How come Dr. LaFleur won't prescribe you the Actiq? He's a nice man I met him a long time ago. I get both Fentora and Actiq but I see the owner of Houston Pain Centers, Dr. Burton. He use to run the...
Susie, Am I allowed to answer her question since you said do not post on this thread? Btw, I am here everyday reading the boards. Just don't post much. I am not always logged in so it may not show up...
That would really upset me if I had it on and he didn't seem to care. I mean that's proof right there something ain't right with the urine test. If you don't want red flags put in your medical file,...
Were you wearing your patch the day you went in for the negative urine test? If you were, did you show your PM doctor that you had it on? If you weren't wearing it, why not? I assume they had to send...
I don't post much anymore but try to contribute when I see a thread I can offer advice on. If the doctor who's prescribing you the Fentora isn't willing to fight with your insurance company, you...
I have United Health Care thru Medicare. I am in Texas I do not have cancer and have never had an issue with my insurance paying for my Fentora (same as Actiq more expensive). They just wanted to...
I was so glad when I got off all those pills and tried the fentanyl patch. It has been a miracle for me. No side effects and so much better pain control I am on 250mcg And use both the gel patch from...
I am here! And it totally made me smile to see someone actually missed me around here. Thanks Tina! I lurk everyday. Just been bad about posting. My doctors are trying to taper me off the steriod...
My two favorite fentanyl patch brands are Mylan and Actavis. I have tried all the others and these are the only two l like....
Welcome countrygirl! I have NF type 2. Eventho I have had many many brain tumors I am doing well. My pain is the worse part of having NF. I will write more later. It's 6am and I couldn't sleep but...
Welcome, Pete. I have had brain surgeries also. Hope you are doing well. You seem to have a fun personality. My dads name is Pete. He's my best buddy and biggest supporter. Maryann...
That is so crazy your withdraw started so quick, but I guess with the fentanyl patch it's not surprising. I never take mine off in hot water. But that's me and its probably best other people be safe...
LOL poor Matt. That's funny but I bet your mom enjoyed that! Nothing new with me, Tina. About the same as you- waking up with migraines and being nauseated. What a life, haha....
This is a funny thread!! Tina keep us updated. I want to know if it helps or not. Maybe it would help me? My entire face is almost paralyzed tho from nerve damage so not sure how that would work with...
Yeah it was like a week or two later I went back and asked for the second bottle. They were really nice about it and said no problem. Didn't even ask why I needed it but I told them anyways. I do...
I wanted to mention that if you go to your pharmacy and ask they will give you an extra bottle with the prescription label on it. I remember back when I was on oxycodone I wanted an extra bottle to...
I just looked at my boxes of Fentora and what you described about the way it was open and glued back is definatly possible! Just wanted to mention that for those that aren't familiar with what...
I don't know if people realize how painful TMJ or jaw pain can be. I had a tumor causing jaw pain a few years ago and it was by far the worse pain I have had yet. Rocky I hope things get better for...
Skeye- you sound like my mama, and I mean that in a wonderful way! She said the exact same thing you did. She was on the phone with the insurance people asking what is an end of year review anyways...
I wasn't very surprised my doctor fought so hard for me because he is an awesome doctor and has done a great job taking care of me and my pain. I was more shocked his medical assistant was so helpful...
So I go Friday Dec 28 to pick up my Fentora script. I don't always need an appt sometimes I just go pick it up. Anyways take it to the pharmacy like always. My pharmisist already has my meds in stock...
CPP who think opioids are the only answer are what I call "chemical copers". My fentanyl works great but it's not the only answer. I do so many other things to help my pain and I get so annoyed with...
Cool I will be sure to watch it, but I agree with SB. It's probably easy for Ricki Lake to preach treating pain without meds if she has never lived with CP before. Or maybe she does. Will watch with...
This makes me so sad. So many people complain of their QOL being so horrible when they should be thankful they aren't getting a blood transfusion on Chrostmas. Sorry just in one of those moods right...
Well I had my cataract surgery and I can see again! Whoohooo. My eye doctor is concerned about a few other things that may be causing me vision trouble that may be caused by the radiation I had years...
