Hey all - I am usually on the chronic pain forum but have a question more specific to CFS. Has anyone taken kutapressin and if so, any thoughts on the injection vs the gel? I had great improvement...
Sorry it's been confusing. I know there's been a lot going on which can make it hard to follow. I am back with the old PM because she'll prescribe while getting patients settled. I spoke with my PCP...
Thanks for your replies. Here are some answers to the questions - I do not anticipate going on a med holiday and then being good to go without meds. I just want to get off and see what is causing...
Hey everyone! Has anyone been treated or evaluated at the Mayo Clinic? My doctor may be sending me there and I was hoping someone may have some insight for me about their program. My PM doc here in...
I definitely won't do any changes without checking in with doctors. I'm not even sure I can do a complete med holiday as an outpatient. Jeez. Such craziness....
i have used both naltrexone and nasal ketamine. unfortunately neither were that helpful. the ketamine made me feel pretty altered, which intrinsically helps the pain some but i don't like feeling...
I took butrans for awhile and also had the itching issue. I also had strong drowsiness once i went above 15mcg. I echo the concerns about your high dose, particularly if that is your starting dose....
I am sick and tired of issues such as lightheadedness/dizzyness/drowsiness, hand tremors, and most of all memory issues. I do not know if any of them are from meds but I am on so many at this point...
hey all - i found an amazing body pillow that supports the back and legs. i used it last night for the first time and slept great so i thought i'd pass it along. doesnt seem ideal for those who sleep...
My 13 y/o son suffered a very bad break to his tib/fib, dislocated ankle, and broken growth plate last night. Before I got to the hospital (he currently lives in another street) they set the bones to...
thanks Nick. how do I get those? what do they do?...
Hey all - I am a regular on the chronic pain forum but this is my first time on this one. Has anyone had ECT and if so, what were your thoughts? I am considering it, after an over 10 year battle with...
that's a good idea. I will look into the memory foam. I can take melatonin but it doesn't keep me asleep. only lasts for a few hours. worth trying again though! I just need to sleep. thanks for the...
I have changed so many meds over the past few months and I think my body is still confused. I am finally off of the butrans because I was having a lot of side effects but I still cannot sleep. I am...
Hey all - I have been having a lot of side effects from the butrans (itchy site reactions that seem to get worse with each patch, drowsiness, general detached feeling etc) and did not feel as though...
has anyone taken it for CP? help? side effects? Starting in next week and wondering what people's thoughts are. Obviously we are all different but curious to hear stories from others... Hope everyone...
I am in the same boat! If you look below to my post entitled thoracic pain pump there is a lot of good info about people's thoughts re: a pump. Hopefully others comment here too. Good luck! Also,...
I took lexapro for a while for depression and the withdrawal is terrible. I didn't have issues while on it though. It is a med that needs to be SLOWLY titrated off of. It is so hard to watch our...
I have tried vicodin, percocet, opana, fentynal patches, methadone, suboxone, butrans, flexiril, dantrolene, valium, lyrica, gabapentin, zonegran... ketamine infusions and trigger pt injections, RFA,...
Thanks for responding everyone! It makes me nervous to hear I am the first on the forum to have a pump for thoracic spine. It feels so invasive and I am only 28... the Dr basically said either live...
I had frozen shoulder after my labral repair surgery in 05. I did have surgery to fix it - not a manipulation but another laproscopic surgery where he cut some things until it moved b/c my dr does...
I had never heard of clonidine for pain either. My son takes it for anxiety and it is indicated for blood pressure. I know suboxone and butrans are the same - suboxone made me too groggy. It helped a...
a couple of people have mentioned gastroparesis - i have it as well. in my experience drs aren't checking for it that often. you can get a gastric emptying test to evaluate for it. something to ask...
I just saw the post re: pump for cervical spine but figured I'd start a new thread with my question re: thoracic. Dr today recommended it and I read up on Medtronics and watched their video. I have...
I am so sorry to hear about your difficulties. Have you spoken with your doctor about any medications you may be on?...
