I am would appreciate any input. Here is my story. In 1997, I was misdiagnosed and given a complete hystercotomy. In 1998, I was diagnosed with Crohn's disease. In 2001, I had a bowl resuccution. In...
I have filed my FMLA papers. Mine for myself were accepted immediately. The ones for the boys that are "reviewing" before approving. The only downside is it is without pay. I have short term...
Here is where I am at. I have crohn's disease. I have a son who is currently ill (had a seizure and severe headaches currently undergoing tests and is 17) and another that is currently in rehab and...
Ok Rider Fan where the heck is the jujenum exactly lcoated in the digestive tract?...
Crazy Harry - I to am experiencing anemia. However, my hemocult (stool sample) came back positive for blood. Now anyone please feel free to correct me if I'm wrong because I'm no MD. It is my...
I had blood work done last week. Dr. office called today telling me they are ordering me some iron pills to take 2x a day and then more blood work in a week. They were all stressed out that my...
I'm not sure if the symptoms he has is related to being a CF carrier or something that has yet to be diagnosed. He has clubbed fingers and toes, sweaty palms and feet (I mean to the point his socks...
Finally, the doctor called today. He said that my son has one mutation. It is on PS1235R, which is suppose to be rare. The doctor also said that my son has two genes out of sequence, but they are...
How long did it take for you all to get your genetic testing back? I called the dr today and it isn't back yet. However it has only been 3 weeks....
I feel like it has been forever, but it has only been 2 weeks and 3 days. I'm trying to wait patiently, but it is driving me crazy. The upside to this is he really doesn't get respitory infections....
I have had my son at Children's Hospital in St. Louis for testing. He has a sweat test at 55 and the 2nd one was 62. They told me that the results were both borderline. Their levels are <40...
My son's other symptoms include clubbed fingers and toes and headaches. The doctors in St Louis said the sweat test range was: 80 was positive 41-79 was borderline Everything I ready on the net says...
He is seeing a Pulmonary specialist at St. Louis Children's Hospital. They don't seem to think it is CF. At least that is what they keep telling me. Since he doesn't normally have respitory problems....
My 17 yr old son has had two sweat tests in the past week. The first came back at 55 and the second came back at 62. The dr. has done the blood test, but said it could take up to 2 months to come...
I have a 17 year old son that has severe clubbing of his fingers and toes. After a long wait, I finally was able to get him into Chirldren's Hospital. The dr started some base line testing on Monday....
Can anyone tell me which of these two meters would be the better one? I am so new to the diabetic thing. I have dealt with Crohn's for years, but my son is now diabetic. Any help is appreciated....
Has anyone purchased a medical alert bracelet for CD? If so, where did you get it....
Stranger things can happen..... I was diagnosed with CD in 1997. I have two full blooded brothers neither have any stomach complications. I have two step brothers, one on my mom's side and one one on...
I hadn't ever heard of it until my son was in the ER. He went to the ER with a seizure, which he had no history of ever having. The nurse noticed his fingers and inquired about them. They have been...
I have had CD for 12 years and my fingers are fine. My oldest son, who is 20, has UC and his thumbs are clubbed. My middle son, 16, has all fingers and toes clubbed. He is just beginning to...
I was wondering if anyon has any information on finger clubbing. My 16 yr old son has clubbed fingers. The doctor is running tests, but the wait is killing me. He went to the dr with a seizure out of...
Has anyone experiences finger clubbing with CD?...
Yes, I am on remicade. I have been for about 4 years now. The xray report read that they were findings of healed calificied granuloma diseas in the right lung. The doctor says everything is ok. I...
Has anyone heard of this and can they explain?...
I developed this a couple of years ago on Christmas Eve. My foot was so red and swollen. I did have some Nexcare Foot Cream that helped to relieve the burning sensation. I soaked my foot in epson...
I went to the dr yesterday. He is wanting to do a colonoscopy and once inside inject steroids directly into the scare tissue where I had a bowel resuction and ielium removal in 2001. He seems to...
I have been on Remicade for 3 years now. It has been a miracale drug for me. about 8 weeks ago, I started having ear fullness. Then about 2 weeks later, I began a constant ear ache that wouldn't...
Can anyone tell me if they have experienced blisters on their tongue? On the back of my tongue not throat or tonsils, I have about 10 red blisters. They don't have white tops or anything. They are...
What is the name of the other type of arthritis that some of you on here have besided RA? I have read it many times, but can't recall it at this time....
I have had crohn's for 11 years. I have dealt with many up and downs. The worst being misdiagnosed to start with. However with that behind me, I have been on remicade for 4 years and have been doing...
I have had headaches quiet frequently since 1996. They start at the base of my skull. If I apply pressure right at the base it lightens up. I have been to the doctor many many times through the...
Wow...you show great strengh....
Gumby44 - I agree that I don't believe God gives any disease to anyone. Some things in life just happen....freak of nature. I do believe that God does want to see us all well and strong. It is my...
Thanks to all of you who understand. I wasn't trying to ramble just look to the brighter side of this disease. I have always been a believer that God doesn't give us more than we can carry. Sometimes...
A new way to look at this dreaded disease! I know that it is hard sometimes to think of anything positive when we have to associate it with CD. I have had symptoms for 21 years. I was originally...
Yes, I had CD in the terminal illeium and no "D". I too was a 26 yr old picture of health and then one day as I vacuumed the floor I went to my knees. 9 months being misdiagnosed and given a complete...
I've been on remicade for almost 4 years now. For me, it has been a miracle. I still have symptoms, but I can tolerate them. I take remicade every 6 weeks. When I first started though, I had my 1st...
I have some questions maybe someone here could help me with. I have had crohn's disease for 10 years now. I have learnt to manage it and deal well. However, in January 07, the palms of my hands...