids...You mention you moved to Oxycontin from Dilaudid because you built up a huge...
My doctors have had me on every RA/Osteoarthritis medications trying to find something to help alleviate my pain from my joints, especially my hips and knees the most. I am hoping someone has a...
I know I'm way late to responding and might possibly repeat suggestions so I apologize ahead of time if I do. But to get straight to the point I would suggest these medications for your issues....
Update! I got a call today and was informed my problem is actually Psoriasis. Mine is simply an uncommon form, as mine severely bleeds and weeps a lot unlike most cases of Psoriasis and mine has...
Hello Julia, I was on imuran for 13 years before my body stopped using it right and it stopped working for me. I have freckles but they are simply genetic and with me since the beginning, but in my...
Hello HMJ, I was on imuran for 13 years and aside from the blood work to check your liver there aren't really any side effects that ever came out of being on the drug. Imuran is an interesting med in...