I think that my daughter is going to die. She is on Imuran now and has been for a couple of years. She is on fifty milligrams of Prednisone now and taking Humira. She has been on Humira ever since it...
Can anyone recommend a doctor from either Johns Hopkins or the Cleveland Clinic? I live in Virginia and want to find someone to help my daughter. She has had Crohn's for three years now with very...
It must be an error of some kind. They cannot deny that. God knows, insurance companies cause lots of problems -- like denying the medications that could help avoid surgery but they do not generally...
Above, I wrote, "multiple fissures." I meant to say, "fistulas."...
It is a tough row to hoe but I always remind myself that it could be worse. I write here about my daughter. She is twenty now and she was diagnosed when she was eighteen. As someone else already...
Thanks, Ivv. That is what I will do. I think he means that the TPN would be temporary. We will see him in about a week so we will have plenty of questions for him. Thanks again for the informative...
My daughter changed from Remicade to Humira and has had very good results. Please go see your GI doc as soon as possible. You could be developing antibodies to the Remicade but he/she will have to...
Thank you all for the replies. Ivy, what I was really looking for was living with a colostomy. The TPN idea might not be a bad one. We still have some time to think about it. I will go with her for...
My daughter has been on Humira for about one year. No side effects at all....
We also have UHC. Medco is the problem. Things were fine until Medco came into the picture. The hardest part is the confusion of misinformation. Being told, "Yes, it is approved for the two shots"...
Hi, ya'll. I have not been here for a few months. My daughter's Crohn's is as rampant as ever. She is supposed to be on two shots of Humira every two weeks but there have been some insurance...
My daughter will see a rheumatologist in March. I am also curious about what he can do. She has back pain and other pain. She has osteoporosis. I just cannot imagine what he can do to help the pain...
I have not posted in some time -- not because I have not thought about this place or been concerned -- just busy Crohning along with my daughter who has the cruddy disease. I used to write here...
My daughter never got headaches like that. Remicade was a life-saver for her. Unfortunately, she developed antibodies. Now on Humira and Imuran and doing all right. But Remicade -- the first few...
My daughter had several Remicade infusions with no side effects. Definitely no facial flushing. Of course, everyone is different but flushing is not a typical effect that you get with Remicade....