I had normal Upper GI w/small bowel follow-through, was negative on the Promethius blood test and my Crohn's was only found by the pillcam, which diagnosed it in the small bowel only. It was my...
I have really tried to make the fish oil supplements work. I freeze my caps and have no issues with the fishy taste, but the nausea gets to be pretty tough. I will continue to try, though I cannot...
I have hypothyroidism, but it was deemed "natural" and not auto-immune related....
I have ankylosing spondylitis and asthma as well as CD....
I switched from Humira to Remicade to help with both Crohn's and AS. Before the loading doses of Remicade were complete, I went into an arthritis flare that seemed different than all the other...
I have been on immunosuppressants for 6 years and actually started them while I was a wildlife rehabber. I still rehab opossums, squirrels, cottontails, jackrabbits, armadillos and songbirds in my...
I have Crohn's and AS and had symptoms of MS that included tingling and numbness of hands and feet, hand tremors, eye pain with movement. leg weakness in heat. The MRI was clean and the neurologist...
I was on Humira but wasn't getting enough coverage for the arthritis. I have AS but also went into a Crohn's-related arthritis flare, so I was switched to Remicade because the dosing is more...
I just started the oral methotrexate, but the doctor wants me to switch to the shots when I am done traveling because he thinks they "work better." He did not say anything about folic acid, but the...
Ides, hang in there. What you are going through is beyond comprehension. I definitely can understand the feeling of getting to the point where you feel like the only way to survive and not implode or...
I have the same problem with frequent urination--sometimes as much as 8 times at night. During the day, I will go, go again 5-10 minutes later and then again soon. It's like the bladder doesn't empty...
I am HLA-B27 positive, have AS and crohn's-related inflammation all over much of my bod. I am pretty sensitive to meds, and the best pain control med for me without being totally stoned is Ultram....
While on the Humira I started bruising alot. (This was not the case while on Enbrel) I got brusies from professional medium-touch massages, even. My platelets were checked and still normal, so the...
I was on Pentasa for months with no side effects that I noticed. Then I added in Entocort EC (9 MG/Day) and things started going whacky. Though my GI insisted it wasn't possible, I developed major...
I was on 9 mg of Entocort and 4 gm of Pentasa each day. As time went on, after the Entocort began, I developed major anxiety issues and hand tremors. When I was doing okay bowel-wise, we dropped one...
I have trouble with the nausea, too. I try ignore it as much as possible and then sip on COLD peppermint water (Metromint) to help it if it's really bad. My doctor gave me metoclopramide to help it,...
I went to Australia during the summer of 2005. I already had AS and was taking Enbrel for it but went off it since it was unlikely I'd be able to keep the medicine at the appropriate temperature. A...
Hi, I am new to this forum but have been on the Crohn's board for about a year. I have ankylosing spondylitits and Crohn's and am awaiting my neurologist appointment tomorrow for exploration of...
Ides, Yikes!! That must be kind of scary seeing an actual niche in your leg!! My wasting is even and is occuring bilaterally. Like I said, it's not real bad, but I hope to get in front of whatever is...
Has anyone with AS got muscle atrophy (wasting) that is attributed to the AS? I have started to lose mass in my calves, thighs, and shoulders. I am also developing some weakness, though it it not...
I have always exercised and was training for a marathon when the joint pain of AS started. There have been numerous ups and downs with maintaining any sort of exercise regimen, but I am convinced...