Ok. I'll just speak with my doctor. However, sometimes my doctor tends to do things that makes little sense. For example, my heavy metals came back almost completely fine (a bit in the yellow range...
Ok, I will check with my insurance. Even if they don't pay, I feel like this would be worth it if it actually does work. I heard it has to be done with every drug to see if the drug works well with...
Ok, I will speak with my Dr. I was recently given some advice from someone on another forum about a genetic test I can take which shows me which medications would be best best suited for my...
Oh, crap. You are right! I forgot that when I signed the contract, I wrote down the pharmacy I used. Is it possible to use 2 different pharmacys? (one for the opiates and one for the other meds?). I...
straydog, since Walgreens did not outright refuse to fill my meds, going to another pharmacy next time would not be considered "pharmacy shopping". I dont think any flags would be up, since they...
I'm on 30 mg oxycodone 3x per day, and MS Contin 15 mg 2x per day (among many, many other meds - which are not opiates). It has been a nightmare the last week calling Walgreens and my Dr back and...
@skeye, I should have mentioned that the tingle mode DID work on the St. Jude, but the mode I did not feel (burst) didn't work. Since I would be using tingle mode only, I am leaning heavily toward...
Please see edited post....
Please only respond if satisfied with your decision. Thanks :) I trialed a St. Jude Spinal Cord Stimulator and it was not great. My dr said I could get another SCS, but not another trial. So, my...
My Dr. tried prescribing Levaquin for me and I said NO! I didn't want permanent ligament damage - thanks for letting me know. Actually, I felt pretty crappy before I took the Houttynia as well. I...
Yesterday was my second or third day of Houttuynia Tea (1 g/cup three x per day). I worked in my bed (on my computer) from wake-up (10 am) to 8 pm. I had not gotten up to eat all day. I was not...
I have had 3 different tests for Lyme, and never had a CDC positive, but on each test, I always had 2-4 bands positive and a couple of them were Lyme specific bands (Igenex, LabCorp [spinal fluid],...
My Dr. suggested Levaquin, but I refused because I don't need to add tendon pain and rupture to the mix. I would try Bactrim I think. Do you have Bartonella? As for the mold, I doubt it's that. The...
Thanks for the hug. Right back at you :) I'm moving to Cape Canaveral, FL soon, so I'm going to need help finding a new Dr. At least I'll be near the beach :) My current Dr. is not that great,...
Ok guys.... sorry for not replying for awhile, but I had to stop my abx for four weeks to do Bartonella testing and then wait for them to come back. I finally went to my Lyme Dr. to find out my...
I did call. They said they didn't know, then they told me a technician would call me back - they still haven't....
Girlie - no explanation on the website as to why no IGG. It's as if the customer should already know....
Hello. I am being tested for Bartonella soon and I was advised to take the IFA from Galaxy Labs. I'm looking at the test requisition form, and it has IGG ONLY! Igenex IFA is almost $100 cheaper AND...
bluelyme- yah, Rifampin and Azithromycin is the plan after I test (whether it's positive or negative). I think I'm going to go with just the FISH Bart (not babs) from Igenex, and then the Bart IFA...
Sorry, Rikki, I have to preserve their privacy. I literally just googled "Lyme *state* *initials*" and the Dr. was like the 4th link lol....
This is such a sensitive topic for me. I used to be a body builder before Lyme. I went on a no-grain diet and lost 25 pounds (most of it muscle). It didn't help at all and now I may never get that...
Hello. I am at the University of Florida and my roommate is a brilliant Electrical Engineering major. He doesn't even have Lyme and one of his role models is Royal Raymond Rife. He actually bought a...
Holy crap guys. I'm going to leave out names in the following story to protect identities: My Mom and I were watching a Lyme panel with some of the world's top Lyme researchers, and my Mom looked one...
Traveler- I've gotten so much info out of this thread, that I'll need a month to digest it all. Is there a way to just stop people from posting any more on this one? There's only one more question I...
http://finance.yahoo.com/news/breakthrough-lyme-disease-test-next-100000152.html ...
bluelyme & madisongrrl - Thanks for the info. I have a lot of researching to do. I'm supposed to started a job Monday (from home coding an app) but I don't feel I'm ready. I'm always in pain and...
madisongrrl- Do you have a link to the mile HBOT on lyme.net? I tried searching for it and couldn't find it. BTW, this forum (HealingWell) is one of the best I've ever been to - not only just for...