Hey all - I am on the chronic pain page but haven't posted here yet. I was diagnosed with Lyme over 10 years ago but then the docs thought it was a false positive b/c the titre levels stayed...
I have tried epidurals, facet injections, RFA, ketamine infusions, etc with little improvement. I have had 11 surgeries and only 1 resulted in a decrease in pain. Spinal fusion seems like such a big...
I hate how easily I can hurt myself! I simply tried to twist off the cap of the OJ and had a shooting pain in my shoulder. Now any time I try to lift something on an angle or twist my arm I have pain...
I had a strep test and the rapid was neg but since my roommate had it last week (her rapid was neg too but her send away culture was pos) dr is assuming I have it too and just gave me pennicilin. She...
I had the same problem with my son's adderall a few months ago. For awhile I had to call 6-8 pharmacies every month to find it. Such a pain. I echo everyone else about being careful with the...
does anyone else feel as if their pain gets worse when they're sick? I have strep throat (or mono, but praying it's just strep) and my body is on fire! It is bad enough having chronic pain, don't you...
I hope it helps you! I've had 2 outpatient ketamine infusions and 1 ketamine trigger point injection. I did not like the experience either and did not get any pain relief. It is very scary to be that...
I also apply them on my side under my bra or on my hip under the side of my underwear. It says not to apply in the same place (when replacing) within 21 days - so change positions every week....
I think that makes sense. Once the pain is more under control we notice other symptoms that were back burnered while focusing on the most debilitating problem. Have you considered therapy? That can...
I would hold off on taking norco until talking with dr... I take butrans and dr says I cannot take opiates while on it b/c of breathing complications. it stinks not being able to take anything for BT...
Are you still in Philly? There is a pain dr at Drexel, Dr Gupta, who I really liked. I only saw her once as I moved away from Philly almost 10 years ago but flew in for a consult with her about 3-4...
thanks all! I actually take the baclofen for my stomach but am a grad student (dr of psychology) and can't afford all the memory issues I've been having. I walk out of a supervision meeting, or class...
I would definitely find a new doctor. Getting second opinions is rather common place in medicine and as long as you are open about it I do not think it will be a problem. Pain needs to be controlled...
has anyone had any issues with memory and baclofen? I've had a lot of memory issues for the past year or so and of all my meds that seems to be the one that can cause problems... I tried going off of...
I always request the vicodin 10/325 so my liver takes less of a hit. since the tylenol does little for CP anyway I would recommend asking for less whenever possible. Our bodies go through enough!...
I have also had issues with memory loss recently. my doctors think it might be my baclofen so I've switched meds (I took it for my gastroparesis) however the new med doesnt help my stomach as much. I...
has anyone tried it? did it help? does it hurt?...
thanks so much for looking into it! I have read quite a bit about the procedure and am also seeing the mixed reviews. Though, I guess that's most procedures! My major concern is the stenosis since I...
Sorry the rfa didn't help you, didn't help me either. I was looking into the cold rfa but the dr didn't think it would work since the reg rfa didn't help a whole lot. glad your knee is doing better...
has anyone had the IDET procedure? I had a dr recommend it but she does not have the machine for it and I need to find a provider who performs it. I have not been able to find much info on it online...
I have taken Opana and it helped some but I'm probably not the best person to ask since most meds don't really help me and if they do it is only for a short time. What i liked about it is that it...
that is helpful, thanks. half the docs say i have fibro, others say no. i'm not entirely sure but a lot of the info for living with fibro is definitely helpful....
I tried to download the pain diary listed in the chronic pain 101 thread but apparently the american pain foundation closed down. Does anyone have a copy they could post? I found another one I could...
Thank you all for your responses. I have tried most mainstream meds - oxycodone, lyrica, gabapentin, soma, baclofen to name a few. I've tried ketamine infusions and ketamine trigger point injections...
Hey all - I am new to this but figured I would check in and try it. I was diagnosed with various types of chronic pain after an injury in 1999 when I was 14. I have been told fibro, RSD, chronic...