Yeah I agree with Tina. My patch is 250mcg every 48 hours tho. Works well for me but some days I don't even wear it and just take the Fentora. I never feel any type of withdraw so that's good. But h...
I agree with everyone else Espically snowbunny (what's new) lol. Anyways I did take Percocet my entire pregnancy. Was suppose to stop or ween down before he was born but my water broke five weeks...
I don't think they will kick you out for being three short, but I do find it odd they do a pill count every single time Espically if you are never short. I guess some docs are strict like that. Just...
Jane- sending you lots of prayers and positive thoughts. Everything will go great I just know it. You are a strong person and it will all be over before you know it. xo Maryann...
My weekend was fun. Oliver had a huge birthday party. Turned out great. I had a full body PET scan and chest MRI last week. My breathing still isn't great and the PET scan will check for everything....
It is funny in a way because we all wanna do things our own way. I am just glad she is okay and hopefully will continue to follow the doctors orders. This is a long thread. We all care!!...
I know this is a late reply but wanted to say wonderful her surgery went so well. I can't believe what she has been thru so quickly since she first hurt her back. And I find it amazing she isn't in...
Awe thanks Brynlee. My son will be checked for brain and spine tumors, so yeah no fun! Snowbunny is one of my most favorite people here. I just love her. But yes I have always been told that GA is...
It is actually very safe and common to use GA for an mri. I see it done all the time at MD Anderson. Of course this is all done in a hospital setting but it is safe and done all the time with...
Well I am glad everything has worked out but what a mess you went thru. I wouldn't be able to deal with a PM office like that. You should tell your doctor how they are running things behind the...
Shell- I had this same problem when I started my Fentora. My doctor wrote the script as take 1 or 2 every three hours with 252 pills. Then he handed me another script for my Fentora dated 30 days...
Awe your poor boy. It's always hard seeing our kids in pain. I have a three year old son so I guess this is what I have to look forward to raising a boy, huh? LOL About the ketamine, I have always...
Hey WB good to hear from you. Yay for the new grandson on the way! Seems like it will be anyday now. Hopefully they don't have to induce her and he comes naturally. That's always easier. I am sure...
I always keep antibiotics in the house. Seems like doctors are always giving me refills on that stuff so I always save the bottles for emergencies. But anyways hope you do feel better soon, Matt. I...
Well I am home. Yay! My cataract is bothering me making it hard to read some of the replies and type this. Surgery is December 12. Matt that is horrible and I can understand why he got so attached to...
Yes I finally got a room tonite. I sure did like that bed in the ICU tho. It was the most comfortable thing ever! I am hopefully getting to go home tomorrow. The doctor said everything was improving...
Thanks Susie, Chart and LivingColor! I really appreciate it. The doctor said I can hopefully move out of the ICU today and into a room....
Hey friends. Gotta keep this short but I am in the hospital with Pneumonia. Been not feeling well for a week and woke up yesterday morning unable to breathe. My mom called 911 they EMS took me to the...
Thanks for the update David. On both of you. The other thread was getting a bit too long for me to read. Guess that's all I can say. You guys know what you are doing and hopefully everything with her...
I have lived on the Gulf Of Mexico in Texas all my life so hurricanes are just a part of life down here and I truly understand what you are all going thru. I have enjoyed reading all the updates in...
All of my brain tumors (well most of them) have been meningiomas. Growing up we always called them the "bad" kind of tumors. But they have all been removed (except for the ones left) without much...
Yeah I would just tell them you have been tapering for the past couple of months and definatly don't mention you have been taking your husbands. I don't see anything wrong with it, but a PMD won't...
David- hope you are feeling better today. Tina- how are YOU doing?...
I miss my snowbunny!! It's weird not seeing you reply as often. I love reading your post because you always say what I want to say. Course I have told you that a million times now, hehe....
I am doing great. Got my refills today. Had a great weekend alone. My dad took Oliver camping at our town family night. He wore his costume and went trick or treating at each tent. I was glad to have...