Thanks guys. I know Quackwatch also condemns Rife machines, which I believe work. If my roommate (who is a very smart Electrical Engineer) believes in Dr. Rife than I do too :) My Dr. gave me the...
My LLMD wants me to do a heavy metal test through Doctor's Data (even though I did a urine AND blood one through Quest and they didn't show anything). I've been reading about a LOT of lawsuits and...
magoo2- Ok. I'll look more into it when I have time. Right now my Pain Management nurse is playing games and not doing my prior-auth for Suboxone, while I slowly run out and am about to start...
bluelyme - What does this mean: "100hbot dives iv h202"?. Ok. So I definitely need some bee venom. Any suggestions on where to get and what brand? Also, does Burrascano see people via Skype? I cannot...
Traveler- I've always had a good body, in terms of never getting sick or anything like that. Even though I have Primary Immunodeficiency, I still never get sick (makes no sense). So, maybe my body is...
OldSalty- So basically even if I test negative, there's no reason my Dr. shouldn't be diagnosing my co-infections clinically. Even if I fail the Igenex tests for Babs and Bart, doesn't mean I don't...
Thanks for the info about herxing. I guess I'll use pain as treatment guidance than. I have 3 herniated and 4 bulged discs and mild spinal stenosis. I was hell-bent on getting surgery, until 5...
Girlie- thanks for the info :) Traveler- I take Alpha Lipoic Acid, Fish Oil, Milk Thistle, Turmeric Curcumin, N-acetyl Cysteine, Benfotiamine, Agmatine, Magnesium Glycinate, CoQ10, and about half a...
Girle- Did you test Bart positive through Igenex? Which test (specifically) did you use?...
girlie- Thanks for the Bartonella knowledge. Good to know you didn't get stretch marks till a few months in. I feel pressure when I sit too! Except the pressure builds up at the base of my skull. But...
magoo2- I haven't had any root canals and know there isn't any metal or infection in my mouth. My uncle and grandpa are dentists. BUT.... I did mess up royally when I originally told you guys I was...
ChickNorris - I want to get test by a good lab for co-infections before I start spending after anything. But it does look like I have bartonella just going by my symptoms. I don't have any of those...
Here is my Pain Timeline with symptoms. I hope its. not too long. I’ve been in a series of car accidents and skateboarding accidents, but never experienced any long-term pain from them. In March of...
My Lyme doc seems freaking clueless as to co-infections. Honestly, I really need to find a new one. I'm really hoping the IVIG helps with the nerve pain, because I am on Lyrica, Neurontin, Tegretol,...
Nice to see some of you I haven't seen in a while :) Girlie, the Rocephin wasn't too much. Actually, I didn't herx ONCE during all of my antibiotic and herb trials. We added Tindamax (only 250mg MWF)...
I was diagnosed with neuro-Lyme from my CSF and put on Rocephin IV 2g/day and 200 mg minocycline per day. I've been on this regimen for 5 months and there have been NO changes. The Dr. is taking me...
I'm on max dose lyrica and almost max dose neurontin. My nerve pain is just so bad that nothing can cover it up. Anyways, Lyrica is definitely the better of the two for my pain....
I don't take the benzos religiously, only a couple days a week - I'm not physically addicted to them. They barely even help, so I don't care if I have to stop taking them. I called the new Dr's...
Yes. They are helpful, but when it comes to chronic pain and difficulties with drs over Narcotic meds, this forum is better....
Thanks for the suggestions guys. I can't tolerate exercise or activity of ANY kind. I can't even have sex. Activity makes everything worse, every time. I was getting better with PT, then one day, all...
I am currently at a PM dr, but I made the mistake of telling him I got sober in 2007, so he won't give me anything stronger than Suboxone because he thinks I'll just abuse it (NOT TRUE!). Suboxone...
I am a student. I don't have to travel FOR my job but I must travel to GET a job lol! I'm trying to get an engineering career fair in Seattle, WA. I can sit for short periods, as last time on the...
Thanks for the welcome! It's not the pain that I mind. I can deal with pain. It permanently injures me when I sit upright. Permanently. This is a factor not most people, especially drs, can fathom....