Michelle,Would love to hear more of your AA experience. Sounds like we have an awful lot in common. I'm at a pivital point. My PM is moving & I have to find a new one. There aren't many to choose...
Hi APL, Since nobody's asked, what is a godcrape, and is it something you really want to call your friends? Sorry, I had to ask! Seriously, welcome to the forum. I've been a member for a short while,...
Hi,You have already gotten more than you bargained for in good advise so far, but I'd like to add my "two cents". I had my first surgery when I was 25, almost 25 years ago. It was a lumbar...
Josh, I know where you are coming from & I think I can offer you a ray of hope. I had my right hip replaced 2 years ago. It was a complicated surgery because I have adhesive arachnoiditis so I...
Dear Strapped,I'm so sorry about your troubles, but I'm so glad to meet you. You are the first person I've met with adhesive arachnoiditis. I want to tell you that things get easier, but I wouldn't...
Hi everybody. I had a back-to earth moment this weekend. Haven't done much house cleaning since I have had the arachnoiditis, but I looked around on Saturday and realized the toilets really needed a...
David,I've been thinking about you a lot these last few days. I can't imagine how hard it is to wait for these test results. I'm praying for the best for you. Hang in there; hopefully it won't be...
Hi all.Sounds like everyone is in about the same shape. I had a lot of paperwork to do this weekend, but woke up with so much back & leg pain, couldn't get started til early afternoon. Hate...
David,I am so sorry to hear your news. I hope that there will be other explanations for your weight loss than a new form of cancer. After being with you all for such a short time, I can easily tell...
Matt,That was a wild story. I get so fed up with all of the red tape we have to go through in order to get our meds. My doses of oxycontin are so high, I can't imagine what people are thinking when...
Hey,I'm really embarassed. I told you about this about 2 weeks ago, and you responded to me. I was going back over what I've written, and found your post. Even though I've given you some additional...
Dear David,I don't know whether congtatulations would be appropriate under the circumstances(ie, we are a group that suffers from incomperable pain), but the fact that you have had the opportunity to...
Thanks to all of you who took the time to write back last night. I was literally in shock. He's been my doctor for 7 years and is one of only two PM docs. within 100 miles. The other doc was my first...
To all of my new friends. I think God placed me here with you at the right time. I went to my PM today for my monthly/semi-monthly appointment, and found out my PM doctor is leaving his practice at...
Hello Straydog,I just wanted to let you know that he did use the flouroscope for guided imaging when inserting the catheter. He had to since I have so much scar tissue back there. I know he had a...
Hi there. Just wanted to ask you a little more about actiq. Do you have to have a diagnosis of cancer or can it be prescribed for CP? Is it up to the insurance co.'s or the FDA? I loved the Fentora,...
Sorry to have been so long winded. Just releived to have someone to talk to. No one has ever understood what it's like. I'll make my future posts shorter. Thanks so much for all of the good...
Good morning. You can't imagin how excited I am about the possibility of these alternative suggestions!! Actiq sounds extremely promising if I can get the insurance company to approve it. Was yours...
Thank you so much. I will do as you suggested and speak to my pain management specialist on Tuesday. Maybe there is something he can do. We'll see if there isn't some way to get around it with the...
Will do! I'm so happy to have found you all!...
Thanks. I have a doctor's appt. Tues. and I can check it out. If you can find out & let me know, I might be able to get a script. My doc. is willing to do anything he can to help me. This sounds...
Hello Screaming Eagle. Thank you for your warm and sympathetic welcome. I'll adress a few of the points you mentioned for informational purposes, and hopefully to solve a mystery. First of all, the...
This is my first visit to any chatroom, so I'm a little nervous about opening up. I have an incurable syndrome called Adhesivie Arachnoidits because it affects the aracnoid layer of the spinal chord....