Hello HHicks I really feel for what you are going through, I can totally relate, in my own way. I started getting pain and tingling in the left side of my tongue 11 years ago, it was gradual at first...
Hello, I was reading your posts to justjules regarding BMS. I too have BMS, and have suffered for over twelve years now, it certainly is a nasty thing to get, isn't it? Greatgrandma. If it is any...
Hi Susie, Thank you. Radles...
Hi Justjules, Are you still around? I have suffered from 'burning mouth syndrome with trigeminal distributions' for years now. I would love to share with you, if you are still visiting this site....
Hi Vicki, i too suffer from a form of facial pain, you get to your wits end, so i understand your plight. i have not had any of the treatments you have endured, just LYRICA, CYMBALTA AND XANAX at...
Hi, Interesting reading your feedback, thank you. I have been struggling with a nasty down mood when I first wake in the morning, and if I go back to sleep I dream pretty awful dreams...wake up...
hi holydiver, I really relate to pushing through with it, there is not much choice, so that is what I do too. My family don't know I am in pain most of the time, unless they see me rubbing my face,...
Hey Holydiver, This neuropathic pain is something else isn't it, I don't think you can even begin to compare it with other pain, especially when it is in the face. I felt pretty down the other day as...
Hey Holydiver, I have left sided facial pain, in my eighth year now, it is unrelenting and sometimes I just can't believe this is happening to me...it is cruel. Lyrica was the first drug i was...
Hi Ryobi, I slipped on my balcony and broke my little toe about 8 weeks ago,it was bent quite out os shape. My doctor strapped the top of it to the next toe and told me it would heal quickly....this...
Hey Tasaulka, I was interested to read your post, I too suffer with a form of Trigeminal Neuralgia and would rate it an 8 also. During the day I find it more bearable due to distraction, Cymbalta 120...
Hello all. Yes it has been a while since I posted, just plodding along and trying to deal with this nightmare. I have given up hope it will go away on it's own, ah life used to be easy!...
Anyone out there suffering from atypical facial pain, burning mouth syndrome or a form of trigeminal nerve pain that is a constant pain but not the sharp stabbing like pain? Would love to talk to you...
Hey Purple, I have not been on HW for quite some time, I was wondering how you are traveling and if you have found any relief. I also have FP and would love to hear how you are coping. Radles...
Hi Suzanne I know I have spoken to you in the past...do you have headaches on one side of the head only? I am going to try a cold pack and see how it goes. I am so fed up, I thought the facial pain...
Hi tmj, I would like to also wish you well, I will pray that those horrid headaches buzz off and leave you be! I know absolutely nothing about methadone, but was wondering why you ave not been on it...
Oh dear Mindy, how horrible for you. I have experienced the dread of explaining my situation to yet another doctor, and the fear of leaving with still no answers to my problem. How did you go today?...
Hi breezyp, I am on lyrica and cymbalta for the nerve pain in my face. I can take tramal when needed. Other than feeling occasionally shaky and spacey, well I am coping with this combination. If I am...
Hi. Mm, I am so sorry you are having such a tough time. I can't even begin to imagine how you have managed to juggle children and a fiancé, along with the pain.... you have been doing so well, hang...
Hi Shrub, I live in Sydney too, what a small world. I have not seen you on here before tonight. Just wondering if you are getting relief from your medications? I am on lyric, cymbalta and Xanax. I...
That was so good. Thank you for sharing the poem, it has made my day. Radles...
Hi Snelheid, I just read this thread and am feeling excited and relieved for you. You have a lot on your plate so it must be taking a lot out of you. Get all the rest you can. I learnt a lot about...
Hi Suzanne, Good to hear from you, and thank you for the support. It is scary, I am like you, one day at a time. The doctor tells me it probably won't get any worse, but not knowing if it will ever...
Thank you Dani, I hope the facial pain you are experiencing is short lived, it is frrustrating as you say. For me it is more than the pain that upsets me, it is the uncontrollable pulling and...
Hi splasdancer, so sorry to know that you are going through bad times, will pray for your family and send out some strong vibes. Radles...
Thank you guys for your kind words and suggestions, the evenings are the worst. I am thinking about trying acupuncture, I see a pain psychologist and it has helped. I lay my jaw on a heat pack last...
Hi ER, it is 2am here so I am not making too much sense, getting sleepy. I have Burning Mouth Syndrome with Trigeminal distributions. You are right, it is a living nightmare. I am sorry to hear about...
Ouch. I am so tired of this unrelenting facial pain, it is exhausting and wears me down. It is like my head is in a grid, I just want a break from it, it has been nearly seven years and there seems...
Hi Krw 135, I live in Australia. Your Medicaid would then be the same as our Medicare I guess, but we have private Medicare too. R...
Jim, I am so thrilled for you, must say I was worried. What is this Medicaid you all mention? R...
Oh Suzanne, it makes me so sad to hear of your plight. I have shocking jaw pain all day everyday, it never stops, but the headaches are the worst when I get them, so I kinda understand. Headaches are...
Monica, you made me smile when I read where you waned to slap the rheumy, you at least still have a sense of humour. I enjoyed reading such a positive letter, it all sounds good, so I hope it goes...
Hello Julie and welcome to HW. I have not been a member for too long myself, but it has been a great place for me to 'go' when I get time to myself most days, I love to log in and read how everyone...
So sorry to hear about Oliver, I know how upsetting it is, all happens so quickly. I had my dog on a leash and a small dog ran out and attacked her! Now she is so jumpy and nervous when we go for...
Thank you....
Gotta say all of the above took my mind off my pain for a few seconds! I have been told that Lyrica can be taken indefinitely and has not been shown to be a problem, does anyone know any differently?...
Mine is also pretty boring, my dogs name is Radley (from To Kill a Mockingbird) and I call him Radles! Nothing to do with my facial pain at all, first thing to come to mind. In hindsight I can think...
Hi ER, Would love to talk more, shall email you, thank you. I am with you, I cope and that is about it! Radles...
Hi SS I can't imagine what you go through with back pain, let alone the surgery, how did all your troubles start? Hi Skeye, Thank you for your response, I would be very grateful if you didn't mind me...
Wow, you have a great knowledge, thank you SS. I don't feel that I have been offered much pain relief at all, and sometimes I have wondered if the Specialist realises just how much pain I really am...
Thank you SE, I am just reading the link you posted. Radles...
Thank you all so much for your replies, it is great to get some feedback, and just to know that there is support out there helps so much. Fortunately for me I don't have the shocking electric...
Anyone out there with trigeminal nerve/burning mouth syndrome? radles ( I added a title to your topic)...
Thank you Shannon. I must say I overwhelmed by the support you get on this site, it is wonderful. You are right, pain is pain, and reading about others experiences and treatments is so helpful. Is...
Hello, Thank you all so very much for your kind replies, I feel so thankful to have found such a supportive and caring group of people, it feels so good to talk and be heard. Mike, sorry, I may not...
Thank you Skeye and retiredmom, I greatly appreciate you replying to my letter, and I am so glad to have found this site. It feels great to finally talk to people who do know what you are dealing...
Hello, I am new to this site, so hello to you all. I am interested to know if anyone has experienced symptoms similar to mine, I would love to get some feedback. Six years ago my tongue started to...
Hi, I am new to this site today, so hello to you all. I have had facial pain for six years now, it started in my tongue and just got progressively worse,spreading to my tooth and jaw, it is a...