Susie and Karen, Thank you both so very much for thinking of me and checking in. In the week after surgery I went on our planned trip to New York City. I actually felt a lot better. There were a few...
Update... surgery went well. They opened both incisions because the pump felt like it had been floating for several days and actually turned on it’s side a few times. I could tap on it and feel fluid...
Thank you both so much. I have been an exemplary employee. He’s actually used me as an example of dedication and loyalty. Now all of a sudden because I didn’t listen to them and their opinions about...
Got an email from neuros CMA. He offered to try a round of steroids to see if the inflammation will go down and stop the CSF leak. She said if it didn’t help then i could schedule surgery for repair...
Well, I’ve seen drs and told them about the swelling in my back for a few weeks now. I decided to take a picture and email it to the surgeons nurse on Friday and that has gotten the ball rolling....
I did see your comments. I will be asking my pm when I see him next Friday. He is the one who gave the diagnosis but I am not yet certain when he did. The operative report showed causalgia as the...
Thanks again Susie. I have heard about it and I will ask about it when I see him on the 15th. BecUse of that one drs poor care and awful shaming judgment, I won’t go to the er unless I’m dying. Even...
I see the surgeon on Monday so I’ll actually get to talk with him. The NP at PM didn’t even look at my side or back when I went wed. I’ll definitely aware of the challenges with Methadone. It was...
That’s what I suspected too and why i called the surgeons office the Monday after my surgery. The nurses who did my discharge didn’t even have the right paperwork for my procedure. They gave me info...
The NP didn’t see anything wrong with the front. There’s still a lot of swelling. I see the neuro on Monday. I can see the tubing where it exits the pump just under my skin. I told her about the...
I emailed his office a few days after surgery and his nurse just told me to talk to pain management. I see the PA tomorrow for my first fill-up so I guess she should be able to give a good opinion....
I have posted a few times before but since my last post I decided to get the pain pump. The surgeon couldn’t get the catheter placed conventionally because of my unique anatomy. So he had to do a...
My entire life from infancy on was filled with difficulty and I’ve never been one to say poor me. I was the recipient of every kind of abuse from the age of 20mos to 16yrs of age. I have always known...
wow. I wonder why the Drs say they've "never heard of one causing pain" when there are so many of us in here that report it. Isn't that false and misleading information? I know you weren't...
As I’m sure you can see, I had extremely poor pain management prior to this dr I currently see. He just upped the dose every time the pain wasn’t well managed. They knew of several problems with my...
I do have pain meds. I used to take 180mg of methadone for pain management. Since I've seen this dr, Ive come down to 50mg a day and I take Oxycodone for breakthrough. During the trial because of the...
It depends on the day, Sometimes its golf ball size, sometimes its a little more diffuse. Lately its been that golf ball type pain across both sides of my upper back. My lower back has been waking me...
I've been on Baclofen for the last several months along with Tizanadine. They had given me some relief but it was the Nortriptaline that seemed to help more. I feel like the unit may have moved at...
I don’t really know what to do right now. I’m the kind of person who hates things hanging over my head waiting to be done. I’d rather just do whatever it is and be done with it. I’m afraid I...
Back in March I made the biggest leap of faith so far in my life and had the Boston Scientific Paddle lead implanted at T3-4. This was highly recommended because I have severe pain upper and lower...
I hope you have received answers by this time but I do have another idea. My sister has had migraines and tension headaches for 12 years. They came 3-4 times every week. She had tried everything...
Good Morning all, So PM appointment went well. He determined that there is just a large amount of inflammation from both the dissection of the muscles at my spine and where they looped the lines on...
Its been several days and 2 trips to the ER because I just couldn't take the pain anymore. I finally get to see my pm today! The first ER visit the dr was wonderful! The 2nd one however treated me...
Good morning Melissa, I am not quite 4 weeks Post op from the SCS. I have the Boston Scientific Precision Spectra w/ paddle leads implanted at T5. I am a rare case that has both upper and lower back...
So I used the patch last night and it helped some with the pain closer to the surface but not where it originates, spine. I can't miss anymore work without possibly losing my job. I am the sole...
I tried calling them but the earliest anyone at his office can see me is May 1st. One of the Drs calle din a Lidocaine patch. I guess since the stimulator is working they aren't worried about it....
So I had the implant done on March 27th. They implanted it at T-5 and because of the twist in my spinal cord it was even more complicated and invasive. It took a long time to get the pain under...
Thank you so very much for that Susie. I really appreciate any and all of the info I can get....
I am getting the Boston Scientific unit. The rep I worked with during the trial was really great. He is an absolute sweetheart! Because of the rarity of my particular situation and the fact that no...
I've been reading a lot of them and did hear some of the horror stories. I just refuse to lose hope. I'm too young. Even through a severely abusive childhood I never lost hope. I still believe that...
Good Morning all, I am writing in because I can't really seem to get anyone to respond to me on any other forums I've tried so far. I'll give a brief history and then my current situation. I started...